Dealing with MS as a sibling: Hello, I am... - My MSAA Community

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Dealing with MS as a sibling

GrowthMotivator profile image
8 Replies

Hello, I am the part-time care provider for my sister who has MS. I was curious if there are any other sibling's dealing with a family member with MS?

I feel at times I need to connect with someone who's walking this journey as a sibling, not a spouse or parent. Our perspective could be different; I love my sister and I'm overwhelmed at times by the highs and lows of her progression.

Any useful perspective is hugely appreciated.

Thanks a million!

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GrowthMotivator profile image
GrowthMotivator
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8 Replies
Royjr profile image
Royjr

nationalmssociety.org have an excellent article on Genetic Factors that’s a good read.

Peruzzot profile image
Peruzzot

If you do a search for caregiver support or connection groups you might find something specific to siblings.

kycmary profile image
kycmary

I have no personal knowledge to share I did go to church with a girl who had 2 sisters who also had MS. I haven't seen her in a while they are also grown living in other states. hope you have luck in finding some & I'm praying for you & your sister. Mary

Jesmcd2 profile image
Jesmcd2CommunityAmbassador

Hi GrowthMotivator welcome! Is it just your sister with MS? Or both of you? I'm just curious.

Sounds like you already doing a great job being your sisters caretaker, just by asking.

Your free to always connect here with us! No better to help than those who have it.😊🤗💕🌠

erash profile image
erash

Thank you for supporting your sister. ❤️ I have been a caregiver for my parents towards the end of their lives. I can relate to your sometimes frustrations in that role. I also had guilt and self reproach in not being able to fix or solve or meet all of their needs all of the time. But being a caregiver was also a gift that I not only gave but also received ten-fold.

I cannot however imagine what you are feeling as a sib caregiver. I bet mssa might have resources for you to connect with? Thank you again!

pamgarner profile image
pamgarner

you are such a caring sister,and you are right sibling care would be different

mrsmike9 profile image
mrsmike9

What a wonderful sister you are! I have 2 sisters and they would NEVER help me. Thank God I have my husband! Warm wishes to you. Feel free to vent, ask questions or anything else here. Most of us are not caregivers but may be able to shed light on various issues.

bxrmom profile image
bxrmom

That is so great that your are caring for your sister. There may be other sibling caregivers on the group , hopefully they will chime in. Welcome to this wonderful group of caring people. If you have any questions, worries, or need to vent we are here :)

Jessie

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