Okay perhaps a little mean of me. It is not a game to everybody. It is to me as I am quite cynical when I want o be, sorry I will they to stop it. No promises though.
I would think if “YOU” found this group “YOU” have already been diagnosed (Dx’d) If “YOU” have not but still found us, hope that “YOU” do not have ms in any of it’s forms. Not because it is some fatal incurable condition. ms is not that. It is not fatal, “YOU” and I will live a very long life with this illness. I have had it for over twenty years and I have many friends who have had its longer. No, most assuredly ms is not fatal.
ms is, chronic incurable and progressive. That is the bad news. ms is treatable with Disease-Modifying Therapy(DMT). Usually injections ranging from every day subcutaneous ( short needle under the skin) into fat. Intramuscular, bigger needle into muscle. Some types of infusions and my favorite a tablet, once or twice daily. Only one of which can lead to death, the rest are merely unpleasant at first. “YOU” do get used to them so there is nothing to fear.
It can be very frustrating waiting for a firm diagnosis (Dx’d) I was once told by a neurologist that she did not like telling people they had ms. It is not an illness that “YOU” can give a firm positive outlook for. It is a disease with many questions and few good answers.
Your ms really requires a change in attitude. A very big change. Actually everything that “YOU” think and most everything that “YOU believe has to change. Think “YOU” can not do this. WRONG, change. Think your life is over, you will never find love or happiness, WRONG. Think there is no way that “YOU can self inject these treatments, WRONG. “YOU” really can do it if “YOU” have to and yes. “YOU” have to. The alternative is a continuous decline. The medicine is Disease-Modifying Therapy (DMT) it slows our decline, it does not stop it.
A lot of what “YOU” thought about this condition are WRONG. A lot of what people will tell “YOU is also wrong. “YOU” must decide to make the best of your very long ms life. I expect to pass around 70 so I will have had 40 years with ms, and I decided long ago that I was not going to spend that time as a pitiful individual. I shed my tears, then got on with living my life as good as I can. Sometimes I fail, but I turn and try again and again and again if need be. Because I am sick is no reason not to live with a purpose. What about “YOU”. Can “YOU” give yourself a goal, a future. Life does not have to be bright sunshine and unicorns. A little darkness can be lived with. What do “YOU” think? Can “YOU” make your life one that is bearable, and perhaps happyish.
This disease in incurable but it need not be life ending. I have ms and I have a reasonable good life I think, so can “YOU” Relax take a deep breath it “WILL” be okay if “YOU” make moves for it to be that way.
Royce (the ms writer)
I am breathing, the sun is sort of shining. It is a good day to be alive
