Get serious, “YOU” and I have a chronic, incurable, progressive illness. Do “YOU” understand what that means? It means if your Magnetic Resonance Image(MRI) does not show very much change and anybody tells “YOU” to stop taking Disease Modifying Therapy (DMT) “YOU” politely till them to get lost and “YOU” find a new doctor, friend, husband or wife. This is a serious condition, it is not a wait and see game. Waiting and seeing means progression at a faster rate than being on some form of DMT would have allowed.yes, unfortunately not a huge amount but it might mean being able to stand and dress yourself for an extra year or two in your 40 50 60 year life with Relapsing-Remitting ms (RRms). It may mean using that wheelchair walker or scooter as a convenience not as a necessity.
That is why “YOU” have to get serious with our condition. It is not a game, do not treat it like one for your own sake.
Because you are an adult, I am not going to nag “YOU” to much I think “YOU” have got the very subtle hint. Do not worry I am sure I will nag “YOU” about this again one day. Just not today. was diagnosed(dx’d) at 29ish so I do not know much about pediatric ms, but I assume it is little different than RRms, so I sorry but suck it up child and take your medicine. I would think unless told otherwise, eat before taking any medicine. Most medicines say do not take on an empty stomach, even aspirin.
Information time.
YouTube Dr AAron Boster or Dr Aaron Booster. Bald chap with a friendly smile and a sense of humor. Ohio ms clinic I believe.
Msgym online
\AthleanX, my favorite but a little more advanced also online.
BOOKS
Gut
Grain brain
lost connections
Ikigai, not health, but eventually “YOU” will have to find something to do with your long life. It would be a huge challenge if we all posted here as much as I do.
My eyes are not great so I get my books on Audible, but I am sure Amazon carries them.
CHARTS
again Amazon
Central Nervous system
Brain
possibly gut.
Know and learn your body. Go to medical appointments with some knowledge. Being ignorant does “YOU” no favors. People just take advantage of “YOU” and send “YOU” on your way a little poorer. Ask questions, lots os them, again and again. “YOU” have RRms, “YOU” forget things no matter how hard “YOU” try not to. Beware of that and use it too your advantage. There is absolutely no need to be weak and ignorant. Ask questions, learn, read and make your long ms life as good as “YOU” can. Use your condition to your advantage, do not be a helpless victim to it.
A very good life is possible, children if “YOU” want them’ are possible, a spouse is possible. Open yourself to positive opportunities. Seek them out, not all has to be doom and gloom, there are fun ways to do this illness. It goes onlong enough, get on a DMT and start looking for your bright spot.
Royce (the ms writer)
alosing in on post 600
