Decisions, decisions. “YOU” have a chronic incurable progressive illness, now and at this point in your life “YOU” have a lot of decisions to make. I will not list all of them for “YOU” or give “YOU” every answer that “YOU” may need. These have to be answered by “YOU” and “YOU” alone, for they ultimately effect “YOU” and the quality of life that “YOU” will have, for the remainder of your days. Which should be a very long time. Remember this is a chronic condition not fatal.
That being the case your decisions are important and may very well affect the quality of your life. Do nothing and you can look back at the lives of people 30years ago and what they went thru. Remember very good odds are that this will be “YOU if that direction is followed. Manage your symptoms only and in all likelihood the same path awaits. Take a wait and see approach and again “YOU” are doing the same thing to yourself. “YOU” may ask if “YOU” are ever told to wait and see what happens it is “YOU” that suffer not your Doctors not your spouse nobody else but “YOU”
I was very aware what awaited me by delaying surgery for my Trigeminal Neuralgia, excruciating pain. I was aware of this and for logical reasons I accepted this for many years and several overdoses, but I knew this was going to happen. Do “YOU” know what is going to happen with your ms in 5 10 20 years? I think not. Might it not be the best move to be proactive. To face the infusion now, to feel bad at first but do the shots. Your body is not used to this Therapy, “YOU” might feel off at first. “YOU” will NOT feel a reduction in your symptoms. ms Disease Modifying Therapy is not that type of medicine. It slows down the disease activity. SLOWS it down not stops it, SLOWS it.
Do “YOU” want to get sicker slower or are “YOU” in a hurry to be totally disabled and dependent on others? Think about that and make your own decision. I am nobody special, but I very much enjoyed walking around the gym then the grocery store this morning, and I got on Disease Modifying Therapy (DMT) as soon as I possibly could 20+ years ago. They are not always perfect. I have used three, but I never stopped taking one. It is a part of my life, something that is just done. All else comes secondary I feel it is that important.
These is my truth. I have Relapsing-Remitting ms (RRms) and I will continue to take my DMT for as long as I can. ms does over things to our bodies but I can and “YOU” can do something to slow its ravages down. “YOU” and I can do something to make our lives better, to accept our illness and thwart it at every moment we can. No matter how little it is. Every victory is a victory against ms. Take pride and recognize even the tiniest of victories, for “YOU” did that not anybody else.
Royce ( the ms writer)
Waiting and stopping treatment hurts you, not anybody else
