Location, location, location: I'm brand... - My MSAA Community

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Location, location, location

Horsegirlforever profile image

I'm brand new to this community, but definitely not new to MS. I'm super lucky because my lesions cause pain in my legs 24/7. I recently traveled to Savannah, Georgia to check out a college with my daughter. It's a long drive from central Wisconsin, but I did notice about midway through Kentucky, that the electrical buzzing that accompanies the pain was much less than normal. Once we arrived in Savannah, I was thrilled...pain was gone! Three days pain free was amazing!! But I'm super curious why this occurred? I was in Mexico three years ago and once I was on the ocean, also pain free for a whole week. Real Estate brokers are always saying location is key. Has anyone else experienced pain relief closer to the ocean? Does it have to do with distance above Sea Level? All of my docs have told me I live in the wrong climate for this disease. I'm really tempted to try living in Savannah this summer when it's super hot & humid. I would be willing to sweat if it meant the pain was gone!

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Horsegirlforever profile image
Horsegirlforever
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11 Replies
Kenu profile image
Kenu

When we have been in Mexico always by the ocean the pain is a lot less 👍 The humidity with the ocean breeze has always been bearable 😎 If I had the money I’d be gone😜That’s back before SSDI and Cancer. 👍🙏🐾🐩 Ken

CalfeeChick profile image
CalfeeChickCommunityAmbassador

Horsegirlforever Honored to be the first to Welcome you to our group. Thank you for joining and sharing your recent experience. Savannah is such a beautiful, historic gem. I have kids near Charleston, and have toured Savannah a couple of times. I don't know about the ocean, didn't have MS then. I wonder if it might have something to do with the atmospheric pressure?... I always feel better near the ocean, we are 90 miles inland from the Pacific Ocean. Feel free to read along, join in chats, ask questions and definitely explore MSAA. A whole encyclopedia of MS help and information for you.

Dang, Kenu got there first! If you want someone to be notified of your responses, type their name in with @ before their name.. @Horsegirlforever

Midgey_Midge06 profile image
Midgey_Midge06

I have an app on my phone to check the barometric pressure each day. I can always tell when the air is “heavy” cuz it makes everything ache. I wud be careful with the humidity tho.

ssdw1958 profile image
ssdw1958 in reply to Midgey_Midge06

I don’t think I’m going to need a barometer for this weekend the weather here is going to be crazy this weekend we are going to have a nor’easter

Midgey_Midge06 profile image
Midgey_Midge06 in reply to ssdw1958

Just keep it up north please. No stragglers allowed down south 😁

BigMar7 profile image
BigMar7

I can’t take the heat and as I get older I’m finding I can’t take the cold either! 😀❤️ Ps Welcome to our family.

pihokken profile image
pihokken

The heat and humidity do me in. Good luck figuring out what makes the pain go away.

Qt314grl profile image
Qt314grl

I say roll with it! Any reason to get closer to the ocean is a good one in my book. And if it helps with pain?? Even better 👍👍👍

Jesmcd2 profile image
Jesmcd2CommunityAmbassador

Hi Horsegirlforever and Welcome 😊

If your going to the beach, pick me up along the way.😅 I would love to go.

Being in ny the humidity is a killer, and my best friend is hermen the humidifier.

So if you find a way to be pain free go for it!

J🌠

ssdw1958 profile image
ssdw1958

Yes if you find the way to be pain free let me know as right now I have a heating pad on my neck and have taken 2. Advil oh brother I slept the wrong way I know should take a hot shower but didn’t have the strength to do that. I think it’s going to be one of those days.

Sukie427 profile image
Sukie427

Hello, Horsegirlforever . I am also a fellow horse girl and when I am not nursing broken bones, which I have gotten much more frequently lately, I am out riding in the gorgeous Sedona, AZ red rocks on my best friend, a Paso Fino named Storm.. Best therapy ever. I saw your post and was particularly interested in the electrical buzzing you get with your leg pain. In 2014 I began experiencing electric pain which seemed to originate at a nerve in my left shoulder and shot through the crook of my elbow and the palm of my hand, and simultaneously behind my knee down to the palm of my foot. It honestly felt like someone heated up an electric cattle prod, then stuck it into the nerve and turned it on. It's still happening, but has no apparent trigger and comes at random and leaves the same way. The pain behind my knee is especially horrible and when it hits I just fall like a ton of bricks because I am so balance=changed anyway. Is this what you are experiencing? And if so, have you received any feedback from your docs? I'd love to know what they have said, because when I lived in South Florida (14 miles inland from the ocean at sea level), my neuro gave me nerve blocks directly into the shoulder and the knee and I got very temporary relief. The pain continues to this day, even though we moved to Northern AZ, nowhere near any body of water (the closest is Lake Powell which is about 4 hrs away) and at an altitude of 4300 feet. So I am not too certain about your geographical theory, so sorry. I have been trying to find some relief from this terrible pain but I just had a meeting with one who said that he believes that it is being caused by the MS lesions and not by any spinal canal issues, and although he is going to try a knee nerve block, he's not optimistic about it working. That's why I am so interested in your experience! Keep up with the equine love--only thing that equals it is dogs!

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