Someone mentioned that there doesn't seem to be much information available for those with progressive forms of the disease. John at MSAA was kind enough to send these links. I hope they will help our SPMS and PPMS friends.
mymsaa.org/publications/und...
there are pages in facebook and some information on facebook if you do a search on these two forms of MS. Information is scarce however. Thanks for the links to information as I too have spms
greaterexp You always come through for us!!!!! You are a rock star!
Greaterexp, ty for all your loving kindness and help.Sites are great.Hope you are doing well...
Thank you for asking jackiesj . We really do care about one another here, don’t we? What a blessing!
Greaterexp, it's Fancy1959. I believe there is information available about the progressive form of MS. I just simply think there was some interest in doing a ask me anything Forum about progressive MS in both of its forms. There's just something about talking to in medical professiona were they can explain things from different angles or in a better light than a typical book can. Fancy.
Thank you for sharing those links.
Stages of MS & Me
Primary progressive M.S.
Primary Progressive MS Questions??
