I was newly diagnosed some 7-8 months ago and through pushing hard got to see a macmillan nurse specialist who recommended class three below knee made to measure compression stockings. I have now worn these for approximately six months and on my follow up appointment last week the nurses were extremely pleased with the results.
It appears as though my leg measurements are near normal and my skin is relatively normal. I still have some infection from folliculitis type infection but she has again recommended a referral back to the dermatologist in relation to antibiotics to ensure i get no further bounce back infections.
They have requested a further three pairs of stockings which i am hoping to pick up the prescription for this week.
What i have learned is that without the compression my legs swell and the pain increases.
It is therefore vitally important to use the prescribed compression garments, going without is not an option. I read the posts and advice given by all of the members and being a sceptic thought i would be ok with doing my own thing and just wearing the compression stockings when i felt like it. I was wrong they need to be worn everyday. Even in a forty five degree heatwave in Lanzarote on holiday i found a way of wearing them. I would wear them when i got up about 6 go for a walk and stop wearing them about 10.30. I would then spend a lot of the time in and out of the pool during the day and then wear them again at night. This worked for me, if i didn't have any compression in the morning i found by night time i was struggling to wear my flip flops.
I know we learn these things ourselves but i would urge everyone new to this condition to listen to all of the good advice given on this site and remember not to give up.