Are there any support groups in the RG postcode area. ... - LSN

LSN

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Are there any support groups in the RG postcode area. finding dealing with lymphoedema in my left arm more difficult than cancer 9 yrs ago

Neverenoughsparkle profile image
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Neverenoughsparkle profile image
Neverenoughsparkle
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LymphSuppNetwork profile image
LymphSuppNetworkPartnerLSN

The closest on is Newbury in Berkshire - give the LSN office a ring and they can give you contact details - 0207 351 4480

Rebec profile image
Rebec

And I thought that it can only improve! Nobody talks about Lynphoedema when they talk about breast cancer. OK, nobody dies of Lymphoedema but it does make life complicated. Do you wear a special bracelet or chain to alert medical staff to your left arm needing special care in case of accidents, etc?

Neverenoughsparkle profile image
Neverenoughsparkle in reply to Rebec

I need to sort a bracelet out and seen a few good ones. The sleeves are awful in colour and I find the medical appearance the worst. At least when I had no hair during chemo I could have a sense of personal style with funky headscarves. The companies are reluctant to discuss fashionable sleeves

Rebec profile image
Rebec in reply to Neverenoughsparkle

I would recommend wearing a necklace as a bracelet might become too tight unless you would wear it on your right wrist which might not make sense. I just hope that it will be recognised for what it is! I congratulate you on being 9 years AF (after cancer). I call the time before I discovered my cancer as BC. Don't forget to let the group know the result of your scan. Good luck!

Rebec profile image
Rebec in reply to Neverenoughsparkle

P.S. I would choose a sleeve which is skin colour in order to avoid being asked questions. Did you travel by air during this time? And if yes, didn't you need to wear one?

Neverenoughsparkle profile image
Neverenoughsparkle

I had a medic alert card and when I flew I wore the sleeve before during and after the flight and had no problems. Took a first aid kit that could rival an A & E Dept and didn't get a nibble from any mosquito bugs.

LymphieJem profile image
LymphieJem

Hi Neverenoughsparkle, I am not sure if Oxfordshire would be too far but I am looking at setting up a Support Group in or outside of Oxford. I live in Oxford and have just started advertising for a group on social media and at the clinic at Churchill Hospital in Oxford. I am open to meeting outside of the city, whereever suits the members - when I get any replies! :-) Jemma