Denial

Hi my name lee I am 42 , 2 kids 6 and 15 . My fibromyalgia symptoms started June 21 and I was diagnosed in march 23 . I am having accepting I won't be tha same again , I also have hypermobility. I reduced my hours at work and I applied for pip in April just waiting to hear . Any advice about living with this illness I would appreciate it 👍x

[Yassytina FMA UK Volunteer]

Hello and welcome, it is very hard trying too get your heads round this condition and for me one was relief I had some answers finally and secondly too treat each day as it arrives , some will be better than others and I don’t always plan too far ahead, thirdly I’ve learnt too say no when I feel I cannot keep up with extra socialising , commitment too things I am on the day not be able too attend, having young family will help you keep your focus and positivity as my young young grandsons do for me `but also let your family know it’s team work and any support they can give you back when your not having a good day wil certainly help. Pacing method (hard I know with family) does help as over doing it can lead to a flare. Some lovely members here with young families too, can give each other advice and always nice too talk about this unwanted club we got too join, I hope you find the forum helpful , take care x

[Hidden in reply to Yassytina]

Thank you so much for commenting, I appreciate it . I don't pace myself I am going try thanks

[Yassytina FMA UK Volunteer in reply to Hidden]

Well done if you can alittle, take good care of yourself and pop on the forum sometimes for a chat xx

[Loobielu]

Hi Lee, welcome 🤗. I'm also relatively new to this site and the world of fibro. Like you turning 40 was a real downward spiral of my general health. Great advice from yassytina. I find its a very lonely condition as those without it just can't understand. I'm finding yoga useful and generally staying mobile. Heatpad for those times when pain is just too much which is tricky in summer time when you're too hot already! Like you, I also had to reduce my working hours. Keep an eye out on any perimenopause symptoms. They sneak on earlier than we expect! Take care X

[Hidden]

Thanks

[Midori]

For starters, you have come to the right place. We are a welcoming and helpful bunch of Fibromites.

Very few doctors (as far as I am concerned) know anything much about Fibro, and apparently, many can't be bothered to find out!

Fibro has many similarities to ME/CFS as well as Long Covid, not surprised about the long Covid as it's also a post - Viral thing.

There seems to be still a lot of research to go before anything certain is discovered about Fibro, and some doctors say it's all in the mind (usually older ones!) Young doctors seem more eager to find out. If your Doctor needs one, there is a booklet about it available from HU. It can be sent directly to your GP.

Hypermobility seems common among us, I have it and my knees are dying under the strain, but hey!

I would suggest you look up The Spoon Theory on the Net, I have found it very useful, both to myself, and also to help others understand a little about how it affects us, and why we can't always be as social as we would like to be.

Exercise is important to keep us mobile, but we have to temper it against our other activities to avoid Flare-ups,Pain relief can be a two edged sword, with the things which help our pains, increasingly being taken away.I make do with Ibuprofen or Paracetamol, because our Doctor's surgery is not seeing patients, but only offering Zoom or Telephone Appointments for Emergencies, and no regular appointments whatever, and this has gone on for over 3 years; it's the only Surgery in the whole town! If you can't phone at 8am, you are out of luck.

Insanity appears to rule, and I say it as a former, now retired nurse!

Cheers, Midori

[cutebird]

Hi, I was diagnosed in 2004. It is a very complex, strange , odd, bloody difficult illness. I have found deep tissue massage, acupuncture and swimming good. I use the steam room at the pool, which I read was good for fibro. If you have a good gp that is a great help - I sadly don't! Local rheumatologistjudt sent me to the g p. Good luck, don't try and do too much all the time it won't help!!

[travishatesfibro]

Pay attention to stress dont over exert yourself, Learn to listen to your body, and let your wife take over stuff that you know stresses u out.