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Endometriosis UK

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tingly numb leg on period. normal or endometriosis?

Hiii , I always have this days before and on my period. But this IS THE WORST ITS EVER BEEN. I’m taking coedine with paracetamol. I’m going to see if I...

Hiii , I always have this days before and on my period. But this IS THE WO...

Cutiepatootie

•6 hours ago

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IUD expulsion....twice!

Hey, so I was recently diagnosed with Endometriosis after many, many years of being told it's just a heavy period, you'll just have to get on with it - thank...

Hey, so I was recently diagnosed with Endometriosis after many, many years of be...

PraiseCheesus

•16 hours ago

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Dealing with endo after children in late thirties

hi there I’m 37 and had two children via IVF when I was 33 and 35. I have stage 4 recto vaginal endometriosis and had a bowel resection and temporary stoma...

hi there I’m 37 and had two children via IVF when I was 33 and 35. I have stage...

EKP31

•19 hours ago

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Anxiety post op

Hello all! I had a laparoscopy to remove a blood cyst and clear/check for other endo back in march, I took a month off work which in hindsight might have been...

Hello all! I had a laparoscopy to remove a blood cyst and clear/check for other ...

Field20

•22 hours ago

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Returning Endometriosis with a vengeance!

So approximately two years ago I had surgery for severe endometriosis. It didn’t particularly help with the pain as I also have adenomyosis, but I was just...

So approximately two years ago I had surgery for severe endometriosis. It didn’t...

AnissaEndo

•1 day ago

3 Replies

Si Joint/back pain

Hi I have a history of back pain and endometriosis. I recently turned 50 and leading up to my period my si joint pain has suddenly got worse and it all goes...

Hi I have a history of back pain and endometriosis. I recently turned 50 and lea...

AMS_1

•1 day ago

5 Replies

information on endometriosis

recently come off the depo injection after having it many years, I’m about 11 months from it, didn’t take long for periods to arrive, past 2 have been about 5...

recently come off the depo injection after having it many years, I’m about 11 mo...

Purpledogcollar

•1 day ago

1 Reply

Reassurance for laparoscopy excision surgery

I'm just after a bit of reassurance really. I'm under an endo specialist and I've booked in for excision surgery in August, but I so scared that they're not...

I'm just after a bit of reassurance really. I'm under an endo specialist and I'...

WJSM

•2 days ago

4 Replies

Getting people to understand your pain

Has anyone else been asked by a paramedic "have you taken paracetamol?" They wouldn't say that to a woman in labour!

Has anyone else been asked by a paramedic "have you taken paracetamol?" They wou...

LivvyCat

•2 days ago

6 Replies

endo pain in hips and legs after work

Hi so I have a gyni appointment and dunno if I should bring it up to her or if she’s just gunna think I’m crazy. But I work 9 hours a day doing a sit down...

Hi so I have a gyni appointment and dunno if I should bring it up to her or if s...

Ginge2001

•2 days ago

5 Replies

Has anyone not been diagnosed after first laparoscopy but diagnosed later?

Hey everyone! 🤗 This may be a bit of a long one, so I appreciate anyone who takes the time to read it. I was wondering if anyone had endometriosis that was...

Hey everyone! 🤗 This may be a bit of a long one, so I appreciate anyone who tak...

Jollie93

•2 days ago

6 Replies

vaginal bleeding post bowel motion

Hi all, i appreciate this is a little TMI, but I’ve occasionally been experiencing vaginal bleeding after pooping. It’s definitely vaginal bleeding. I made...

Hi all, i appreciate this is a little TMI, but I’ve occasionally been experien...

PopcornPJ

•2 days ago

4 Replies

Bladder stretch

Hi, has anyone got a bladder stretch before? Can you please let me know how it went for you / any advise? Thanks

Hi, has anyone got a bladder stretch before? Can you please let me know how it w...

allym92

•3 days ago

4 Replies

Returning to work with exhaustion

Hey lovelies 💛 I hope you are all doing well. I had my Laparoscopy 4 weeks ago now (9th April) I was in theatre for around 3 hours and they removed a fair...

Hey lovelies 💛 I hope you are all doing well. I had my Laparoscopy 4 weeks ago...

Spirit_in_the_night

•4 days ago

12 Replies

Nerve damage

Hi, Has anyone experienced nerve damage as a result of endometriosis? My surgeon warned me it was a risk associated with surgery and I already had some...

Hi, Has anyone experienced nerve damage as a result of endometriosis? My surgeo...

Giraffegreen

•4 days ago

4 Replies

Belfast- going private

I can't wait any longer! I'm having to consider going private but I have no idea who to see. I know we can't discuss individual drs here but any steer/info...

I can't wait any longer! I'm having to consider going private but I have no idea...

Purpleflowers99

•4 days ago

1 Reply

Endo and mental health

Hi all,How are you dealing with mental strain of the diagnosis and living with a chronic disease? What strategies are you using? What tools turned out to be...

Hi all,How are you dealing with mental strain of the diagnosis and living with a...

OlgaSz

•4 days ago

8 Replies

is my pain Endo + did it cause my miscarriages?

finally a community that I can ask! Please help as I’ve seen so many docs and none can give me an answer. I’ve had 3 miscarriages in 12 months. From...

finally a community that I can ask! Please help as I’ve seen so many docs and...

Maybeendo

•5 days ago

3 Replies

Bowel Problems...

Hello everyone, I think I already know the answer from other posts, so sorry for repeating, but I get so confused over the symptoms I get and I'd like to see...

Hello everyone, I think I already know the answer from other posts, so sorry for...

LivvyCat

•5 days ago

13 Replies

Alcohol and endo

Hi everyone, I've yet to try alcohol yet since being suspected of having endo. I haven't drunk alcohol in over a year and a half since getting sick and having...

Hi everyone, I've yet to try alcohol yet since being suspected of having endo. I...

Lavenderpetal

•5 days ago

23 Replies

New diagnosis - How do I cope?

Hi everyone, Apologies if this is the wrong place, but I'm tired, scared and needing someone to talk to. Today I was diagnosed with Endometriosis which is...

Hi everyone, Apologies if this is the wrong place, but I'm tired, scared and nee...

An_Exhausted_Pigeon

•5 days ago

3 Replies

decapeptyl

hi everyone! My first time posting ! I am 35 diagnosed with Endometriosis im dec 2022 after years of being told I am completely fine I had my first decapeptyl...

hi everyone! My first time posting ! I am 35 diagnosed with Endometriosis im dec...

Beaugirl89

•5 days ago

2 Replies

Oestrogen help 🤗

Not sure where to post this sorry if wrong bit 🙈🤗 My oestrogen blood test showed 209 pmol around day 9 of cycle does anyone know if this is low. I'm 38....

Not sure where to post this sorry if wrong bit 🙈🤗 My oestrogen blood test show...

Beeekind22

•6 days ago

7 Replies

New adenomyosis diagnosis on top of my endo 😢

Hi guys, due to worsening symptoms since January I’ve recently had an t/v ultrasound and pelvic MRI. Been told I now had adenomyosis as well as already...

Hi guys, due to worsening symptoms since January I’ve recently had an t/v ultras...

endowarrior12

•7 days ago

20 Replies

Heavy bleeding Mirena

Hello I have the mirena IUD coil for about 3 years now. My bleeding used to be lighter but still there and constant. But over the last couple of money with...

Hello I have the mirena IUD coil for about 3 years now. My bleeding used to be l...

Littlebug77

•7 days ago

3 Replies

zoladex and bloating

hi will try to keep this brief, I’m on zoladex injections and taking hrt, I’m on my 5th one now, side effects in beginning were really bad aching like having...

hi will try to keep this brief, I’m on zoladex injections and taking hrt, I’m on...

Welch16

•7 days ago

2 Replies

Excision surgery tips

hi all. Hope you’re well. 💛 I’m having excision surgery in 2 weeks, could you kindly share any recovery tips? I’m also having Endometrioma and fibroids...

hi all. Hope you’re well. 💛 I’m having excision surgery in 2 weeks, could you ...

Hidden

•7 days ago

5 Replies

Tibilone experiences

Hi. I have very severe endometriosis and adenomyosis and am awaiting surgery which will likely involve having a stoma. I’ve previously had left ovary removed...

Hi. I have very severe endometriosis and adenomyosis and am awaiting surgery wh...

Lily1986

•8 days ago

11 Replies

Zoladex

Hi all I know there will be 101 discussions out there so apologies I just needed to get my thoughts down. I was due to get my first zoladex injection today...

Hi all I know there will be 101 discussions out there so apologies I just needed...

Lornalost89

•8 days ago

12 Replies

Endometriomas and IVF

Just looking for some advise or from anyone who has gone through similar! I had surgery last June to remove bilateral cysts diagnosed with stage 4 endo and...

Just looking for some advise or from anyone who has gone through similar! I ha...

Amy2106

•8 days ago

2 Replies

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Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

tingly numb leg on period. normal or endometriosis?

IUD expulsion....twice!

Dealing with endo after children in late thirties

Anxiety post op

Returning Endometriosis with a vengeance!

Si Joint/back pain

information on endometriosis

Reassurance for laparoscopy excision surgery

Getting people to understand your pain

endo pain in hips and legs after work

Has anyone not been diagnosed after first laparoscopy but diagnosed later?

vaginal bleeding post bowel motion

Bladder stretch

Returning to work with exhaustion

Nerve damage

Belfast- going private

Endo and mental health

is my pain Endo + did it cause my miscarriages?

Bowel Problems...

Alcohol and endo

New diagnosis - How do I cope?

decapeptyl

Oestrogen help 🤗

New adenomyosis diagnosis on top of my endo 😢

Heavy bleeding Mirena

zoladex and bloating

Excision surgery tips

Tibilone experiences

Zoladex

Endometriomas and IVF

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