question- flank pain and endo?

[Khill37]

hi all,

I have lived with constant left flank tenderness for about 4/5 years that have had an array of diagnosis from rib issue, to pulled muscle to Costochondritis , to potential kidney issue. I haven’t had a check for endo tissue in my abdominal area yet , just pelvic ( where I have stage 1 endo) . I just wandered if anyone has ever expended side flank and tummy tenderness with endometriosis . It honestly feels like I have permanent bruising , or have been kicked in the side or have a broken rib. Even light touches can sometimes really hurt . Do let me know . Heat doesn’t seem to particularly help .

[ChicaPixie]

Hello my lovely, I'm so sorry you're going through this. This is definitely something I've experienced, though I'm not sure where in my upper abdomen endo is as my last consult failed to address this. But I've had the shooting pain on the left side on and off. Even after my op. I also experienced rib pain or I should say pain right at the bottom of my left rib.

I truly hope you can get it checked for endo as it sure sounds similar to my pain.

Are you due to see anyone about it lovely?

I hope you will be able to get some answers and relief too.

Sending strength your way xx

[Reddog8]

I am sorry but I can’t add anything to help. But I’ve had exactly the same but on right side. I have also received the array of diagnoses as you. However, I have had multiply surgeries and an MRI and the endo has never been found near. I do wonder if it’s just the inflammation in our bodies that cause this pain, but you are the first person I’ve heard that experiences the same so it’s sort of a relief I’m not mad. Good luck with your endo journey.

[Blackcurrants]

I have the flank pain for a year now and it’s killing me. Along with frequent urination at night. I have a diagnosis of secondary hyperaldosteronism but no known cause. I suspect I might have endo on or near kidneys, bladder and ureter. I’ve had endo removed before but notes weren’t made and biopsy not received so I have no idea where it was. No one can get to the bottom of the pain and I’m very close to not being able to work. Hurts to lie, to sit back on a chair, twist, turn bend etc. Im seeing a gyne tomorrow to see what they think.

Sorry you’re suffering too. It’s miserable and no one understands how the pain eats away at you. I’m just about to try medical cannabis to see if it helps as I feel so far away from this being over! Sending love and strength xx

[LME5 in reply to Blackcurrants]

Thank you for sharing your experience. I'm sorry to read that you're in such pain It's crazy how uninformed we are about our surgeries. I can't believe that most of us don't see a surgical report of any kind. May I ask, how were you diagnosed with secondary hyperaldosteronism? Did you undergo blood work, kidney function tests? Have you had an MRI which picked up on issues with your adrenals?

[Blackcurrants in reply to LME5]

Yeah it’s crazy to to too and why wasn’t the biopsy returned?! It’s all rubbish. Diagnosed SA through endocrinology. I have high renin and aldosterone which indicates secondary hyperaldosteronism. It’s a kidney issue and not related to adrenals if both of these tests are high.MRI and CT all clear. I’m looking into compression issues such as nutcracker syndrome and other artery blockages and due to have ct renal angiogram soon to see if this is the cause. Just seen a gyne this morning and he’s offered laparoscopy. I’ll see if anything comes up on my two forthcoming tests and if not I might opt for a lap to rule it out. It’s probably pretty obvious as I’m being seen quickly but I’m fortunate enough to have private health cover. Otherwise I wouldn’t have seen an endocrinologist by now, let alone urology and gyne.

[LME5 in reply to Blackcurrants]

That's so interesting, thank you so much for sharing! There's so much that endo can affected, even just by the inflammation it causes. It's great that you have private healthcare or you're stuck on NHS waitlists. That's if you get a referral! I'm so glad that you've been diagnosed, but it's ridiculous that endocrinologists aren't in-the-know about endo, because I would bet your secondary hyperaldosteronism is connected. I hope that the endocrinologist communicates with your gynae about your condition to help inform surgery. May I ask, what symptoms got you to an endocrinologist in the first place? Was it mainly back pain?