Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

72,181 members • 52,781 posts

All posts for June 2023

venting

hi everyone! just here to vent more than anything but could also use some advise! so I paid to go private to see a endometriosis specialist and he was...

hi everyone! just here to vent more than anything but could also use some advis...

Topshopdreams123

•1 year ago

1 Reply

dienogest prescribed

hi. Has anyone been prescribed dienogest to help with endometriosis. I’ve had lap and they burned it away but I am still in pain. So I have now been prescribed...

hi. Has anyone been prescribed dienogest to help with endometriosis. I’ve had la...

JAJ27

•1 year ago

4 Replies

Coming off the Pill

Stage 3 Endometriosis, been on the Pill (Mercilon for 4+ years ) been off since end of April. My skin is awfulllll Came off the pill as I don’t want it to...

Stage 3 Endometriosis, been on the Pill (Mercilon for 4+ years ) been off since ...

Adnalim

•1 year ago

4 Replies

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Zoladex side effects

Hi all, I have been on Zoladex and Tibolone (HRT) since November last year. The treatment has been hit and miss in terms of my endo symptoms and I am awaiting...

Hi all, I have been on Zoladex and Tibolone (HRT) since November last year. The...

Wilsoc1

•1 year ago

1 Reply

Hormone therapy for Endometriosis

Hello, I hope you're all doing ok. I was wondering if anyone has any advice, tips or experience in hormone therapy for endometriosis. Long story short I was...

Hello, I hope you're all doing ok. I was wondering if anyone has any advice, ti...

Violet89

•1 year ago

1 Reply

More surgery....

So I finally got to see the endometriosis specialist again after screaming and shouting yet again, they told me they will finally take out my overies away and...

So I finally got to see the endometriosis specialist again after screaming and s...

Bubblepoppy

•1 year ago

2 Replies

Ca125, cyst, pain and flooding

Hi all, I am 26 and was officially diagnosed last September with endo through a lap. I recently had a blood test which showed elevated levels of ca125. I then...

Hi all, I am 26 and was officially diagnosed last September with endo through a ...

Endometri

•1 year ago

9 Replies

Doctor won't test for Endometriosis

I'm in my early 30's and started getting painful periods when I was 17. Pain in my stomach, back, down my legs and generally feeling sick. It was quite severe,...

I'm in my early 30's and started getting painful periods when I was 17. Pain in ...

K833

•1 year ago

7 Replies

Buscopan

Does anyone find Buscopan helpful? I've tried it, but only for a few days, so not sure if I should wait a little longer?My gp has also prescribed Co-dydramol,...

Does anyone find Buscopan helpful? I've tried it, but only for a few days, so no...

Mindfullness4791

•1 year ago

4 Replies

Severe endometriosis surgery in London

I would like to share my story and my heartfelt gratitude and appreciation for the exceptional care and expertise provided by Mr. Tsepov. After a pre-diagnosis...

I would like to share my story and my heartfelt gratitude and appreciation for t...

numorb

•1 year ago

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I was lost too..

Hello there I truly feel your pain. After I gave birth to my daughter in 2008 I started to have alot of new pain and bleeding. Was diagnosed with...

Hello there I truly feel your pain. After I gave birth to my daughter in 2008 I ...

Lolly1984

•1 year ago

Be the first to reply

Coughing - thoracic endo - did you check your lungs?

Hi ladies! Since a catamenial pneumothorax (triggered by periods), I've been coughing for a month and seems to get worse. Anything makes me cough (cooking...

Hi ladies! Since a catamenial pneumothorax (triggered by periods), I've been cou...

Endosufferer1

•1 year ago

3 Replies

Bowel endo surgery

I was diagnosed with endo via lap four years ago. At the time i had an endometrioma removed but they left some endo (including a nodule) on my left uterosacral...

I was diagnosed with endo via lap four years ago. At the time i had an endometri...

anonnads

•1 year ago

1 Reply

GnHR injections

hi, had my first injection yesterday (I have grade 4 endo) and woke up today with a vile headache and pain in my lower back/hips. Has anyone else had the...

hi, had my first injection yesterday (I have grade 4 endo) and woke up today wit...

KTe23

•1 year ago

1 Reply

New to this..

Hi there, as the title suggests I'm very new to this - this being Endometriosis and also reaching out into the unknown for a little advice and...

Hi there, as the title suggests I'm very new to this - this being Endometriosis ...

plantingsunshine

•1 year ago

10 Replies

Bit of a Vent

(Warning: I mention infertility a bit) Hi everyone, My suspected endometriosis has been getting worse and worse, especially after I’ve been put on the...

(Warning: I mention infertility a bit) Hi everyone, My suspected endometriosis ...

VioletCoffee

•1 year ago

2 Replies

Treatment Options??

Due to other underlying medical conditions & disabilities I am unable to go on any hormonal medication (oestrogen or progesterone). I can't take NSAIDS. I've...

Due to other underlying medical conditions & disabilities I am unable to go on a...

Cats1311

•1 year ago

7 Replies

Symptoms worse since op?

Hello everyone, I was hoping some could give clarity that I’m not going completely crazy. I had my diagnostic lap at the end of feb this year and found out on...

Hello everyone, I was hoping some could give clarity that I’m not going complete...

Pacotj

•1 year ago

23 Replies

Feeling lost

Hi everyone, To cut long story short, I was diagnosed with severe endometriosis 6 years ago after a cyst exploded. I have had 2 surgeries, zoladex...

Hi everyone, To cut long story short, I was diagnosed with severe endometriosis...

endoqueen2

•1 year ago

10 Replies

So latex and heavy bleeding

So far I have had 3 monthly zoladex injections and currently on day 8 of period number 3 within that timeframe. Specialist has suggested that pain and bleeding...

So far I have had 3 monthly zoladex injections and currently on day 8 of period ...

Wizzy123

•1 year ago

3 Replies

Adenomyosis resources

Hi everyone! My consultant said the Transvaginal scan and the Laparoscopy I just had both showed signs of Adenomyosis. I’m keen to help myself in any way I...

Hi everyone! My consultant said the Transvaginal scan and the Laparoscopy I jus...

Lauren_0203

•1 year ago

3 Replies

Diagnosed after 6 years

Hi, I'm new here and am desperately trying to get more information that doesn't involve getting in a Google spiral! I had an ultrasound appointment on Tuesday...

Hi, I'm new here and am desperately trying to get more information that doesn't ...

Hidden

•1 year ago

16 Replies

Swelling on feets

Had my scanning done two weeks ago,I don't know what to do now,do they send my report to GP or they will call me from hospital,I don't know what to do, please...

Had my scanning done two weeks ago,I don't know what to do now,do they send my r...

Kamna1

•1 year ago

1 Reply

MRI - what can I expect

hi, I’ve got an MRI next week as my consultant thinks I have endo stuck on my bowel. I’m at a specialist centre so have been told they will hopefully be able...

hi, I’ve got an MRI next week as my consultant thinks I have endo stuck on my bo...

Emmaja_ne

•1 year ago

8 Replies

Endo returned after full hysterectomy

Hi ladies..so I had a full pelvic hysterectomy in September 2022.. removed everything ovaries included..past 2 months I have started to have period type pains...

Hi ladies..so I had a full pelvic hysterectomy in September 2022.. removed every...

Auntyhay

•1 year ago

3 Replies

Questions regarding mental and emotional affects from having endometriosis, hormone spiral and possible removal, surgery.

Hello everyone! I am from Norway, and I am so glad that I found this place to read and Connect with all of you who share this condition of endometriosis. In my...

Hello everyone! I am from Norway, and I am so glad that I found this place to re...

Havregroet

•1 year ago

1 Reply

Endo and Mental health

Hello all, Just wondering if anyone diagnosed or suffering with Endo has a similar problem with thier Mental health around the time of a cycle ? Aswell as...

Hello all, Just wondering if anyone diagnosed or suffering with Endo has a simi...

Jajo1987

•1 year ago

6 Replies

Early pregnancy, endo pain, missed miscarriages

I'm really hoping someone may be able to relate to this, or have some words of wisdom, because I'm at a loss... I have been pregnant three times (twice in the...

I'm really hoping someone may be able to relate to this, or have some words of w...

RabbitJungle

•1 year ago

1 Reply

Constant localised pain

Hello, I was diagnosed with endometriosis last year, had a laproscopy and they removed a large endometrial cyst, removed all the endometriosis they could find...

Hello, I was diagnosed with endometriosis last year, had a laproscopy and they r...

Em0000

•1 year ago

1 Reply

Australian researchers make world-first endometriosis breakthrough

https://www.theguardian.com/society/2023/jun/01/australian-researchers-make-world-first-endometriosis-breakthrough This is in the Guardian from a press......

https://www.theguardian.com/society/2023/jun/01/australian-researchers-make-worl...

bluebug

•1 year ago

3 Replies

Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

All posts for June 2023

venting

dienogest prescribed

Coming off the Pill

Zoladex side effects

Hormone therapy for Endometriosis

More surgery....

Ca125, cyst, pain and flooding

Doctor won't test for Endometriosis

Buscopan

Severe endometriosis surgery in London

I was lost too..

Coughing - thoracic endo - did you check your lungs?

Bowel endo surgery

GnHR injections

New to this..

Bit of a Vent

Treatment Options??

Symptoms worse since op?

Feeling lost

So latex and heavy bleeding

Adenomyosis resources

Diagnosed after 6 years

Swelling on feets

MRI - what can I expect

Endo returned after full hysterectomy

Questions regarding mental and emotional affects from having endometriosis, hormone spiral and possible removal, surgery.

Endo and Mental health

Early pregnancy, endo pain, missed miscarriages

Constant localised pain

Australian researchers make world-first endometriosis breakthrough

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