My suspected endometriosis has been getting worse and worse, especially after I’ve been put on the implant. I had to go to A&E for the doctor to tell me he didn’t even think morphine would help with my pain… I’ve had to take so many sick days from work and my appointments kept being put back which made it worse.
Anyway, I finally got a cancellation for yesterday after my appointment was cancelled again. I couldn’t stop crying during it because it’s at the point where I’m in extreme pain every day and it took 6 months to just talk to a gynaecologist. She went through my history, symptoms etc (my mum and auntie have endometriosis) and said she’s going to give me injections (I can’t remember the name) for a short period as apparently if my symptoms get better, it is a very good indicator I have endometriosis as it stops all oestrogen which endo grows from. My MRI didn’t show anything by the way.
If all goes well, I’ll hopefully get a laparoscopy. Then I had an examination and it was SO painful. Like I normally have pain when I’m examined but it was so much worse this time. I also get pain during sex too. It’s just terrifying and I’m now scared I won’t be able to get pregnant because the pain is so intense and if surgery or treatment doesn’t fix it, I don’t know what will.
What’s worse is that I’m only 21. It’s just terrifying to have all this pain but still have no cause be found to it. And then there’s the mental aspect, worrying it’s all in your head or you’re making it worse than it actually is because no one else can see or feel what you’re feeling.
Sorry, but I had to vent. It’s just become too much for me. I’m only young and should be enjoying my life but instead I’m in bed in crippling pain, burning my skin with a heat pad and hot water bottle because no painkiller has even touched it.
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VioletCoffee
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The only way you can be sure about what is going on is to get a laparoscopy. I waited far too long for mine (I'm older than you so trying to get pregnant was a priority).
I had the prostap injection and it was pretty rough so definitely research what drugs you are getting!
I researched the best endo gynaecologist in my area and booked a private appointment with them. He then put me on his NHS operation list - it still took ages to get the surgery but I've had no pain since the op (5 years ago).
Trust yourself and push to get on the waiting list.
I'm so sorry you're going through all of this, especially at such a young age! I'm in a similar boat in terms of having a long wait to see a gynae. I've only just been referred to one and been having bad symptoms and numerous GP apps and ither investigations for a year. It's so frustrating. I understand your pain!
Have you explained to your GP/gynae how bad the pain is and how much it is affecting your life? I've tried this myself and often get written off. Few docs seem to even count it as a problem. I use a symptom tracker (an app called Clue) and write everything down in a list on a piece of paper and actually hand it to docs so that they have to read it and can't say they just forgot anything. Just keep on at them until they give you some decent painkillers.
Forgive me if I'm wrong here too, but it sounds like you're dealing with a hell of a lot of anxiety and stress, between the pain and all the worrying about infertility. Some people scoff at this, which is fine, but have you even given hypnotherapy a go? I used it for stopping smoking years ago (worked from the first session and haven't smoked since) and I find it really helps with anxiety and stress too. You might find it helps with managing the pain. There are specific sessions for pain management too, though I've never tried those myself. They don't have to be expensive either. You can buy recordings online (Clear Minds is the one I use).
I'm sorry again that you're in so much pain. But this is the place to vent if you ever need to! If you ever need someone to talk/vent to, please feel free to contact me 😊
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Feeling so low - just need to vent
Feeling a bit frustrated 😔
Endo found but still bit confused
Bit of a long one.. need advice!
A bit in the dark
