Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

72,733 members•53,170 posts

All posts for June 2021

1st Period in 18 years.

Hey hope you all well, well after nearly 18 years I had my 1st period 2 weeks ago to think I was shocked that was and understatement. Ive been referred to the...

Hey hope you all well, well after nearly 18 years I had my 1st period 2 weeks ag...

Nat_Parkinson1980

•3 years ago

Be the first to reply

Us Women need Support with providing Sanitary on an Incontinent Level for the Excessive Bleeding!

Hi, I'm hoping to be pointed in the right direction or see if we can get help anywhere? I was offered help with incontinent sanitary from Bladder and Bowel for...

Hi, I'm hoping to be pointed in the right direction or see if we can get help an...

Miss_T

•3 years ago

13 Replies

Any one experience hematology related endometriosis problem?

Hi Any one getting treatment for hematology like heavy period and endometriosis?. Any one took any blood test under hematology department?. Am consulted...

Hi Any one getting treatment for hematology like heavy period and endometriosis...

Nikilll

•3 years ago

2 Replies

Want to take advantage of all our features? Just log in!

Advice on private consultation

Hey guys, I'm looking for some advice on private consultations. I've been struggling with pain for 18 months now. I've currently been put on the pill which is...

Hey guys, I'm looking for some advice on private consultations. I've been strugg...

Hol2509

•3 years ago

13 Replies

Are you thinking of going private for your treatment

Endometriosis UK are working with the BBC on a documentary and we would like to hear from people who are considering having private treatment. If you are...

Endometriosis UK are working with the BBC on a documentary and we would like to ...

Lynne_support

Partner•3 years ago

1 Reply

Clear MRI - could I still have endo?

Hi ladies. Had a follow up with my endo specialist today who said my MRI was normal - but fortunately he’s still put me on his surgery list to make sure as he...

Hi ladies. Had a follow up with my endo specialist today who said my MRI was nor...

Dartmouth93

•3 years ago

11 Replies

Can anyone help me explain this?

Hello, I have already been diagnosed with Endo and I had a laparoscopy last year and they removed the endometriosis. Since then the pain has not improved, so...

Hello, I have already been diagnosed with Endo and I had a laparoscopy last yea...

LoLoLeanne

•3 years ago

24 Replies

Case Studies needed - Women at work

Endometriosis UK have received a request from Channel 4 for case studies. They are looking to do a story on how women with endometriosis are affected at work....

Endometriosis UK have received a request from Channel 4 for case studies. They a...

Lynne_support

Partner•3 years ago

7 Replies

Stage 4

Hii girlies, haven’t been on here much as Iv not really bad any issues. About 3 months ago I went to see about getting my eggs frozen as am 27 no kids and...

Hii girlies, haven’t been on here much as Iv not really bad any issues. About ...

hp24

•3 years ago

1 Reply

Thoracic endo?

Hi everyone, Just doing some research into this before I talk to my doctor and gyne. I have been getting fairly random but also sometimes cyclical chest...

Hi everyone, Just doing some research into this before I talk to my doctor and g...

Meriel_Owen

•3 years ago

9 Replies

Private costs

Hi, I'm based in Wales and just got added to the surgery list which was horrendous before covid. It's now 5-6 years. Does anyone have a rough idea of what...

Hi, I'm based in Wales and just got added to the surgery list which was horrendo...

Ash24601

•3 years ago

12 Replies

Pubic bone pressure & pain around - endometriosis?

Hi, I was just wondering if anyone else suffers from pressure and pain from behind and around their pubic bone? That’s the only way I can describe it. It’s...

Hi, I was just wondering if anyone else suffers from pressure and pain from behi...

LucyAM

•3 years ago

6 Replies

A Common Story

Hello All, I am new to this forum in an endeavour to find support in living with this condition - I have only recently been diagnosed at the age of 27. The...

Hello All, I am new to this forum in an endeavour to find support in living wi...

Hidden

•3 years ago

6 Replies

Any experience with desgestrel / cerazette / micrette progestogen only pill?

Hi all, I’ve been on this pill for nearly 7 months now for suspected endometriosis, and it hasn’t many any difference to my pelvic pain which happens at all...

Hi all, I’ve been on this pill for nearly 7 months now for suspected endometrios...

CandleCat

•3 years ago

10 Replies

Zoladex drama.. Zoladex or Visanne post laparoscopy? Shrinking lesions before ivf?

Hi all! Hoping for some sensible advice here :) Short version: Does the zoladex injection really hurt? Would zoladex destroy endometrial lesions? What is the...

Hi all! Hoping for some sensible advice here :) Short version: Does the zoladex...

Chicken1001

•3 years ago

16 Replies

Birth control pills and mini pill same time?

Who's experienced birth control pills and mini pill every day prescribed by your doctor?. My gynecologist prescribed me Contains. Ethinyl Estradiol (0.02mg)+...

Who's experienced birth control pills and mini pill every day prescribed by your...

Nikilll

•3 years ago

Be the first to reply

Numbness post laparotomy

Hi guys I am 10 weeks post laparotomy which removed an endometrioid. They made an incision across my uterus. My lower belly is still quite numb, I assume this...

Hi guys I am 10 weeks post laparotomy which removed an endometrioid. They made a...

Hnew

•3 years ago

Be the first to reply

4 weeks post lap

Hi I’m four weeks post lap, where the surgeon found and removed stage 4 rectovaginal endometriosis. There was a slight complication in that they damaged my...

Hi I’m four weeks post lap, where the surgeon found and removed stage 4 rectovag...

Bxsimms

•3 years ago

Be the first to reply

Missed endo on laparoscopy?

Has anyone had a second laparoscopy that showed endo to be worse than the first? I feel like I’m losing my mind - had a laparoscopy in Feb 2020 and a small...

Has anyone had a second laparoscopy that showed endo to be worse than the first?...

ailis95

•3 years ago

10 Replies

Help 😂😂

Hi guys So I never have had painful periods but the last year I have had really painful ones, I got rushed to hospital January time as I had appendicitis. Even...

Hi guys So I never have had painful periods but the last year I have had really ...

Bhalligan33

•3 years ago

3 Replies

Life after my hysterectomy

Hi Just wanted to share my journey after having my hysterectomy in January this year, after suffering for years with adenomyosis and endometriosis, multiple...

Hi Just wanted to share my journey after having my hysterectomy in January thi...

Lou93

•3 years ago

29 Replies

Effects of pain vs effects of meds

After a full hysterectomy three years ago, I’m struggling with nerve damage (caused by 15 years of undiagnosed endo) and excessive internal scar tissue, all...

After a full hysterectomy three years ago, I’m struggling with nerve damage (cau...

PenelopeClearwater

•3 years ago

9 Replies

spotting on cerazette

hi all, about 5 weeks ago i started taking cerazette and i have been randomly spotting since about 3 weeks ago. before that i was taking provera which i never...

hi all, about 5 weeks ago i started taking cerazette and i have been randomly sp...

avavs777

•3 years ago

1 Reply

Anyone on Visanne (dienogest) and breastfeeding?

Hi, the gyne gave me cerazette but I'm forever bleeding on it and I don't find it acceptable to be bleeding for up to 3 months before it settles. I'm taking...

Hi, the gyne gave me cerazette but I'm forever bleeding on it and I don't find i...

Endowarrior4567

•3 years ago

Be the first to reply

Waiting in pain for the laparoscopy date

I was in emergency a few times due to fainting and very severe pain. I heard from them that I should not come any more to hospital, but wait at home for the...

I was in emergency a few times due to fainting and very severe pain. I heard fro...

Nancin

•3 years ago

3 Replies

Endo and adenomyosis with bad gastro symptoms?

Hello, I've been experiencing severely painful periods - pain starting at ovulation and getting increasingly worse up to my period, together with nausea,...

Hello, I've been experiencing severely painful periods - pain starting at ovula...

Aussie79

•3 years ago

11 Replies

First laparoscopy tomorrow, scared, looking for support.

Hey everyone, I'm having laparoscopy tomorrow to remove an endometrioma cyst on my ovary, having diagnostic/treatment for adenomyosis/endometriosis and having...

Hey everyone, I'm having laparoscopy tomorrow to remove an endometrioma cyst on ...

_aja

•3 years ago

14 Replies

frustration...no support.

Is anyone else finding it really hard to contact their consultant? I rang in April to ask about an appointment and they said I was due to have an appointment...

Is anyone else finding it really hard to contact their consultant? I rang in Apr...

Hufflepuffsoph

•3 years ago

16 Replies

Laparoscopic surgery - disappointed

I had my 3rd laparoscopy on Thursday and I'm really angry and disappointed with it all! I had my last laparoscopy in 2013 and had mild Endo and ablitation of...

I had my 3rd laparoscopy on Thursday and I'm really angry and disappointed with ...

Trezz5

•3 years ago

6 Replies

Finally a diagnosis

So I was finally diagnosed with endometriosis 10 days ago after my first Lap I didn’t expect to have a diagnosis this year . I’ve been waiting years for this...

So I was finally diagnosed with endometriosis 10 days ago after my first Lap I ...

Lucyloo02

•3 years ago

6 Replies

Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

All posts for June 2021

1st Period in 18 years.

Us Women need Support with providing Sanitary on an Incontinent Level for the Excessive Bleeding!

Any one experience hematology related endometriosis problem?

Advice on private consultation

Are you thinking of going private for your treatment

Clear MRI - could I still have endo?

Can anyone help me explain this?

Case Studies needed - Women at work

Stage 4

Thoracic endo?

Private costs

Pubic bone pressure & pain around - endometriosis?

A Common Story

Any experience with desgestrel / cerazette / micrette progestogen only pill?

Zoladex drama.. Zoladex or Visanne post laparoscopy? Shrinking lesions before ivf?

Birth control pills and mini pill same time?

Numbness post laparotomy

4 weeks post lap

Missed endo on laparoscopy?

Help 😂😂

Life after my hysterectomy

Effects of pain vs effects of meds

spotting on cerazette

Anyone on Visanne (dienogest) and breastfeeding?

Waiting in pain for the laparoscopy date

Endo and adenomyosis with bad gastro symptoms?

First laparoscopy tomorrow, scared, looking for support.

frustration...no support.

Laparoscopic surgery - disappointed

Finally a diagnosis

Search posts

Pinned Posts

Latest poll

If you were eligible to take part in a medical research trial about endometriosis, how would you like to find out about it?

Topics

Archive