Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

72,493 members • 52,981 posts

All posts for April 2021

Serious Endo, some things have helped my Stage 4

Hi there, Well yes for many, some it stays the same, some it goes away. Mine started when I was 10. Diagnosis at 24. Between 24 and 36 it had become stage 4....

Hi there, Well yes for many, some it stays the same, some it goes away. Mine s...

JOSANDY40

•3 years ago

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After effects of Prostap, the menopause or codeine withdrawal? 🤦🏼‍♀️

Hi everyone, I’m struggling to work out what’s going on with my symptoms as they seem to be possible for all of the above! I had a total hysterectomy (kept my...

Hi everyone, I’m struggling to work out what’s going on with my symptoms as they...

Vickster23

•3 years ago

3 Replies

Can endometriosis get worse?

I have been experiencing new symptoms recently... an aching sharp vagina pain, pain when peeing and some butt bleeding. Is it possible for my endometriosis to...

I have been experiencing new symptoms recently... an aching sharp vagina pain, p...

Immy2000

•3 years ago

4 Replies

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Post op tips?

Hi everyone! I had my first laparoscopy 11 days ago, which finally confirmed endometriosis (it’s been 13 years of being shrugged off!) It was absolutely...

Hi everyone! I had my first laparoscopy 11 days ago, which finally confirmed end...

Maggi20

•3 years ago

6 Replies

Ttc

I’m currently undergoing tests for endometriosis and I’m so worried about how it’s going to affect my chances with getting pregnant. I have PCOS and had an...

I’m currently undergoing tests for endometriosis and I’m so worried about how it...

Ttc0719

•3 years ago

1 Reply

advice needed on my endo journey

Hi everyone, about a year ago, my GP told me she suspects I have endo, so I had a blood test and pelvic scan which both came back negative, but that was...

Hi everyone, about a year ago, my GP told me she suspects I have endo, so I had...

choccake123

•3 years ago

8 Replies

Change of pill ?

Hi all. New here! I had appendix removed 2 years ago - was stuck down to walks etc and found to be endometriosis. 2 years on I’ve recently changed from...

Hi all. New here! I had appendix removed 2 years ago - was stuck down to walks e...

Butterfly2234

•3 years ago

1 Reply

Is my gp right?

Hi everyone, I was talking to the gp and along with my other symptoms that I told her about I was told feeling sick a lot, tiredness and...

Hi everyone, I was talking to the gp and along with my other sy...

Gothchic

•3 years ago

19 Replies

Am I being fobbed off?

Hi all, I only got diagnosed with endo last year (no laparoscopy - based on family history and symptoms). My gynae has prescribed me Cerelle. I’ve been on it...

Hi all, I only got diagnosed with endo last year (no laparoscopy - based on fami...

belle555

•3 years ago

29 Replies

Endo Advice Please

I'm feeling quite lost lately and not sure what I'm really hoping for posting this but please read if you can and if you've been in a similar position then...

I'm feeling quite lost lately and not sure what I'm really hoping for posting th...

Chil616

•3 years ago

7 Replies

Stage 1 endo burnt out and still hurting! Why?

Hey I wonder if I could get a bit of perspective from those who have been through the mill with endo. When I awoke from my laparoscopy over 19 days now, my...

Hey I wonder if I could get a bit of perspective from those who have been throug...

er1980

•3 years ago

13 Replies

Endo taking away my career.....

Feeling a bit mah today, after a work meeting, which has left me abit mixed. It wasn't as positive as I would like. I'm currently off work, recovering from...

Feeling a bit mah today, after a work meeting, which has left me abit mixed. It ...

Jasmin24

•3 years ago

10 Replies

Laproscopy wait times during covid

Hi all, I just wondered how long people are currently waiting for a laproscopy?? I waited 6 months for a follow up at the hospital following an MRI scan which...

Hi all, I just wondered how long people are currently waiting for a laproscopy?...

Sazzy_K

•3 years ago

12 Replies

Appointment rescheduled

I've just had a letter through the post that says due to unforeseen circumstances my telephone appointment with Mr Phillips at James Cook Hospital has been...

I've just had a letter through the post that says due to unforeseen circumstance...

mumofspringers

•3 years ago

3 Replies

Help Needed Before Appointment! (adenomyosis)

Hi everyone, after reading posts here for months I thought I'd finally end my silence and post for the first time. I'm 23 and was diagnosed with adenomyosis...

Hi everyone, after reading posts here for months I thought I'd finally end my si...

London98

•3 years ago

11 Replies

Eastenders Endo storyline, Opinions please ❤️

Hi, So watching eastenders last night and I’m in disbelief!! Brief outline for anyone who does not watch, girl gets pregnant falls downstairs loses baby....

Hi, So watching eastenders last night and I’m in disbelief!! Brief outline fo...

Xroisinellenx

•3 years ago

5 Replies

Advice on the best contraception to help endo symptoms??

I would like recommendations or personal experiences with contraception to help improve endo symptoms.... my dr has recommended sterilisation but this isn’t...

I would like recommendations or personal experiences with contraception to help ...

Rehanat

•3 years ago

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Pain relief tips

Any pain relief tips for a period and flare? I’m losing clots and tissue and have no morphine left. I’ve tried a three hour red hot bath. A hot water bottle....

Any pain relief tips for a period and flare? I’m losing clots and tissue and hav...

Nikkilouisex

•3 years ago

3 Replies

Has anyone found it beneficial cutting out dairy products, to ease endometriosis pains?

I’ve been diagnosed since last February & I’m thinking about changing my diet habits to ease pain. Has anyone cut of dairy products and found that it has a...

I’ve been diagnosed since last February & I’m thinking about changing my diet ha...

Aliv99-

•3 years ago

7 Replies

Recurrent UTI post laparoscopy and bladder endo found

Hi there I had a laparoscopy 11th March and have since had two UTIs and on second course of antibiotics. My surgeon found bladder endo and used ablation but I...

Hi there I had a laparoscopy 11th March and have since had two UTIs and on secon...

Claire_Alexandra

•3 years ago

2 Replies

Advice need regarding the pills. Mirogyno/neotheronte

So I been given a new combine pill today the mirogyno and was told to take this every day no stop so it stops my bleeding. But I have questions their is a...

So I been given a new combine pill today the mirogyno and was told to take this ...

Meworange

•3 years ago

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Hard bloat

Hi, I didn’t know where to go or who to ask so hoping someone can provide me with some guidance. Since End of Feb I’ve had a really hard stomach bloat, it...

Hi, I didn’t know where to go or who to ask so hoping someone can provide me wit...

1Melissa

•3 years ago

1 Reply

Nothing is working anymore

Hi, just needing some advice. I was diagnosed in 2017 and have since been taking a vast range of meds. In July 2020, I was in A&E for multiple nights with pain...

Hi, just needing some advice. I was diagnosed in 2017 and have since been taking...

LuceRM

•3 years ago

7 Replies

Poor digestion and sharp stomach pains

Hi all, does anyone else experience terrible pain high up (stomach area rather than bowel) and undigested food in poop? I get this fairly frequently and am...

Hi all, does anyone else experience terrible pain high up (stomach area rather t...

Smiles-are-free

•3 years ago

1 Reply

Feeling a little failed

Hi guys. I had a telephone appointment with my Doctor on Thursday. She said she can't refer me to a specialist due to only trying 1 form of contraception (I...

Hi guys. I had a telephone appointment with my Doctor on Thursday. She said she...

Dachshundlover1

•3 years ago

4 Replies

Next step in getting answers?

Hi all, I've had problems with pelvic pain, horrendous cramping, painful sex etc for a year now, over the last 6 months I've had various tests. My ultrasounds...

Hi all, I've had problems with pelvic pain, horrendous cramping, painful sex etc...

Hol2509

•3 years ago

3 Replies

endo - feeling very low

Hey guys, Not really sure what the purpose of me writing this is, but i’m just really struggling at the moment. I’m 24 and i’m currently waiting for a...

Hey guys, Not really sure what the purpose of me writing this is, but i’m just ...

gbbbb

•3 years ago

8 Replies

Advice

Hello everyone I’m new to the page I’m just looking for a little support as I’m really struggling at the moment, I got diagnosed with endometriosis back in...

Hello everyone I’m new to the page I’m just looking for a little support as I’m ...

Jlcxo

•3 years ago

1 Reply

Endo Bloating - help?

Hi all! Any advice for reducing bloating? I’m on decaptyl / prostap injections for endo but since my last one in Feb it just doesn’t seem to be working and the...

Hi all! Any advice for reducing bloating? I’m on decaptyl / prostap injections f...

Rjb_88

•3 years ago

10 Replies

Pain with Mirena after 3 years

I had the mirena coil fitted at the same time as a hysteroscopy 3 years ago to treat pain and heavy bleeding. After an initial period of 7-8 months settling...

I had the mirena coil fitted at the same time as a hysteroscopy 3 years ago to t...

MrsJH

•3 years ago

1 Reply

Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

All posts for April 2021

Serious Endo, some things have helped my Stage 4

After effects of Prostap, the menopause or codeine withdrawal? 🤦🏼‍♀️

Can endometriosis get worse?

Post op tips?

Ttc

advice needed on my endo journey

Change of pill ?

Is my gp right?

Am I being fobbed off?

Endo Advice Please

Stage 1 endo burnt out and still hurting! Why?

Endo taking away my career.....

Laproscopy wait times during covid

Appointment rescheduled

Help Needed Before Appointment! (adenomyosis)

Eastenders Endo storyline, Opinions please ❤️

Advice on the best contraception to help endo symptoms??

Pain relief tips

Has anyone found it beneficial cutting out dairy products, to ease endometriosis pains?

Recurrent UTI post laparoscopy and bladder endo found

Advice need regarding the pills. Mirogyno/neotheronte

Hard bloat

Nothing is working anymore

Poor digestion and sharp stomach pains

Feeling a little failed

Next step in getting answers?

endo - feeling very low

Advice

Endo Bloating - help?

Pain with Mirena after 3 years

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