Stage 4 Endo and Endometriomas: I have been... - Endometriosis UK

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Stage 4 Endo and Endometriomas

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I have been diagnosed with stage 4 endo and I have 3 endometrioma cysts. The ultrasound confirmed the cysts and the MRI discovered the endo.

My consultant said he could fix me and that I could still conceive naturally. Both my ovaries are stuck together. I have some endo on the bowel, but not inside it which is a relief. Even though I am in shock and disbelief with all of this, I was relieved that it wasn't the big C.

He also mentioned I was probably born with it as a lot of evidence is pointing towards being born with this horrid condition.

His confidence and words that he can fix me has eased my anxiety a hell of a lot. I'm reaching out to ladies out there who have been diagnosed with the same or similar condition - did you conceive after surgery? Some positive stories always help.

I am 39 and we have been trying to conceive for 4 years. I was diagnosed with unexplained infertility after various tests including HSG but no scan to check ovaries.

Thanks xx

5 Replies
Abigail16 profile image

Hey, I have endo but not yet tried to conceive. I know that surgeons say that the best and most successful time to get pregnant is just after a laparoscopy to remove all the endo so hopefully you’ll be able to conceive post op once your ovaries etc are clear 🤞🏻 xx

in reply to Abigail16

Thanks for your message. Yes, my consultant did say I could try a few weeks after the op. That's the thought that keeps me positive. X

Reggiefelix17 profile image

I have stage four really bad just been diagnosed it’s horrible when they tell u isn’t it I’m

Due for big bowel op in three weeks I’ve not tried for kids yet and hoping like u after my op I can try ... xx

in reply to Reggiefelix17

Good luck with your bowel op. I guess you have to keep positive with all of this and keep the thought of trying to conceive in your mind. That's what is keeping me going X

Reggiefelix17 profile image
Reggiefelix17 in reply to

Thanks hun good luck with yours yeah we just don’t know until after

They do say afterwards your in the best time to try xx

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