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Peroxisomal acyl-CoA oxidase deficiency
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New member, question about iron and rls
Hello, hope someone can help me, I've been given ferrous sulfate tablets 200mg three times a day as I have rls symptoms and a ferritin level of 27. I was just wondering how long it takes on these tablets for ferritin levels to show any improvement and to get to the recommended level needed to improve
Hello, hope someone can help me, I've been given ferrous sulfate tablets 200mg three times a day as I have rls symptoms and a ferritin level of 27. I was just wondering how long it takes on these tablets for ferritin levels to show any improvement and to get to the recommended level needed to improve
V1974
in
Restless Legs Syndrome
5 years ago
Drop in globulin??
Hi everyone. I signed up to patient access to look at my current vit D status and stumbled across my last set of lfts which were in october. I was a heavy drinker and stopped just before my first set of lfts which were fine, I have not continued to drink alcohol on a regular basis. Before my second test
Hi everyone. I signed up to patient access to look at my current vit D status and stumbled across my last set of lfts which were in october. I was a heavy drinker and stopped just before my first set of lfts which were fine, I have not continued to drink alcohol on a regular basis. Before my second test
Hidden
in
British Liver Trust
5 years ago
Any thoughts on AFib (+clots) and blood thinners?
Hello!! Happy new year everyone! Does anyone have any thoughts on this pls...I have a Pulmonary embolism and right atrium thrombus in October and since then i’ve also have atrial fibrillation. So i’m on daily heparin (tinzaparin) injections. I’m 35, and I was told i might have to stay on the blood
Hello!! Happy new year everyone! Does anyone have any thoughts on this pls...I have a Pulmonary embolism and right atrium thrombus in October and since then i’ve also have atrial fibrillation. So i’m on daily heparin (tinzaparin) injections. I’m 35, and I was told i might have to stay on the blood
Tintinblues
in
British Heart Foundation
4 years ago
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Purchasing Vitamins and Multivitamins......Brands and trustworthy sources
Has anyone purchased Vitamins, Multivitamins or Minerals from eBay ?.......Is it a reliable and trustworthy source ? Are some brands better than others and can anyone recommend an online website certain brands or should I purchase from a shop ? - I’m specifically talking about a broad spectrum Multivitamin
Has anyone purchased Vitamins, Multivitamins or Minerals from eBay ?.......Is it a reliable and trustworthy source ? Are some brands better than others and can anyone recommend an online website certain brands or should I purchase from a shop ? - I’m specifically talking about a broad spectrum Multivitamin
Ryaan
in
Pernicious Anaemia Society
5 years ago
Chronic lower back pain, nerve pain flare up. Advice needed please!
Hello all. This is my first post even though I joined this great community over a year ago. Just got home after an 8 hour stint at A&E. My GP sent me for an emergency MRI to rule out Cauda Equine Syndrome due to yet another episode of climbing the walls with back pain and a nerve pain flare up with
Hello all. This is my first post even though I joined this great community over a year ago. Just got home after an 8 hour stint at A&E. My GP sent me for an emergency MRI to rule out Cauda Equine Syndrome due to yet another episode of climbing the walls with back pain and a nerve pain flare up with
Rosie777
in
Pain Concern
4 years ago
Low iron
My ferritine was 59ug/dl 2 weeks ago. I have been having my periods for 5 days every 28 days for years. My doc gave me iron supplement once a day. I have been taking it for 2 weeks. I took a blood test 2 days ago and the results showed my iron is low.. 47ug/dl. How is it possible if I am taking 2 weeks
My ferritine was 59ug/dl 2 weeks ago. I have been having my periods for 5 days every 28 days for years. My doc gave me iron supplement once a day. I have been taking it for 2 weeks. I took a blood test 2 days ago and the results showed my iron is low.. 47ug/dl. How is it possible if I am taking 2 weeks
Blueazul
in
Pernicious Anaemia Society
5 years ago
Too soon to be tested?
I have an endo appointment on Tuesday to review meds. I’ve just checked my diary and discovered that the next bloods will be drawn just over 4 weeks since my T3 dose was doubled and my T4 increased from 50 to 75mcg. I thought it was longer. I’ve asked questions recently about this describing feeling
I have an endo appointment on Tuesday to review meds. I’ve just checked my diary and discovered that the next bloods will be drawn just over 4 weeks since my T3 dose was doubled and my T4 increased from 50 to 75mcg. I thought it was longer. I’ve asked questions recently about this describing feeling
Mickeydooley
in
Thyroid UK
5 years ago
Where do I go from here?
Hi everyone, I‘m back looking for advice again before seeing my doctor. A quick update: weaned myself off Ropinirole after augmenting which was horrendous. I was on Co Codamol for a while and then prescribed Pregabalin which didn’t suit me at all so came off it. Went back on the Co Codamol for a while
Hi everyone, I‘m back looking for advice again before seeing my doctor. A quick update: weaned myself off Ropinirole after augmenting which was horrendous. I was on Co Codamol for a while and then prescribed Pregabalin which didn’t suit me at all so came off it. Went back on the Co Codamol for a while
Scattypatty
in
Restless Legs Syndrome
5 years ago
Looking for advice
Anyone found anything to relieve morning pain and stiffness? Co Codamol not doing much ,awaiting hip op.
Anyone found anything to relieve morning pain and stiffness? Co Codamol not doing much ,awaiting hip op.
Seagu11
in
PMRGCAuk
5 years ago
Hot Springs while B12 and Iron Deficiency?
I have these deficiencies while the reason (such PA) is still assessed. In the meantime I'm being treated with b12 injections and I wonder whether bath in hot springs (such sulfur) is healthy for my symptoms or rather dangerous? I have many symptoms including muscle weakness, tightness and pain So I
I have these deficiencies while the reason (such PA) is still assessed. In the meantime I'm being treated with b12 injections and I wonder whether bath in hot springs (such sulfur) is healthy for my symptoms or rather dangerous? I have many symptoms including muscle weakness, tightness and pain So I
Shajarin
in
Pernicious Anaemia Society
5 years ago
Is a combination of drugs the answer?
Having been on Prami for years, I tried Ropinerole which did not work for me so the Rotigotine (3mg) Neupropatch was great for a while until this summer when clearly augmentation set in again. I had a lot of sleepless nights until I discovered it worked well with 2 co-dydramol (plus one Senekot to help
Having been on Prami for years, I tried Ropinerole which did not work for me so the Rotigotine (3mg) Neupropatch was great for a while until this summer when clearly augmentation set in again. I had a lot of sleepless nights until I discovered it worked well with 2 co-dydramol (plus one Senekot to help
Felicity21
in
Restless Legs Syndrome
5 years ago
Painful left shoulder
Hello all My left shoulder at the back is causing me pain. I'm sure I've had this before but I can't remember what helped. I've tried taking nurofen and Co-Codamol but they haven't helped much so far. I've also tried to take jointease (that's a supplement), turmeric and magnesium. Thank you PS - updated
Hello all My left shoulder at the back is causing me pain. I'm sure I've had this before but I can't remember what helped. I've tried taking nurofen and Co-Codamol but they haven't helped much so far. I've also tried to take jointease (that's a supplement), turmeric and magnesium. Thank you PS - updated
FoggyMoggy
in
Fibromyalgia Action UK
5 years ago
Leg Pain / Cramps
Another night of excruciating leg pains / cramps, is anyone on medication that actually helps with pain? I have MPL/ET on Peg @ LD Aspirin, for pain relief I take co-codamol & co-drydamol. I’m getting really fed up of this pain.
Another night of excruciating leg pains / cramps, is anyone on medication that actually helps with pain? I have MPL/ET on Peg @ LD Aspirin, for pain relief I take co-codamol & co-drydamol. I’m getting really fed up of this pain.
Raphael_UK
in
MPN Voice
5 years ago
Do other dopamine boosters also cause augmentation?
I’m experiencing really bad RLS augmentation from supplementing with L-Dopa for three months, but wondering if I switch to other dopamine boosters such as Chlonine, Uridine, L-theanine, will the effect be the same? For context, this is what they specifically do: https://www.mindlabpro.com/blogs/nootropics
I’m experiencing really bad RLS augmentation from supplementing with L-Dopa for three months, but wondering if I switch to other dopamine boosters such as Chlonine, Uridine, L-theanine, will the effect be the same? For context, this is what they specifically do: https://www.mindlabpro.com/blogs/nootropics
RoDomHarr
in
Restless Legs Syndrome
5 years ago
Low Fasting Gastrin.
Hey guys, I had a blood test done recently and got some of the normal tests done. I got a CBC and HGB/HCT came back normal and I got an MMA test done and it came back at 99 (0-378 normal) so all of that checks out. This time though I did get a serum gastrin test for the first time. It came back at
Hey guys, I had a blood test done recently and got some of the normal tests done. I got a CBC and HGB/HCT came back normal and I got an MMA test done and it came back at 99 (0-378 normal) so all of that checks out. This time though I did get a serum gastrin test for the first time. It came back at
lownskater52
in
Pernicious Anaemia Society
5 years ago
Doctors not taking my concerns seriously
Hi everyone, I haven't actually been diagnosed with endometriosis but I have severe period pains. When I'm on my period it feels like a constant stabbing and I struggle to stand, I also vomit whilst I'm on due to the pain. It's not always been this bad but for the last 3 years it's unbearable. Normal
Hi everyone, I haven't actually been diagnosed with endometriosis but I have severe period pains. When I'm on my period it feels like a constant stabbing and I struggle to stand, I also vomit whilst I'm on due to the pain. It's not always been this bad but for the last 3 years it's unbearable. Normal
cj6538
in
Endometriosis UK
5 years ago
More than just tablets
First of all please know I totally sympathise with you and your suffering. In 1999 I was diagnosed with Fm,followed by OA , diabetes t2, and MRI scan showed Multi Level Spinal Stenosis. And High Blood pressure. Just recently I have suffered the worst muscle spasms ever and No Drug Eased the pain.
First of all please know I totally sympathise with you and your suffering. In 1999 I was diagnosed with Fm,followed by OA , diabetes t2, and MRI scan showed Multi Level Spinal Stenosis. And High Blood pressure. Just recently I have suffered the worst muscle spasms ever and No Drug Eased the pain.
Bunny-friend
in
Fibromyalgia Action UK
5 years ago
Iron deficient anemia and liver disease
I have been feeling breathless and unusually tired of late with episodes of clamminess and heart pounding. My latest blood panel revealed that my MCH is well below normal and I have iron deficient anemia (anaemia for the Brits.) MCH stands for "mean corpuscular hemoglobin." MCH levels refer to the average
I have been feeling breathless and unusually tired of late with episodes of clamminess and heart pounding. My latest blood panel revealed that my MCH is well below normal and I have iron deficient anemia (anaemia for the Brits.) MCH stands for "mean corpuscular hemoglobin." MCH levels refer to the average
canadaliz
in
British Liver Trust
5 years ago
I NEED ADVICE!
Hi! Does anybody know a professional I can talk to via email, text or phone regarding the following?. My doctor is refusing to give me Co-Codamol 30/500!. I moved address late August this year and Doctors etc... I was receiving repeat prescriptions for various medicines, including Co-Codamol 30/500
Hi! Does anybody know a professional I can talk to via email, text or phone regarding the following?. My doctor is refusing to give me Co-Codamol 30/500!. I moved address late August this year and Doctors etc... I was receiving repeat prescriptions for various medicines, including Co-Codamol 30/500
BW574
in
Fibromyalgia Action UK
5 years ago
Struggleing
Ok I will show latest blood results 7 months on imbrutinib fist 3/4 months were absolutely fantastic! Now 7 month in and wbc down to 31k but fatigue has returned triple fold and truly just don’t feel well ruled out a virus and a little worried hematologist states could just be my body adjusting to new
Ok I will show latest blood results 7 months on imbrutinib fist 3/4 months were absolutely fantastic! Now 7 month in and wbc down to 31k but fatigue has returned triple fold and truly just don’t feel well ruled out a virus and a little worried hematologist states could just be my body adjusting to new
haposwald
in
CLL Support
5 years ago
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