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Experiences with
Peroxisomal acyl-CoA oxidase deficiency
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Malabsorption of drugs?
I am still awaiting a diagnosis of PA, but do suspect I do have it. My stomach pH level was recently 8.1, so very low stomach acid, which is why I am not absorbing/processing B12, iron and folate. I also did a test which showed I have very low diamine oxidase in my gut so have histamine intolerance.
I am still awaiting a diagnosis of PA, but do suspect I do have it. My stomach pH level was recently 8.1, so very low stomach acid, which is why I am not absorbing/processing B12, iron and folate. I also did a test which showed I have very low diamine oxidase in my gut so have histamine intolerance.
Chickens44
in
Pernicious Anaemia Society
1 month ago
Treatment for fibro, MCAS, hypermobility syndrom (after catching covid) and long term covid sufferers
Good afternoon to all. I wanted to go straight to the findings I have done, diagnostic tests with top consultants in London. I was diagnosed with hypermobility syndrome and I had a horrible reaction to a covid infection last xmas which caused me long covid: fatigue, pain in bones, muscles and joints,
Good afternoon to all. I wanted to go straight to the findings I have done, diagnostic tests with top consultants in London. I was diagnosed with hypermobility syndrome and I had a horrible reaction to a covid infection last xmas which caused me long covid: fatigue, pain in bones, muscles and joints,
Divinesoul
in
Fibromyalgia Action UK
3 months ago
Goats milk kefir
Hi, Does anyone drink Chuckling Goat kefir? I have had some on and off over the last few weeks, but not consistently so not sure if it helps. It is a very strong kefir that is full of B12. I am not sure yet if I have pernicious anaemia, or whether it is a gut dysbiosis problem as I do not appear to be
Hi, Does anyone drink Chuckling Goat kefir? I have had some on and off over the last few weeks, but not consistently so not sure if it helps. It is a very strong kefir that is full of B12. I am not sure yet if I have pernicious anaemia, or whether it is a gut dysbiosis problem as I do not appear to be
Chickens44
in
Pernicious Anaemia Society
3 months ago
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Typical…
Started taking magnesium supplement from the supermarket and slept really well and felt more relaxed and less joint pain. Have only been taking half a tablet every night for about three nights, with the intention of building up to a full tablet slowly. Today my bladder seems to be irritated, running
Started taking magnesium supplement from the supermarket and slept really well and felt more relaxed and less joint pain. Have only been taking half a tablet every night for about three nights, with the intention of building up to a full tablet slowly. Today my bladder seems to be irritated, running
JoJoloveschocolate
in
Thyroid UK
9 days ago
Does anybody get severe cramps; legs,pectoral and feet?
I have been on Ibrance for nearly 6 years. I feel I am doing well overall but I get very painful muscle cramps. I have experimented with Magnesium Oxide, Glycinate/Hylands Leg Cramps/Curcumin/Tonic water/Calcium and Potasium. The only thing that helps is drinking magnesium citrate power in water during
I have been on Ibrance for nearly 6 years. I feel I am doing well overall but I get very painful muscle cramps. I have experimented with Magnesium Oxide, Glycinate/Hylands Leg Cramps/Curcumin/Tonic water/Calcium and Potasium. The only thing that helps is drinking magnesium citrate power in water during
1horse
in
SHARE Metastatic Breast Cancer
2 months ago
Magnesium Oxide
Looking to take Magnesium Oxide but struggling to find any tablets that aren't giant size. Does anyone know any brand that are smallish?
Looking to take Magnesium Oxide but struggling to find any tablets that aren't giant size. Does anyone know any brand that are smallish?
dinahdough
in
Thyroid UK
3 months ago
Best magnesium dosage
I have been taking Life Extension extended release magnesium (as ZumXR magnesium oxide, magnesium citrate) 500 mg (2 capsules of 250 mg each). I understand from Daphne’s Facebook group that Mg Oxide is not recommended. I intend to switch to Mg-1-threonate. Does anyone know what dosage of Mg-1-threonate
I have been taking Life Extension extended release magnesium (as ZumXR magnesium oxide, magnesium citrate) 500 mg (2 capsules of 250 mg each). I understand from Daphne’s Facebook group that Mg Oxide is not recommended. I intend to switch to Mg-1-threonate. Does anyone know what dosage of Mg-1-threonate
Meramt
in
Cure Parkinson's
5 months ago
Magnesium CAUSING muscle cramps
Forgive the capitals. I have found the sweet spot for magnesium supplementation for constipation and its about 600mg split between 2 doses of 1/4 ts oxide but its also unfortunately causing me muscle cramps and dry eyes to the point I can't wear contact lenses during supplementation. I have tried many
Forgive the capitals. I have found the sweet spot for magnesium supplementation for constipation and its about 600mg split between 2 doses of 1/4 ts oxide but its also unfortunately causing me muscle cramps and dry eyes to the point I can't wear contact lenses during supplementation. I have tried many
SteveT3
in
Thyroid UK
5 months ago
Recent blood test results advice please
I have just received some blood test results, having had an iron infusion in October 2023, I would love advice please, bearing in mind my serum ferritin is still over reference range. I have not taken iron tablets since the iron infusion. Serum folate 5.5 ug/L (ref. range 3.0-20.5) Serum ferritin
I have just received some blood test results, having had an iron infusion in October 2023, I would love advice please, bearing in mind my serum ferritin is still over reference range. I have not taken iron tablets since the iron infusion. Serum folate 5.5 ug/L (ref. range 3.0-20.5) Serum ferritin
yorkshiregirl4
in
Thyroid UK
9 hours ago
Please advise on iron panel blood test results
Please can anyone advise if I need to take iron tablets with these results. I feel so tired. Due to see the endo on Monday but I know he might say it is in range.The blood tests are as follows: I sent the TSH, T3and t4 in a previous email. Folic acid 9.6 range e >2.7 B12 695 ng/L range 160-800ng/L MCV
Please can anyone advise if I need to take iron tablets with these results. I feel so tired. Due to see the endo on Monday but I know he might say it is in range.The blood tests are as follows: I sent the TSH, T3and t4 in a previous email. Folic acid 9.6 range e >2.7 B12 695 ng/L range 160-800ng/L MCV
cbraffe
in
Thyroid UK
5 days ago
Massachusetts Opioid Register Year 4 results
I attach the latest Massachusetts Opioid Register results, showing the medications taken by participants and the doses. Dr Winkelman set up the Register to show that addiction and tolerance are unlikely to happen when low dose opioids are used for RLS. For those who have augmented on dopamine agonists
I attach the latest Massachusetts Opioid Register results, showing the medications taken by participants and the doses. Dr Winkelman set up the Register to show that addiction and tolerance are unlikely to happen when low dose opioids are used for RLS. For those who have augmented on dopamine agonists
Joolsg
in
Restless Legs Syndrome
6 days ago
teeth clenching
I’m titrating NDT Armour over the last year but I’ve got a hypo symptom that’s bothering me, nighttime teeth clenching. I have no knowledge I’m doing this. I take amitriptyline and once I get to sleep midnight to 1am, I’m out for the count. I think the dentist told me September 2023 that I was clenching
I’m titrating NDT Armour over the last year but I’ve got a hypo symptom that’s bothering me, nighttime teeth clenching. I have no knowledge I’m doing this. I take amitriptyline and once I get to sleep midnight to 1am, I’m out for the count. I think the dentist told me September 2023 that I was clenching
Insomania
in
Thyroid UK
7 days ago
Blood test results
I have recently had a full panel fasting blood test done, and these are the results. I would appreciate your thoughts before I make an appointment with my GP. Serum ferritin level 144 Serum iron 17.8 Serum transferrin 2.44 Iron saturation 32.3% Thank you
I have recently had a full panel fasting blood test done, and these are the results. I would appreciate your thoughts before I make an appointment with my GP. Serum ferritin level 144 Serum iron 17.8 Serum transferrin 2.44 Iron saturation 32.3% Thank you
Flora-Rose
in
Restless Legs Syndrome
9 days ago
Tigger is bouncing around Winnie the Pooh, because he is happy his RLS is better
I was originally trialing 5 microgram 7 day patches that got me out of that dark tunnel but wasn’t 100% effective so after the initial 3 week trial I wrote to Dr Christopher Murphy explained the situation and he arranged for me to collect 10 microgram 7 day patches from Salford Royal Infirmary. I applied
I was originally trialing 5 microgram 7 day patches that got me out of that dark tunnel but wasn’t 100% effective so after the initial 3 week trial I wrote to Dr Christopher Murphy explained the situation and he arranged for me to collect 10 microgram 7 day patches from Salford Royal Infirmary. I applied
HipHop1972
in
Restless Legs Syndrome
11 days ago
TMS/TBS, Buprenorphine tip
I have just completed TMS/TBS(theta burst stimulation) treatments(36 TMS+10 TMS/TBS) It has been a game changer for the post Dopamine agonist depression, that was quite severe and unresponsive to meds. I currently have no depression symptoms. What I have found is that the RLS symptoms are decreased
I have just completed TMS/TBS(theta burst stimulation) treatments(36 TMS+10 TMS/TBS) It has been a game changer for the post Dopamine agonist depression, that was quite severe and unresponsive to meds. I currently have no depression symptoms. What I have found is that the RLS symptoms are decreased
teakabeagle
in
Restless Legs Syndrome
11 days ago
Recent blood test – Why do I feel so tired?
Hello, Please could you have a look at my recent blood test results and tell me what could be the cause of my constant tiredness? I find it hard to get out of bed in the morning and often wake up with brain fog. I often wake up during the night to pee. I often feel the need to fall asleep in the afternoon
Hello, Please could you have a look at my recent blood test results and tell me what could be the cause of my constant tiredness? I find it hard to get out of bed in the morning and often wake up with brain fog. I often wake up during the night to pee. I often feel the need to fall asleep in the afternoon
Zazbag
in
Thyroid UK
12 days ago
Iron status, thyroid dysfunction and iron deficiency anemia: a two-sample Mendelian randomization study
Time and again, we see members with some level of iron deficiency [u]
and
[/u] thyroid issues. Here is a paper which identifies specific genetic causes. In this case, we desperate need the full paper to understand what they are really saying. [i]Ann Nutr Metab. 2024 Jun 10.[/i] [i]doi: 10.1159
Time and again, we see members with some level of iron deficiency [u]
and
[/u] thyroid issues. Here is a paper which identifies specific genetic causes. In this case, we desperate need the full paper to understand what they are really saying. [i]Ann Nutr Metab. 2024 Jun 10.[/i] [i]doi: 10.1159
helvella
Thyroid UK
in
Thyroid UK
15 days ago
Anyone had an iron infusion
My husband has CLL and has a problem with low B12 and folate. His ferritin is also stubbornly low for which he’s been recommended an iron infusion for deficiency anaemia and injections for his B12 deficiency I’m ok about the B12 injections but for some reason feel a bit nervous about the infusion but
My husband has CLL and has a problem with low B12 and folate. His ferritin is also stubbornly low for which he’s been recommended an iron infusion for deficiency anaemia and injections for his B12 deficiency I’m ok about the B12 injections but for some reason feel a bit nervous about the infusion but
Noelnoel
in
CLL Support
17 days ago
supplementary question ! Ubiquinol
sorry meant to also ask has anyone found taking Ubiquinol helps T4/T3 conversion? Thank you!
sorry meant to also ask has anyone found taking Ubiquinol helps T4/T3 conversion? Thank you!
Indigourchin
in
Thyroid UK
1 month ago
updated iron results - best next steps?
Hey everyone, I had some great advice on here a couple of weeks ago. I just had a full blood test completed (given the RLS had gotten significantly worse recently) and my iron results came back low: Iron 14.3 umol/L (Range: 10 - 30) TIBC 54.2 umol/L (Range: 45 - 81) UIBC 39.9 umol/L (Range: 12 -
Hey everyone, I had some great advice on here a couple of weeks ago. I just had a full blood test completed (given the RLS had gotten significantly worse recently) and my iron results came back low: Iron 14.3 umol/L (Range: 10 - 30) TIBC 54.2 umol/L (Range: 45 - 81) UIBC 39.9 umol/L (Range: 12 -
BOWENATOR
in
Restless Legs Syndrome
1 month ago
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