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Experiences with
Peroxisomal acyl-CoA oxidase deficiency
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Early Symptoms - My approach
Six weeks after my first swollen finger, achy hands and general pain in my feet - I am trying an elimination diet and various supplements. Am also making a massive effort on Dental health - as well as toothpaste swilling with Xylitol and using an electric water flosser. Just had a deep filling replaced
Six weeks after my first swollen finger, achy hands and general pain in my feet - I am trying an elimination diet and various supplements. Am also making a massive effort on Dental health - as well as toothpaste swilling with Xylitol and using an electric water flosser. Just had a deep filling replaced
alexask
in
NRAS
6 years ago
Any advice please
Dear fellow inhabitants of planet PMR. There is a wealth of personal experience on this forum and I would appreciate any advice for my current situation. After 6 + years travelling down the PMR road I, like many others it seems, find themselves on a 6mg dose of Pred and unbeing able to reduce further
Dear fellow inhabitants of planet PMR. There is a wealth of personal experience on this forum and I would appreciate any advice for my current situation. After 6 + years travelling down the PMR road I, like many others it seems, find themselves on a 6mg dose of Pred and unbeing able to reduce further
Ventdunord
in
PMRGCAuk
6 years ago
Anyone tried ferrous gluconate tablets(by crescent) prescription use) š
Hi there guys I thought I would give you a little postš as you regulars know I've had abit of a problem with my iron defiencey, I've been taking floravital liquid with no probs but its not strong enough to rise my levels up, gP said to try ferrous fumerate, ferrous sulphate and cannot take either of
Hi there guys I thought I would give you a little postš as you regulars know I've had abit of a problem with my iron defiencey, I've been taking floravital liquid with no probs but its not strong enough to rise my levels up, gP said to try ferrous fumerate, ferrous sulphate and cannot take either of
Rmichelle
in
Thyroid UK
6 years ago
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Iron/Ferritin levels
Hi, I was diagnosed with PA earlier on this year. I received my loading doses in May and I'm having a top up injection of B12 every 3 months. Unfortunately, my iron levels are now low. My ferritin level is 5, my iron level is 9 and my saturation level is 11%. My haemoglobin level is normal so my GP
Hi, I was diagnosed with PA earlier on this year. I received my loading doses in May and I'm having a top up injection of B12 every 3 months. Unfortunately, my iron levels are now low. My ferritin level is 5, my iron level is 9 and my saturation level is 11%. My haemoglobin level is normal so my GP
stacie146
in
Pernicious Anaemia Society
6 years ago
Suspected Endo
Hey, Iām new here and wanted to get some advice. Ever since I was 18 years old I had really painful periods and cramps during the month. I went to the doctors and was told that these pains are part of ovulation and I should take the pill. For a about a year and a half - 2 years I was on and off with
Hey, Iām new here and wanted to get some advice. Ever since I was 18 years old I had really painful periods and cramps during the month. I went to the doctors and was told that these pains are part of ovulation and I should take the pill. For a about a year and a half - 2 years I was on and off with
Yas45
in
Endometriosis UK
6 years ago
Blood test results
Had my levels checked again. Still feeling awful. My serum ferritin is 31 ug/L the range is 23-300. My gp has advised to take one iron tablet a day. Not sure why there is a exclamation mark next to the red blood cell count.
Had my levels checked again. Still feeling awful. My serum ferritin is 31 ug/L the range is 23-300. My gp has advised to take one iron tablet a day. Not sure why there is a exclamation mark next to the red blood cell count.
Searching4help
in
Thyroid UK
6 years ago
Statin
The doctor wants My LDL cholesterol to be lower and has put me on a statin drug. He will test my liver enzymes after 30 days. Have any of you with PBC experienced elevated liver enzymes from statins?
The doctor wants My LDL cholesterol to be lower and has put me on a statin drug. He will test my liver enzymes after 30 days. Have any of you with PBC experienced elevated liver enzymes from statins?
Sissymcc
in
British Liver Trust
6 years ago
Leg pain
For the last 2.5 years I have had pain which radiates down both my legs and feet. Have had MRI scan of the head, lumbar puncture and seen a neurologist, they all came back clear. Have completed 2 rounds of physiotherapy for the pain, also seeing a Osteopath just now and receiving acupuncture which
For the last 2.5 years I have had pain which radiates down both my legs and feet. Have had MRI scan of the head, lumbar puncture and seen a neurologist, they all came back clear. Have completed 2 rounds of physiotherapy for the pain, also seeing a Osteopath just now and receiving acupuncture which
yogibearclaire
in
Pain Concern
6 years ago
Pericarditis - well I'd not heard of this 3 weeks ago ...
Hi guys, my first post to this site. I guess I'm looking for advice/reassurance really as I don't know anyone with this condition. I was diagnosed with acute pericarditis 3 weeks ago, after 5 GP visits, 2 A&E visits with one hospital admission. Currently taking Colchicine, Ibuprofen and Co-Codamol
Hi guys, my first post to this site. I guess I'm looking for advice/reassurance really as I don't know anyone with this condition. I was diagnosed with acute pericarditis 3 weeks ago, after 5 GP visits, 2 A&E visits with one hospital admission. Currently taking Colchicine, Ibuprofen and Co-Codamol
Mezle
in
British Heart Foundation
6 years ago
Iron panel - serum iron. How to get this checked when GP won't!
I am reliably informed (by SeasideSusie - thanks Susieš) that it would be wise to get my serum iron tested before supplementing further with ferrous fumurate. My doctor has already told me I am not anaemic and, after seeing my numbers, Susie agrees, although my ferritin is low in range. Another GP at
I am reliably informed (by SeasideSusie - thanks Susieš) that it would be wise to get my serum iron tested before supplementing further with ferrous fumurate. My doctor has already told me I am not anaemic and, after seeing my numbers, Susie agrees, although my ferritin is low in range. Another GP at
Caroline888
in
Thyroid UK
6 years ago
Low vitamin B12,low ferritin, antibodies anti parietal cell weak positive.
Hello everybody; I have been diagnosted with low b12 (185) in 2009, since I had no macrocytose, my GP refused any further investigastions. Recently I decided to continue the battle alone; I have : slight anemia (11-12 Hg) ;normal MCV Low iron and ferritine ;normal B9. antibodies anti parietal cell weak
Hello everybody; I have been diagnosted with low b12 (185) in 2009, since I had no macrocytose, my GP refused any further investigastions. Recently I decided to continue the battle alone; I have : slight anemia (11-12 Hg) ;normal MCV Low iron and ferritine ;normal B9. antibodies anti parietal cell weak
samiral
in
Pernicious Anaemia Society
6 years ago
Experience of S. Maltophilia
Hi all, As per the title, just wondering if anyone here has cultured this particular mouthful. Littleun took one look at the full name and promptly renamed it malteasers for ease š In light of the ongoing uncertainty about S. Maltophilia being causative or correlative, Iām particularly interested in
Hi all, As per the title, just wondering if anyone here has cultured this particular mouthful. Littleun took one look at the full name and promptly renamed it malteasers for ease š In light of the ongoing uncertainty about S. Maltophilia being causative or correlative, Iām particularly interested in
Hidden
in
Lung Conditions Community Forum
6 years ago
Blood pressure drop
Hi all After about five months of injecting every other day, my B12 level tested at 4694 (180-914). My doctor has decreased my B12 to twice a month. I have decreased to every four days on one occasion. I had an iron level of 44 (50-170) and Iron Saturation of 13% (20-55 %), Ferritin 16 (8-252). I had
Hi all After about five months of injecting every other day, my B12 level tested at 4694 (180-914). My doctor has decreased my B12 to twice a month. I have decreased to every four days on one occasion. I had an iron level of 44 (50-170) and Iron Saturation of 13% (20-55 %), Ferritin 16 (8-252). I had
Sita505USA
in
Pernicious Anaemia Society
6 years ago
Hypothyroid - How to best supplement with iron
I am a hypothyroid 35 year old male, 72 kg 6 ft living in New Zealand and I currently take T3 only medication (looking to switch back to NDT though). My Iron panel shows sub-optimal values. As it is my last mineral to get right in order for thyroid medication to work, I would like to get advice on good
I am a hypothyroid 35 year old male, 72 kg 6 ft living in New Zealand and I currently take T3 only medication (looking to switch back to NDT though). My Iron panel shows sub-optimal values. As it is my last mineral to get right in order for thyroid medication to work, I would like to get advice on good
ak_83
in
Thyroid UK
6 years ago
Anyone know of a ferrous gluconate liquid which is a prescription strength?šŖšŖ
Hi there all, its me again, I've had a problem with my iron for around 9 months now (you regulars know the story) I am waiting for my referral appt to GI as I'm celiac too and my iron levels are not budging, it could be that I had been taking floravital liquid which is only a very small dose of iron-
Hi there all, its me again, I've had a problem with my iron for around 9 months now (you regulars know the story) I am waiting for my referral appt to GI as I'm celiac too and my iron levels are not budging, it could be that I had been taking floravital liquid which is only a very small dose of iron-
Rmichelle
in
Thyroid UK
6 years ago
Iron Panel Question
I had my iron checked 3 months ago. At the time I took small dose Thorneās iron supplements for a couple weeks but discontinued because of constipation. Not sure if it helped or not but Iām curious about the lab results I had. Iām a 28 year old male. Ferritin 91 (24-444) Serum Iron 13.2 (10.6-33.8
I had my iron checked 3 months ago. At the time I took small dose Thorneās iron supplements for a couple weeks but discontinued because of constipation. Not sure if it helped or not but Iām curious about the lab results I had. Iām a 28 year old male. Ferritin 91 (24-444) Serum Iron 13.2 (10.6-33.8
Andyb1205
in
Thyroid UK
6 years ago
Medicare won't pay for serum ferritin or iron saturation tests.
Since I have had a diagnosis of RSL, I have had several serum ferritin/iron saturation tests done by various physicians. The last time I went to local hospital for lab tests, Medicare refused payment for these tests and I paid out of pocket. I went again today (different doctor) for same tests and
Since I have had a diagnosis of RSL, I have had several serum ferritin/iron saturation tests done by various physicians. The last time I went to local hospital for lab tests, Medicare refused payment for these tests and I paid out of pocket. I went again today (different doctor) for same tests and
whiteleye
in
Restless Legs Syndrome
6 years ago
Allergy medicine giving me rash!
I have used allergy medication for number of years, the last two weeks it is giving me rash. It all started with side effect of pain medication like paracetamol and co codamol with paracetamol, which can give rash. This all new to me.
I have used allergy medication for number of years, the last two weeks it is giving me rash. It all started with side effect of pain medication like paracetamol and co codamol with paracetamol, which can give rash. This all new to me.
sandybrown
in
EFA
6 years ago
Why did my IGHV test not run
Hello, disappointed today, my IGHV test did not run, having little sleep last night thinking about the results. So now they will do the test again. However I am anemic, now given iron tablets from my hospital. My white blood cells have almost doubled in 8 weeks. Go back for the full results just before
Hello, disappointed today, my IGHV test did not run, having little sleep last night thinking about the results. So now they will do the test again. However I am anemic, now given iron tablets from my hospital. My white blood cells have almost doubled in 8 weeks. Go back for the full results just before
Annieareyouok
in
CLL Support
6 years ago
Finally getting answers thanks to you
I am about to cry!! I posted on here two Months ago about still being tired after 7 years. A few of you told me to ask for a folate test. This led to my Doctor to finding out that I am still anemic even though the āusualā tests they run say I am not!! Mchc, hematocric, hemoglobin, protein and calcium
I am about to cry!! I posted on here two Months ago about still being tired after 7 years. A few of you told me to ask for a folate test. This led to my Doctor to finding out that I am still anemic even though the āusualā tests they run say I am not!! Mchc, hematocric, hemoglobin, protein and calcium
ButlerNM
in
Pernicious Anaemia Society
6 years ago
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