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Experiences with
Peroxisomal acyl-CoA oxidase deficiency
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NASH progressed
Hi I've had fatty liver disease for many years nowIt progressed to NASH eventually Now on my latest fibroscan it shows 80 percent of fat in my liver (highest ever) And more scarring bringing me out of F4 fibrosis into suspected Cirrhosis All I can do is wait. I'm in the UK and drs don't prescribe the
Hi I've had fatty liver disease for many years nowIt progressed to NASH eventually Now on my latest fibroscan it shows 80 percent of fat in my liver (highest ever) And more scarring bringing me out of F4 fibrosis into suspected Cirrhosis All I can do is wait. I'm in the UK and drs don't prescribe the
LaurieRose
in
Living with Fatty Liver and NASH
3 months ago
A cause for concern or?
For the past couple of months i started getting notifications via my Samsung 6 watch that my HR was anything from 44 to 52,for more than 10 minutes, numerous times a day or night . I am taking various medications, Bu trans patch, HRT co-codamol 30/500 Pregabalin tramadol & citalopram 40mg. They are
For the past couple of months i started getting notifications via my Samsung 6 watch that my HR was anything from 44 to 52,for more than 10 minutes, numerous times a day or night . I am taking various medications, Bu trans patch, HRT co-codamol 30/500 Pregabalin tramadol & citalopram 40mg. They are
caz1967
in
British Heart Foundation
3 months ago
Update on House Move and Doctors Move
We've been in the new house (probably should say new to us as it's around 130 years old) it all went as well as could be expected but it did mean we had to change doctors which was a bit of a worry as our previous ones were brilliant. Had a telephone consultation with new docs this morning. Very impressed
We've been in the new house (probably should say new to us as it's around 130 years old) it all went as well as could be expected but it did mean we had to change doctors which was a bit of a worry as our previous ones were brilliant. Had a telephone consultation with new docs this morning. Very impressed
Bcol
in
PMRGCAuk
3 months ago
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Very low ferritin with top of range haemoglobin can you then safely supplement iron to get ferritin up?
hi last iron haemoglobin was 15.7 top range of 15 and ferritin was 22 (as usual although that’s quite good for me! Range 15- 200(?)). I was beginning to get that rubbish short of breath way I do when ferritin goes very low (been at 3 few years ago). TSH was jumping about a bit and I don’t have other
hi last iron haemoglobin was 15.7 top range of 15 and ferritin was 22 (as usual although that’s quite good for me! Range 15- 200(?)). I was beginning to get that rubbish short of breath way I do when ferritin goes very low (been at 3 few years ago). TSH was jumping about a bit and I don’t have other
Holiday12345
in
Thyroid UK
11 months ago
Gabapentin and pain meds which one to go for?
I'm taking gabapentin 900 all day for periodic limb movement disorder however I have a very painful arthritic shoulder and torn rotator cuff. The Dr has tried me on codeine but it made me very ill. Does anyone know what pain medication can be taken with gabapentin (I've tried paracetamol, co-codamol,
I'm taking gabapentin 900 all day for periodic limb movement disorder however I have a very painful arthritic shoulder and torn rotator cuff. The Dr has tried me on codeine but it made me very ill. Does anyone know what pain medication can be taken with gabapentin (I've tried paracetamol, co-codamol,
Speedbuggy
in
Restless Legs Syndrome
3 months ago
IBS-D non medicated on medicine
I’m experiencing a strange occurrence when I’m medicated also when I’m not medicated. If I take co-codamol my symptoms stops. If I don’t codeine I’ll get severe diarrhea with insomnia and with chronic rectal burning. Unfortunately, my healthcare provider have decide to take me off this medication
I’m experiencing a strange occurrence when I’m medicated also when I’m not medicated. If I take co-codamol my symptoms stops. If I don’t codeine I’ll get severe diarrhea with insomnia and with chronic rectal burning. Unfortunately, my healthcare provider have decide to take me off this medication
Eatpower
in
IBS Network
3 months ago
US names first 10 drugs for Medicare price negotiation
US names first 10 drugs for Medicare price negotiation-By Patrick Wingrove and Michael Erman August 29, 202310:46 AM EDT https://www.reuters.com/business/healthcare-pharmaceuticals/us-name-first-10-drugs-medicare-price-negotiation-2023-08-29/ Aug 29(Reuters) - The Biden administration on Tuesday
US names first 10 drugs for Medicare price negotiation-By Patrick Wingrove and Michael Erman August 29, 202310:46 AM EDT https://www.reuters.com/business/healthcare-pharmaceuticals/us-name-first-10-drugs-medicare-price-negotiation-2023-08-29/ Aug 29(Reuters) - The Biden administration on Tuesday
lankisterguy
Volunteer
in
CLL Support
11 months ago
Length of diagnosis and symptoms.
Hi Everyone,I'm Sue and was diagnosed with seronegative RA approx 15 years ago. I've chugged along on methotrexate and trying to keep active to help with stiffness and pain. Recently Iv found my symptoms increasing at night and even shorter walks are causing joint pain rather than easing it. I can't
Hi Everyone,I'm Sue and was diagnosed with seronegative RA approx 15 years ago. I've chugged along on methotrexate and trying to keep active to help with stiffness and pain. Recently Iv found my symptoms increasing at night and even shorter walks are causing joint pain rather than easing it. I can't
Northernlassie
in
NRAS
4 months ago
Am I right to suspect endometriosis and ask to see a private specialist?
I’m worrying I was wrong, asking to see an endometriosis specialist. What if I’m being dramatic or I’m just really sensitive to completely normal period pain. I have to take naproxen on the first day of my period cause when I used to not take it, my pain would get severe and I kept vomiting or feeling
I’m worrying I was wrong, asking to see an endometriosis specialist. What if I’m being dramatic or I’m just really sensitive to completely normal period pain. I have to take naproxen on the first day of my period cause when I used to not take it, my pain would get severe and I kept vomiting or feeling
pinkie25
in
Endometriosis UK
4 months ago
Angioplasty stents
Just wanted so say hello to everyone🥰 and to share my story and post procedure symptoms. I am a 52 year old male from Devon. I have just had two stents fitted on the 15th of march. Stents were fitted to two 99% blockages in the LAD. My Symptoms before the pci was shortness on breath and mild angina
Just wanted so say hello to everyone🥰 and to share my story and post procedure symptoms. I am a 52 year old male from Devon. I have just had two stents fitted on the 15th of march. Stents were fitted to two 99% blockages in the LAD. My Symptoms before the pci was shortness on breath and mild angina
Mark-G
in
British Heart Foundation
4 months ago
Ferrous Fumerate and pre-existing Reflux
Any tips on how to take ferrous ferritin when you are already prone to reflux (for which I take a PPI)? My guts have just about put up with FF since December, and it has greatly improved my RLS, but increasingly given I take it at night it’s caused bad reflux and I had a massive flare recently during
Any tips on how to take ferrous ferritin when you are already prone to reflux (for which I take a PPI)? My guts have just about put up with FF since December, and it has greatly improved my RLS, but increasingly given I take it at night it’s caused bad reflux and I had a massive flare recently during
Hellio
in
Restless Legs Syndrome
11 months ago
Nausea & Buprenorphine
As some of you will have seen from my earlier posts I had succeeded in blocking RLS (after DA augmentation 7 months ago) by use of buprenorphine patches and tablets but have had to take action against some very severe nausea which appears with both tablets & patches.I also experienced a similar nausea
As some of you will have seen from my earlier posts I had succeeded in blocking RLS (after DA augmentation 7 months ago) by use of buprenorphine patches and tablets but have had to take action against some very severe nausea which appears with both tablets & patches.I also experienced a similar nausea
davchar23
in
Restless Legs Syndrome
4 months ago
Advice: temperature
Hi everyone Haven't posted for a while due to my health status. Seeking advice as I've got a horrible temperature (hot and then chills), overall weakness, nausea and fatigue. I've been taking the lowest dose of co-codamol for the past couple of days. It started a week or so ago, getting progressively
Hi everyone Haven't posted for a while due to my health status. Seeking advice as I've got a horrible temperature (hot and then chills), overall weakness, nausea and fatigue. I've been taking the lowest dose of co-codamol for the past couple of days. It started a week or so ago, getting progressively
Amakura
in
LUPUS UK
4 months ago
Suffering from terrible Pudendal Nueralgia and looking for advice on Gabapentim and Pregabilin?
Hi everyone. I've had Pudendal Nueralgia for 3 years now, tried everything under the sun. Had nerve ablation and blocks last November that made it worse. Peripheral Nerve Disease too so generally in a ton of pain. Take co-codamol daily and have been putting of taking Gabapentin or Pre Gabalin due to
Hi everyone. I've had Pudendal Nueralgia for 3 years now, tried everything under the sun. Had nerve ablation and blocks last November that made it worse. Peripheral Nerve Disease too so generally in a ton of pain. Take co-codamol daily and have been putting of taking Gabapentin or Pre Gabalin due to
Jobie18
in
Pelvic Pain Support Network
4 months ago
Back pain and spasms
I was diagnosed with PMR in 2020. I have been on prednisolone since then trying to type it off but only actually managed to get off of the drug for about three weeks before having to restart. I’ve only really had pain in my lower body and legs, only occasionally in my arms. Recently I have had acute
I was diagnosed with PMR in 2020. I have been on prednisolone since then trying to type it off but only actually managed to get off of the drug for about three weeks before having to restart. I’ve only really had pain in my lower body and legs, only occasionally in my arms. Recently I have had acute
Ladybay0
in
PMRGCAuk
4 months ago
Adenomyosis diagnosis journey
Hi Everyone, This is a long one but I hope it helps someone out there who may be on the same journey! From my first period when I was 11 I had long heavy painful periods, It would wipe me out, I was told that it was normal and that periods were painful and that as a young lady I needed to get on with
Hi Everyone, This is a long one but I hope it helps someone out there who may be on the same journey! From my first period when I was 11 I had long heavy painful periods, It would wipe me out, I was told that it was normal and that periods were painful and that as a young lady I needed to get on with
HolsBamboozledwomb
in
Endometriosis UK
4 months ago
Influences of sleep and the circadian rhythm on iron-status indices
I suspect few, if any, of us have ever really thought about iron tests varying by time of day. However much we understand with regard to thyroid, somehow I think most of us imagine iron as being more "bucket chemistry". But this paper might force us to re-assess! [i]
Influences of sleep and the circadian
I suspect few, if any, of us have ever really thought about iron tests varying by time of day. However much we understand with regard to thyroid, somehow I think most of us imagine iron as being more "bucket chemistry". But this paper might force us to re-assess! [i]
Influences of sleep and the circadian
helvella
Thyroid UK
in
Thyroid UK
11 months ago
I am now able to tolerate antibiotics again after my nerves healed
Hello! I just want to give this update about my situation. I hope people on here find this because my situation was a nightmare and I think this can help people who are confused and not sure what to do or if they'll ever be able to tolerate antibiotics again (TL;DR: you will be able to if you can heal
Hello! I just want to give this update about my situation. I hope people on here find this because my situation was a nightmare and I think this can help people who are confused and not sure what to do or if they'll ever be able to tolerate antibiotics again (TL;DR: you will be able to if you can heal
Whoa182
in
Pernicious Anaemia Society
6 months ago
Pregabalin doseage
Hi, so i have now been on 150mg/day and i'm still experiencing very acute pain in my legs (quads mostly and calves) I have to get up and take ibruprofen plus co-codamol. As I am a PT and train a lot, it can be hard to separate what might be RLS vs training soreness. I first went on Ropinirole after
Hi, so i have now been on 150mg/day and i'm still experiencing very acute pain in my legs (quads mostly and calves) I have to get up and take ibruprofen plus co-codamol. As I am a PT and train a lot, it can be hard to separate what might be RLS vs training soreness. I first went on Ropinirole after
bluffpt
in
Restless Legs Syndrome
4 months ago
please share your thoughts
I am - 54 year old post-menopausal woman who has have been suffering from RLS for approximately 18 months and it is becoming more severe. I weaned myself off of Lexapro, exercise daily, have almost eliminated caffeine and sugar, take magnesium and soak my feet in a magnesium salt bath at bedtime. Most
I am - 54 year old post-menopausal woman who has have been suffering from RLS for approximately 18 months and it is becoming more severe. I weaned myself off of Lexapro, exercise daily, have almost eliminated caffeine and sugar, take magnesium and soak my feet in a magnesium salt bath at bedtime. Most
Lluvinlife
in
Restless Legs Syndrome
11 months ago
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