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Experiences with
Peroxisomal acyl-CoA oxidase deficiency
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First Post from a newbie
Hi all I was diagnosed with PMR a few weeks ago now after a trip to the walk in centre when, what they thought was an OA flare let me in severe pain and pretty much unable to walk or move. Hospital, actually , didn't get the diagnosis but my doctors did the following week. I was started on Prednisone
Hi all I was diagnosed with PMR a few weeks ago now after a trip to the walk in centre when, what they thought was an OA flare let me in severe pain and pretty much unable to walk or move. Hospital, actually , didn't get the diagnosis but my doctors did the following week. I was started on Prednisone
Bcol
in
PMRGCAuk
4 years ago
vit D and C
so year seven heading to year eight. Again year eight is or can be the turn point for cll. For myself getting these sepsis attacks have been a real pain in the ass ive enough to contend with generally. The sepsis at this point has been managed by taking co-trimoxazole 160mg/800mg daily with ciprofloxacin
so year seven heading to year eight. Again year eight is or can be the turn point for cll. For myself getting these sepsis attacks have been a real pain in the ass ive enough to contend with generally. The sepsis at this point has been managed by taking co-trimoxazole 160mg/800mg daily with ciprofloxacin
Tonnross
in
CLL Support
4 years ago
Help please
Hi iv suffered with lumber spinal stenosis for 15yrs and now been told iv bilateral avascular necrosis of the hip with secondary arthritis My doctor decided to put me on tramadol, what I need help with.. can anyone tell me if I can still take Gabapentin naproxen Co-codamol and sertaline (anti depressants
Hi iv suffered with lumber spinal stenosis for 15yrs and now been told iv bilateral avascular necrosis of the hip with secondary arthritis My doctor decided to put me on tramadol, what I need help with.. can anyone tell me if I can still take Gabapentin naproxen Co-codamol and sertaline (anti depressants
JEWEW
in
Pain Concern
4 years ago
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high iron and low ferritin,thyroid meds
hi everyone im concerned about my labs done in April I did one blood donation already to try and lower my blood heres the labs Iron total 189(40-190) Iron binding 369(250-450) Sat%49(16-35) Ferritin 22(28-70) How can this be fixed?im doing blood donations and keeping track of labs I got new labs
hi everyone im concerned about my labs done in April I did one blood donation already to try and lower my blood heres the labs Iron total 189(40-190) Iron binding 369(250-450) Sat%49(16-35) Ferritin 22(28-70) How can this be fixed?im doing blood donations and keeping track of labs I got new labs
Netty510
in
Thyroid UK
4 years ago
PMR
I was diagnosed with PMR 3 years ago by GP. Blood test did not show PMR.I was Prescribed 15mg of Prednisilone and the pains in my shoulders and thighs disappeared. After 2 years my Blood pressure rose to 200/96 and was told to cut down the steroids gradually to zero. The pains returned. Rhematologist
I was diagnosed with PMR 3 years ago by GP. Blood test did not show PMR.I was Prescribed 15mg of Prednisilone and the pains in my shoulders and thighs disappeared. After 2 years my Blood pressure rose to 200/96 and was told to cut down the steroids gradually to zero. The pains returned. Rhematologist
sailboatstewart
in
PMRGCAuk
4 years ago
Update need my knowledgeable friends advice again 🙄
Hello well I've not posted for a while as I've been having blood tests and ferritin level tests for my RLS. Well on my first blood test gp forgot to test for the ferritin level. But gave me ferrous sulphate tablets 200mg 1 a day which gave me severe constipation (is this the same as iron?) and I put
Hello well I've not posted for a while as I've been having blood tests and ferritin level tests for my RLS. Well on my first blood test gp forgot to test for the ferritin level. But gave me ferrous sulphate tablets 200mg 1 a day which gave me severe constipation (is this the same as iron?) and I put
Netball-50
in
Restless Legs Syndrome
4 years ago
Am I taking too much vitamins?
I have no Idea what the weird numbers mean after it apart from ug. I included these incase it makes sense to someone else. I'm low in Vitamin D and iron , I always have been since a kid. I've only just noticed what each of the packet says , more concerned with taking both the multivitamin and the
I have no Idea what the weird numbers mean after it apart from ug. I included these incase it makes sense to someone else. I'm low in Vitamin D and iron , I always have been since a kid. I've only just noticed what each of the packet says , more concerned with taking both the multivitamin and the
Hidden
in
Fibromyalgia Action UK
4 years ago
Co codamol and Afib
You’ve guessed it....can I take Co-codamol with Afib? I’m on Bisoprolol.
You’ve guessed it....can I take Co-codamol with Afib? I’m on Bisoprolol.
Julia7
in
AF Association
4 years ago
Lowered immune system
Hi, I was just wondering if having crohns disease and pernicious anaemia (well i had been told I had PA and had injections for 17 yrs.... until the recent palava) would lower my immune system. I'm just asking as we are about to go back to work and had emails asking if we had any medical conditions that
Hi, I was just wondering if having crohns disease and pernicious anaemia (well i had been told I had PA and had injections for 17 yrs.... until the recent palava) would lower my immune system. I'm just asking as we are about to go back to work and had emails asking if we had any medical conditions that
lfc4eva
in
Pernicious Anaemia Society
4 years ago
Introduction - Brain Abscess
Hi, Just joined the community after my wife found it useful while I was going through treatment for a brain abscess. I have had a nose about and thought I would share a fairly succinct (spoiler, it was meant to be but hasn’t transpired that way) version of my story; in case it offers any assistance to
Hi, Just joined the community after my wife found it useful while I was going through treatment for a brain abscess. I have had a nose about and thought I would share a fairly succinct (spoiler, it was meant to be but hasn’t transpired that way) version of my story; in case it offers any assistance to
m4tthall
in
Headway
4 years ago
Liquid Thyroxine
After four years if fighting a battle with my Endo regarding side effects of Levothyroxine tablets. Dizziness. Faintness.achick muscles.foggy thinking tiredness!!lots more..he sent me for electocardiograph. And CAT brain scan and tested every drop if blood and vitimin known to man..it all came back normal
After four years if fighting a battle with my Endo regarding side effects of Levothyroxine tablets. Dizziness. Faintness.achick muscles.foggy thinking tiredness!!lots more..he sent me for electocardiograph. And CAT brain scan and tested every drop if blood and vitimin known to man..it all came back normal
Hurtlocker
in
Thyroid UK
4 years ago
Multidosing and Iron supplements
I find it pretty difficult to fit in iron supplements...ie Spatone....as I multi dose with my t3 only regime .... Does anyone have any bright ideas ....or do you think Taking iron later in day matters,.
I find it pretty difficult to fit in iron supplements...ie Spatone....as I multi dose with my t3 only regime .... Does anyone have any bright ideas ....or do you think Taking iron later in day matters,.
Jollypolly
in
Thyroid UK
4 years ago
B12 deficiency and Potassium deficiency
Hi All Do any of you have a b12 deficiency and a potassium deficiency? I'm asking as some of the symptoms are similar to that of the b12 and I'm wondering if I should have my potassium checked out also. Recently been having a lot of pain in the heart area. Thanks
Hi All Do any of you have a b12 deficiency and a potassium deficiency? I'm asking as some of the symptoms are similar to that of the b12 and I'm wondering if I should have my potassium checked out also. Recently been having a lot of pain in the heart area. Thanks
Sunshine1932
in
Pernicious Anaemia Society
4 years ago
Starting Acalabrutinib
Due to start Acalabrutinib on Friday. Has anyone any advice as to whether to take it with food or away from food? Also, there are other drugs that I'm supposed to take too - Aciclovir, Allopurinol, Co-TrimOxazole. What puzzles me is, if there are any side-effects, how to the docs know which drug is
Due to start Acalabrutinib on Friday. Has anyone any advice as to whether to take it with food or away from food? Also, there are other drugs that I'm supposed to take too - Aciclovir, Allopurinol, Co-TrimOxazole. What puzzles me is, if there are any side-effects, how to the docs know which drug is
bmredsea
in
Positive Wellbeing During Self-Isolation
4 years ago
Very mild exercises causing exacerbations?
Short Version: Has anyone got exacerbations (from bronchiectasis) after even very mild exercising? (meaning that during the exercise I had no or little breathlessness) (e.g. running for a few minutes or swimming for less than 200 meters) I observe that I had these and wonder if this is common. I feel
Short Version: Has anyone got exacerbations (from bronchiectasis) after even very mild exercising? (meaning that during the exercise I had no or little breathlessness) (e.g. running for a few minutes or swimming for less than 200 meters) I observe that I had these and wonder if this is common. I feel
HMBS
in
Bronchiectasis Support
4 years ago
What’s the reason for my pains?
New pains doc doesn’t think the PA causes and just says it must fibromyalgia I just don’t know Pain in hands in morning hurt to clench them, pain under soles of feet when get up struggle to walk, painful knees, pain on right in lower back/hip area any ideas please just tried two co codamol today Tracey
New pains doc doesn’t think the PA causes and just says it must fibromyalgia I just don’t know Pain in hands in morning hurt to clench them, pain under soles of feet when get up struggle to walk, painful knees, pain on right in lower back/hip area any ideas please just tried two co codamol today Tracey
Trace-67
in
Pernicious Anaemia Society
4 years ago
WEATHER IS CAUSING HAVOC TO BODY
Flippin weather. When the humidity started last week I could give Popeye a run for his money . Swelling more manageable but... yesterday with all the storms I became stiffer and this morning every joint and ligament is stiff and painful had to take co-codamol just to get out of bed. I can’t take any
Flippin weather. When the humidity started last week I could give Popeye a run for his money . Swelling more manageable but... yesterday with all the storms I became stiffer and this morning every joint and ligament is stiff and painful had to take co-codamol just to get out of bed. I can’t take any
Hidden
in
NRAS
4 years ago
GP Ignoring Me
I'm female mid 50s. I found out I had wildly fluctuating BP over 24 hours, a brain aneurysm, autoimmune thyroid disease, low Vit D (less than 20, UK measurements), raised parathyroid levels - all last year. I lost my 1st baby at week 17 due to placental abruption, 'severe' pre-eclampsia 2nd pregnancy
I'm female mid 50s. I found out I had wildly fluctuating BP over 24 hours, a brain aneurysm, autoimmune thyroid disease, low Vit D (less than 20, UK measurements), raised parathyroid levels - all last year. I lost my 1st baby at week 17 due to placental abruption, 'severe' pre-eclampsia 2nd pregnancy
RabbitMum_1965
in
Hughes Syndrome APS Forum
4 years ago
Can't honestly cope with the brokenness of me, completely and utterly at the end of my rope
Hi everyone, I have just joined this community. I have had M.E for 10 years now, and along with that comes the depression of having this debilitating illness steal my life, but these last three weeks have been just unbearable. I am so used to living with pain, and have also been suffering with PTSD
Hi everyone, I have just joined this community. I have had M.E for 10 years now, and along with that comes the depression of having this debilitating illness steal my life, but these last three weeks have been just unbearable. I am so used to living with pain, and have also been suffering with PTSD
Brandy4
in
Foggy's "Invisible Illness" Support
4 years ago
Pain a 1 year after surgery?
So I had my laparoscopic surgery to clear cysts for my stage 2/3 endometriosis. I had the mirena coil put in but I am still having to take co-codamol for prolonged and tiring pain in my pelvis and hips which makes the tops up r my legs ache. Anyone know if it’s worth going back to the gyne or if it’s
So I had my laparoscopic surgery to clear cysts for my stage 2/3 endometriosis. I had the mirena coil put in but I am still having to take co-codamol for prolonged and tiring pain in my pelvis and hips which makes the tops up r my legs ache. Anyone know if it’s worth going back to the gyne or if it’s
Runner365
in
Endometriosis UK
4 years ago
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