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Experiences with
Peroxisomal acyl-CoA oxidase deficiency
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Adjusting to new thyroxine dosage
Please could someone help as have recently had my dosage of thyroxine increased after blood tests indicated that it needed to be done. I also managed to have my brand changed back to Goldshield recently. Have been feeling like hell for some time so eventually my GP agreed to have bloods done, thus
Please could someone help as have recently had my dosage of thyroxine increased after blood tests indicated that it needed to be done. I also managed to have my brand changed back to Goldshield recently. Have been feeling like hell for some time so eventually my GP agreed to have bloods done, thus
JennyWrenn4
in
Thyroid UK
1 year ago
Steroids and Ibuprofen
I am currently on 7mg pred for PMR. I am also suffering from a trapped nerve in my back which I have had for six weeks now which has been VERY painful. My doctor has said under no circumstances to take any medication containing ibuprofen because of my steroids. Paracetomol does nothing to relieve
I am currently on 7mg pred for PMR. I am also suffering from a trapped nerve in my back which I have had for six weeks now which has been VERY painful. My doctor has said under no circumstances to take any medication containing ibuprofen because of my steroids. Paracetomol does nothing to relieve
Washingup
in
PMRGCAuk
1 year ago
B12 ferritin connection??
I finally had my hematologist appt and was pleasantly surprised by how knowledgeable she was! She is very very concerned about my ferritin level, which was 11 when I went in and after she checked it is now 9. She is sending me to an allergist to try to desensitize me to b12 shots (and find out what
I finally had my hematologist appt and was pleasantly surprised by how knowledgeable she was! She is very very concerned about my ferritin level, which was 11 when I went in and after she checked it is now 9. She is sending me to an allergist to try to desensitize me to b12 shots (and find out what
gypsy_child
in
Pernicious Anaemia Society
2 years ago
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Shout at the Moon
Today I visited my GP to try to get an iron infusion, following a reading of ferritin level of 58. He said it was a bit low. I reminded him of the research I had shown him last time, which states that levels should be over 100 in RLS patients. Sadly he hadn't read it, wanted to be helpful, but just
Today I visited my GP to try to get an iron infusion, following a reading of ferritin level of 58. He said it was a bit low. I reminded him of the research I had shown him last time, which states that levels should be over 100 in RLS patients. Sadly he hadn't read it, wanted to be helpful, but just
pennygates
in
Restless Legs Syndrome
2 years ago
blood test results
Here are my blood test results. No Levo in 24 hours prior to doing blood test. No vitamins, for 2 days. Usually take multivitamin and multi mineral, evening primrose, cod liver oil. Test done 7am
Here are my blood test results. No Levo in 24 hours prior to doing blood test. No vitamins, for 2 days. Usually take multivitamin and multi mineral, evening primrose, cod liver oil. Test done 7am
Gbunny
in
Thyroid UK
1 year ago
Struggling to get comfortable when sleeping
Hello all, my wife is exhausted and 1) She's scared to sleep in case she doesn't wake up and 2) The pain in her neck and shoulders from lying down. Now we've got a V-shaped pillow which she puts (normal) pillows on top of the V-shaped pillow but TBH this isn't working. Is she doing right or wrong? I've
Hello all, my wife is exhausted and 1) She's scared to sleep in case she doesn't wake up and 2) The pain in her neck and shoulders from lying down. Now we've got a V-shaped pillow which she puts (normal) pillows on top of the V-shaped pillow but TBH this isn't working. Is she doing right or wrong? I've
Derek1uk
in
PSP Association
1 year ago
Iron tabs with AF meds
Need some advice I have been prescribed iron tabs for anaemia - HB 80 I know they can upset the stomach & need to be taken when stomach empty. My AF meds are Flecainide Bisoprolol Apixiban & Simvastatin also take Cod liver oil Magnesium & Vit B12. Any advice on when to take Iron as don’t want to
Need some advice I have been prescribed iron tabs for anaemia - HB 80 I know they can upset the stomach & need to be taken when stomach empty. My AF meds are Flecainide Bisoprolol Apixiban & Simvastatin also take Cod liver oil Magnesium & Vit B12. Any advice on when to take Iron as don’t want to
Koladog
in
Atrial Fibrillation Support
1 year ago
Magnesium-which one is the best?
Hi everyone, I haven't posted for a long time, but commented on posts here and there....and read all daily. I wonder if anyone could give me some advice re: magnesium supplement... I bought my last one from Holland&Barrett and it was magnesium oxide, I have read somewhere it is the most inferior type
Hi everyone, I haven't posted for a long time, but commented on posts here and there....and read all daily. I wonder if anyone could give me some advice re: magnesium supplement... I bought my last one from Holland&Barrett and it was magnesium oxide, I have read somewhere it is the most inferior type
Nadeje
in
British Heart Foundation
2 years ago
G.p appointment
I have a g.p telephone appointment on Friday and I'm dreading it! He won't give me a face to face appointment as it's not classed as urgent, but it's very important to me. He just increased my propanol last time, which didn't help and have given me naproxen which make me feel sick. Can I insist on seeing
I have a g.p telephone appointment on Friday and I'm dreading it! He won't give me a face to face appointment as it's not classed as urgent, but it's very important to me. He just increased my propanol last time, which didn't help and have given me naproxen which make me feel sick. Can I insist on seeing
Mary1959
in
National Migraine Centre
1 year ago
my poor feet!!
thanks so much for your reply’s I have orthotic insoles to, water tablets, naproxen, Pregablin co-codamol & pain patch, & my happy pill sertraline. I’ve endured injections in my spine neck & ribs for 5-6 yrs never again!! I think it’s osteoarthritis/ or polymyalgia or just about everything thing…. Been
thanks so much for your reply’s I have orthotic insoles to, water tablets, naproxen, Pregablin co-codamol & pain patch, & my happy pill sertraline. I’ve endured injections in my spine neck & ribs for 5-6 yrs never again!! I think it’s osteoarthritis/ or polymyalgia or just about everything thing…. Been
Spongebob1
in
Fibromyalgia Action UK
1 year ago
Recently Diagnosed Fibromyalgia
Hi all first post on this forum. I was diagnosed with fibromyalgia last week but have had symptoms (fatigue, low mood, whole body aches) for ages and took early retirement in December. I’ve got osteopenia and been prescribed Gabapentin and co-codamol for compression fractures and disc compression
Hi all first post on this forum. I was diagnosed with fibromyalgia last week but have had symptoms (fatigue, low mood, whole body aches) for ages and took early retirement in December. I’ve got osteopenia and been prescribed Gabapentin and co-codamol for compression fractures and disc compression
Eladee
in
Fibromyalgia Action UK
1 year ago
5 months still no answers
Hi About 5months ago I started to experience epigastric pain that is constant before and after eating several bowel movements per day. after several blood tests ultrasound and a gastroscopy still no answers. Initially was treated for query gallstones ultrasound showed no stones, however, did show
Hi About 5months ago I started to experience epigastric pain that is constant before and after eating several bowel movements per day. after several blood tests ultrasound and a gastroscopy still no answers. Initially was treated for query gallstones ultrasound showed no stones, however, did show
dc24
in
Pain Concern
1 year ago
Fibro flare + teeth grinding
Hi everyone, any helpful advice/solution for severe teeth grinding and clenching? I tried different types of nightguards and botox and the situation didn't improve significantly. I am in the middle of a Fibro flare-up, and grinding got worse since yesterday and it is causing me horrendous headaches
Hi everyone, any helpful advice/solution for severe teeth grinding and clenching? I tried different types of nightguards and botox and the situation didn't improve significantly. I am in the middle of a Fibro flare-up, and grinding got worse since yesterday and it is causing me horrendous headaches
Dodo21
in
Fibromyalgia Action UK
1 year ago
BMB results
Just had a call from specialist nurse to say bmb results were in and they showed more fibrosis than the last one 6 months ago, but not full blown myleofibrosis, more likely pre mf. They’re going to send me a leaflet about it with all symptoms so I can see if I’ve got any. I’ll get an appointment to see
Just had a call from specialist nurse to say bmb results were in and they showed more fibrosis than the last one 6 months ago, but not full blown myleofibrosis, more likely pre mf. They’re going to send me a leaflet about it with all symptoms so I can see if I’ve got any. I’ll get an appointment to see
lizzziep
in
MPN Voice
1 year ago
Levothyroxine and iron prescription
hi everyone, Just been told I’ve got low iron by the dr from my bloods and was looking online that you can’t take levo and iron together and they have to be taken on an empty stomach. Please can someone confirm is this is correct? Thank you for your help.
hi everyone, Just been told I’ve got low iron by the dr from my bloods and was looking online that you can’t take levo and iron together and they have to be taken on an empty stomach. Please can someone confirm is this is correct? Thank you for your help.
RomyJean
in
Thyroid UK
2 years ago
Epigastric pain
Hi all I’m getting a dull pain in my epigastric region, that’s kind of the area just below your heart in the centre. I’ve had it for sometime how and mentioned it to the cardiologist but they don’t seem bothered as it isn’t directly my heart, even thought it started after my CABG. Im starting to wonder
Hi all I’m getting a dull pain in my epigastric region, that’s kind of the area just below your heart in the centre. I’ve had it for sometime how and mentioned it to the cardiologist but they don’t seem bothered as it isn’t directly my heart, even thought it started after my CABG. Im starting to wonder
Jako999
in
British Heart Foundation
1 year ago
Doctors Appointment on Tuesday Re MRI
Evening all. I have a doctors appointment in Tuesday regarding my recent MRI results, however there are other things I need to chat about as well. Since getting down to 2.5 mg my hands have been becoming more painful, fingers and joints, itchy palms etc. In fact, all the symptoms of of my CTS coming
Evening all. I have a doctors appointment in Tuesday regarding my recent MRI results, however there are other things I need to chat about as well. Since getting down to 2.5 mg my hands have been becoming more painful, fingers and joints, itchy palms etc. In fact, all the symptoms of of my CTS coming
Bcol
in
PMRGCAuk
1 year ago
Update on Daughter's Ferritin levels
Hi just an update from the other day,I had posted about my daughter havi low ferritin of 11. She has just let me know her ferritin is now 52😲can't quite believe it. She's going to get D checked and ask which blood tests she's had.She was only taking the Iron Protein Plus (life extension) so these
Hi just an update from the other day,I had posted about my daughter havi low ferritin of 11. She has just let me know her ferritin is now 52😲can't quite believe it. She's going to get D checked and ask which blood tests she's had.She was only taking the Iron Protein Plus (life extension) so these
caroash
in
Thyroid UK
2 years ago
Pluresy advise
I was told last Friday I had pluresy after having phenomena I already had 4 lots of antibiotics so wouldn't give me anymore was giving 50 Co-codamol but pain is unbearable I am going for ct scan tomorrow hopefully it will show what is causing pain and they will be able to do something any advise x
I was told last Friday I had pluresy after having phenomena I already had 4 lots of antibiotics so wouldn't give me anymore was giving 50 Co-codamol but pain is unbearable I am going for ct scan tomorrow hopefully it will show what is causing pain and they will be able to do something any advise x
Clyde-9608
in
Lung Conditions Community Forum
1 year ago
Nerves ‘nicked’ during bmb
I’ve spoken to haematology this morning as I’ve been having such a lot of pain since my bmb last week. I’ve only got to try to turn over in bed and it’s like being poked with red hot needles! Anyway the nurse I spoke to said it sounded like nerves had been ‘caught’ when they did the procedure, followed
I’ve spoken to haematology this morning as I’ve been having such a lot of pain since my bmb last week. I’ve only got to try to turn over in bed and it’s like being poked with red hot needles! Anyway the nurse I spoke to said it sounded like nerves had been ‘caught’ when they did the procedure, followed
lizzziep
in
MPN Voice
1 year ago
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