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Experiences with
Peroxisomal acyl-CoA oxidase deficiency
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Problems with mobility
Hi, I have had back problems on and off for many years but not continuously like now. I have osteoarthritis in many places and had a TKR but my back and foot are the worse, then, what was my good foot went the same way and it's now really so painful walking, standing still, getting up from sitting or
Hi, I have had back problems on and off for many years but not continuously like now. I have osteoarthritis in many places and had a TKR but my back and foot are the worse, then, what was my good foot went the same way and it's now really so painful walking, standing still, getting up from sitting or
vondel12
in
Osteoarthritis Action
4 years ago
Iron specific anemia symptoms
I recently had my b12 loading doses and my understanding is that an iron test can test falsely high, or rather iron levels can suddenly become depleted after a b12 deficiency is rectified. I am developing what looks like bruising around my eyes without having any accidents recently which would account
I recently had my b12 loading doses and my understanding is that an iron test can test falsely high, or rather iron levels can suddenly become depleted after a b12 deficiency is rectified. I am developing what looks like bruising around my eyes without having any accidents recently which would account
Roo32
in
Pernicious Anaemia Society
4 years ago
Just Wondering!
Hope everyone is well and staying warm! I was just wondering, I have a couple of different issues and have an appointment with a Private Pain Specialist today. I have Chronic Painful Bladder Syndrome, Bladder Reflex, Kidney Reflex and a Duplex Kidney on my left side. This causes me to get CONSTANT UTI's
Hope everyone is well and staying warm! I was just wondering, I have a couple of different issues and have an appointment with a Private Pain Specialist today. I have Chronic Painful Bladder Syndrome, Bladder Reflex, Kidney Reflex and a Duplex Kidney on my left side. This causes me to get CONSTANT UTI's
1994Nicolette
in
Pain Concern
4 years ago
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Strange Happenings !!
I have been a member of this site for a long time, I do not write a lot but always read the daily blogs, I have had RLS for over 30 years tried a lot of different pills and patches and find that my current tablets are mostly OK but still have really bad times with my legs, I am extremely worried I have
I have been a member of this site for a long time, I do not write a lot but always read the daily blogs, I have had RLS for over 30 years tried a lot of different pills and patches and find that my current tablets are mostly OK but still have really bad times with my legs, I am extremely worried I have
desperate_41
in
Restless Legs Syndrome
4 years ago
This might help
Hi everyone..I write on here from time to time..as I've had restless legs on and off for years. Recently it's been not soooo bad.. I've managed to take more iron and supplement that with rose hip and cod liver oil.. I also make sure I have enough magnesium.. These simple steps have made a difference.
Hi everyone..I write on here from time to time..as I've had restless legs on and off for years. Recently it's been not soooo bad.. I've managed to take more iron and supplement that with rose hip and cod liver oil.. I also make sure I have enough magnesium.. These simple steps have made a difference.
janland
in
Restless Legs Syndrome
4 years ago
I hope it's not my liver?
Hi guys so I get a bruise on lower right back had it for months a months I'm so worried it's my liver but I've had full blood count totally normal I hate self diagnosis cos it leaves me riddled with anxiety I take 4 co codamol a day have for 3 years due to pain I'm still waitting to get diagnosed all
Hi guys so I get a bruise on lower right back had it for months a months I'm so worried it's my liver but I've had full blood count totally normal I hate self diagnosis cos it leaves me riddled with anxiety I take 4 co codamol a day have for 3 years due to pain I'm still waitting to get diagnosed all
Hidden
in
Fibromyalgia Action UK
4 years ago
how to no your meds aren't effective ?
Afternoon guys ,so I'm really shaky lately and my brains just so foggy not to mention my arms and legs twitching it's gerund me down I'm talking co codamol i have been for 3 years between two and 4 a day morning and night it used to take edge off but it's not any more pains just burning in my brain really
Afternoon guys ,so I'm really shaky lately and my brains just so foggy not to mention my arms and legs twitching it's gerund me down I'm talking co codamol i have been for 3 years between two and 4 a day morning and night it used to take edge off but it's not any more pains just burning in my brain really
Hidden
in
Fibromyalgia Action UK
4 years ago
Vitamin And Nutrients plus Thyroid Health
I am taking a vitamin complex called rainbow light its a food based multivitamin and I am trying to help if I am low with any vitamins. I started a multi vitamin regimen for about a week. I am wondering if I previously overcame a iron deficiency and I have only had low vitamin should it effect my thyroid
I am taking a vitamin complex called rainbow light its a food based multivitamin and I am trying to help if I am low with any vitamins. I started a multi vitamin regimen for about a week. I am wondering if I previously overcame a iron deficiency and I have only had low vitamin should it effect my thyroid
Hidden
in
Thyroid UK
4 years ago
Desperate Sufferer
Hi lm a newbie as of this pm I’m hoping for advice with my PMR which l have had for about 10 years 8 year diagnosis. I’m 74 yrs so had this since I was 64 When diagnosed l Started off on 15 mg of prednisolone going down than up like a yo-yo lowest level l would say was 5mg. I’ve now gone up from 8mg
Hi lm a newbie as of this pm I’m hoping for advice with my PMR which l have had for about 10 years 8 year diagnosis. I’m 74 yrs so had this since I was 64 When diagnosed l Started off on 15 mg of prednisolone going down than up like a yo-yo lowest level l would say was 5mg. I’ve now gone up from 8mg
csargeant
in
PMRGCAuk
4 years ago
Genitofermoral Neuralgia
Hi I was wondering if anyone has been diagnosed Genitofermoral Neuralgia and had a relapse of pain after receiving steroid injections in that nerve? If so how did you cope as I am doing physio weekly for my legs in particular my left leg as it feels like it’s been paralysed. I can’t walk normally as
Hi I was wondering if anyone has been diagnosed Genitofermoral Neuralgia and had a relapse of pain after receiving steroid injections in that nerve? If so how did you cope as I am doing physio weekly for my legs in particular my left leg as it feels like it’s been paralysed. I can’t walk normally as
Yas45
in
Pelvic Pain Support Network
4 years ago
Another UTI
On Wednesday I woke felt a bit unwell, then felt shivery flu like, didn’t make the toilet on time,then about 1/4 of an hour later my body really starting shaking especially my arms they were jumping all over the place, I felt a bit disoriented, very scary. My husband phoned the ambulance for advice,
On Wednesday I woke felt a bit unwell, then felt shivery flu like, didn’t make the toilet on time,then about 1/4 of an hour later my body really starting shaking especially my arms they were jumping all over the place, I felt a bit disoriented, very scary. My husband phoned the ambulance for advice,
Jhpc
in
LUPUS UK
4 years ago
Is it PMR, ? level of GP follow up
Hello all. I am need of some more advice please. I was started on 15mg pred just over 2 weeks ago for probable pmr. My symptoms all fitted, but ESR & CRP were normal . As mentioned in my previous post about timing of pred, I was much improved very quickly but have never been pain free.My GP arranged
Hello all. I am need of some more advice please. I was started on 15mg pred just over 2 weeks ago for probable pmr. My symptoms all fitted, but ESR & CRP were normal . As mentioned in my previous post about timing of pred, I was much improved very quickly but have never been pain free.My GP arranged
Lorraine786
in
PMRGCAuk
4 years ago
Ggt high
Hello new here I was wondering high high my ggt is and if its really bad , its 91 several years ago it was 125 but it went down and came back up again, so my doc is sending be to have liver scan and I'm a bit worried to say the least, I'm a binge drinker and often use co codamol. I drink 10 pints
Hello new here I was wondering high high my ggt is and if its really bad , its 91 several years ago it was 125 but it went down and came back up again, so my doc is sending be to have liver scan and I'm a bit worried to say the least, I'm a binge drinker and often use co codamol. I drink 10 pints
Dreamkiller
in
British Liver Trust
4 years ago
Pregnant,in severe pain with my back and need help and advice please
Good morning/evening guys, Sorry for the long post but I’m desperate for some help and advice if at all possible. I recently found out that I’m experiencing baby no 4. This was an unplanned pregnancy and I don’t think it’s quite sunk in yet. This pregnancy wasn’t planned due to a few reasons:- The
Good morning/evening guys, Sorry for the long post but I’m desperate for some help and advice if at all possible. I recently found out that I’m experiencing baby no 4. This was an unplanned pregnancy and I don’t think it’s quite sunk in yet. This pregnancy wasn’t planned due to a few reasons:- The
Laurapooloo
in
Pain Concern
4 years ago
Losing hope
Hi everyone I’ve been diagnosed with Endometriosis since May 2018, and since then I have had 3 laparoscopys and every time I have had endo removed (laser) I was on the depo injection for 2 years however I was told to come off it and try taking the pill instead, it’s been almost a year and I keep forgetting
Hi everyone I’ve been diagnosed with Endometriosis since May 2018, and since then I have had 3 laparoscopys and every time I have had endo removed (laser) I was on the depo injection for 2 years however I was told to come off it and try taking the pill instead, it’s been almost a year and I keep forgetting
Immilouise
in
Endometriosis UK
4 years ago
Sotalol side effects
I've had both SVT and AF ablation's. The SVT was from just after I had my first child and was severe. The ablation for that took and I was put on Verapemil (sp?) I had no further SVT and all was well. Then after 30 years I began 11 years of hell that brought me here: total gastrectomy; followed 3 years
I've had both SVT and AF ablation's. The SVT was from just after I had my first child and was severe. The ablation for that took and I was put on Verapemil (sp?) I had no further SVT and all was well. Then after 30 years I began 11 years of hell that brought me here: total gastrectomy; followed 3 years
HAB2
in
AF Association
4 years ago
New to group. Fibromyalgia support
Hi, everyone. I have recently been told from my GP and physiotherapist that I have fibromyalgia. After suffering with anxiety, depression, sleep disorders, ibs, bad memory(forget things quickly and struggle to remember the simplest of things) and back pain for over 10 years. I had never heard of fibromyalgia
Hi, everyone. I have recently been told from my GP and physiotherapist that I have fibromyalgia. After suffering with anxiety, depression, sleep disorders, ibs, bad memory(forget things quickly and struggle to remember the simplest of things) and back pain for over 10 years. I had never heard of fibromyalgia
Sheefy123
in
Fibromyalgia Action UK
4 years ago
Stopped pill
I was on the co cyprindiol pill for 2 months. I stopped taking the pill last December as we are planning for a baby and came on my bleed on the 3rd December... I still haven’t had my period yet. I have done a pregnancy test but all 3 have come out negative. Can someone please advice me in what I should
I was on the co cyprindiol pill for 2 months. I stopped taking the pill last December as we are planning for a baby and came on my bleed on the 3rd December... I still haven’t had my period yet. I have done a pregnancy test but all 3 have come out negative. Can someone please advice me in what I should
Kush123
in
IBS Network
4 years ago
I'm so scared
Just wondering if anyone can help: For about five months I've been feeling really tired. Like I have to force myself up in the morning kind of tired. I started to get a hip and back pain and put it down to starting a new strenuous job and getting a new mattress. Since the pain has gone I started to
Just wondering if anyone can help: For about five months I've been feeling really tired. Like I have to force myself up in the morning kind of tired. I started to get a hip and back pain and put it down to starting a new strenuous job and getting a new mattress. Since the pain has gone I started to
Mccasta
in
Functional Neurological Disorder - FND Hope
4 years ago
B12 Oral
Hi I am taking a multivitamin which has following composition. Vitamin B12 1500mcg + Vitamin B9 1.5mg + Vitamin B6 3mg + Vitamin D3 1000 IU + Alpha lipoic acid 100mg Can I take this daily for lifetime. I mean can I get vitamin toxicity if I pursue this for long term I have B12 deficiency and feel horrible
Hi I am taking a multivitamin which has following composition. Vitamin B12 1500mcg + Vitamin B9 1.5mg + Vitamin B6 3mg + Vitamin D3 1000 IU + Alpha lipoic acid 100mg Can I take this daily for lifetime. I mean can I get vitamin toxicity if I pursue this for long term I have B12 deficiency and feel horrible
Riseup01
in
Pernicious Anaemia Society
5 years ago
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