Experiences with

Peroxisomal acyl-CoA oxidase deficiency

I am still awaiting a diagnosis of PA, but do suspect I do have it. My stomach pH level was recently 8.1, so very low stomach acid, which is why I am not absorbing/processing B12, iron and folate. I also did a test which showed I have very low diamine oxidase in my gut so have histamine intolerance.

Good afternoon to all. I wanted to go straight to the findings I have done, diagnostic tests with top consultants in London. I was diagnosed with hypermobility syndrome and I had a horrible reaction to a covid infection last xmas which caused me long covid: fatigue, pain in bones, muscles and joints,

Hi, Does anyone drink Chuckling Goat kefir? I have had some on and off over the last few weeks, but not consistently so not sure if it helps. It is a very strong kefir that is full of B12. I am not sure yet if I have pernicious anaemia, or whether it is a gut dysbiosis problem as I do not appear to be

I stumbled upon a study I thought was interesting, in light of recent reports that PwPD harbor elevated levels of desulfovibrio in their microbiome. Desulfovibrio is a sulfur reducing bacteria (SRB). Sulfur reducing bacteria produce hydrogen sulfide, which in small amounts can be beneficial, but in larger

Started taking magnesium supplement from the supermarket and slept really well and felt more relaxed and less joint pain. Have only been taking half a tablet every night for about three nights, with the intention of building up to a full tablet slowly. Today my bladder seems to be irritated, running

I have been on the same dose of T4 and T3 for the last 7 months ( T4: 82mcg and T3:22.5 mcg). I was then diagnosed with ADHD end of April and started taking Lisdexamfetamine plus electrolyte supplements. (Magnesium citrate, plus : Electrolyte complex - Ingredients: Calcium salts of orthophosphoric

hello everyone hope your all as good as can be I wonder if you could give me your opinion on these results, thanks Serum iron 10(5.83-34.5) Transferrin 206 (2-3.6) Transferrin saturation 21% (15%-50%) Ferritin 223 no range with this Look forward to hearing from you thanks again

I would like to increase my Ferritin levels but I’m one of those that can’t take iron supplements because the rest of my iron levels, including transferrin saturation, are good. Therefore I should try to increase Ferritin levels via my diet. Unfortunately I can’t eat meat in any form, haven’t done

This is a new one for me. I'm now at 1.5 grains Armour. I weigh 52kg. I waited months for this increase and 5 weeks on, I'm feeling peculiar. Fluttery palpitations, resting heart rate is faster, slight pressure in my chest, head and ears. No energy, lethargic. Haven't really got out of my PJs for a few

A Haematologist appears to have ignored my recent blood test results after I went to see him in the belief my serum iron is too low but ferritin levels are above reference range. I do not understand the implication of this nor the impact of ferritin upon iron levels. I went to see the Haematologist

My fbc shows a couple of indifferent results....with a low MCV but a higher RBC any ideas what I need to do? Can't get to see a doctor til next week now. Any help much appreciated....would it show macryocytic anaemia? Would it suggest iron supplements needed? On the tes it says abnormal repeat blood

Did you know that the symptoms of B12 deficiency are similar to hypothyroidism? https://thyroiduk.org/if-you-are-hypothyroid/the-importance-of-vitamins-and-minerals-hypo/checking-for-b12-deficiency-and-pernicious-anaemia/

Posting because of a combination of interest and the outside possibility that a few members might identify with this issue. Note: This was under the NHS in Northampton. [i]Tomatophagia Caused by Iron Deficiency Anaemia: A Case Report.[/i] [i]Abstract [/i] [i]Iron deficiency anaemia is a common

Still clawing my way back to some form of better health after contracting Covid in May but things are seemingly going in the right direction. It seems my thyroid med dose is now too high though! Potentially because my folate and iron are so much better with supplementation. I’ve been feeling extra

Hi guys, Had a blood test at my GP after a 3 month course of 305mg Ferrous Fumarate and got results this morning Serum ferritin level: 30 ng/ml [30 - 150]; Note raised CRP. The Ferritin value may be lower than this once; the acute phase response is over.; Ferritin 15-30ug/L may suggest depletion of

Hi, I dose 3 times per day, 6am (Levo & T3) and 2pm and 10pm. Would it be ok to take 2mg of iron as part of a B-complex? I purchased the wrong product a while ago and I don't want to waste money and throw it away. Reading PR's book it states; take thyroid hormone meds 1 hr before iron sups, or take

Hello everyone people have been asking for my blood results i received them today.Sorry for the small writing.I am taking iron and folic acid prescribed by my doctor.And 50 mgs of Levothyroxine.

Adding on to my previous post a few day's ago, with my iron level at 9.3 (10-30) & transferrin saturation at 11.6 (25-45) I'm advised (privately) to consider an iron infusion? Does anyone have any experience of this? Will it be detrimental to my thyroid medication? It feels like renovating a house, you

I have low iron and hypothyroidism. I have been researching the connection between the two and found research that shows that iron feeds the T4/T3 process. So is the root cause of hypo low iron or do they go hand in hand typically? I am taking iron pills, increasing liver intake and supporting my body

Background The current Teva levothyroxine in the UK was introduced as a brand new formulation around 2016. (There was no Teva levothyroxine product for a few years - approximately 2012 to 2016.) Teva introduced 12.5, 25, 50, 75 and 100 microgram dosages. These were the first 12.5 and 75 levothyroxine