Experiences with

Peroxisomal acyl-CoA oxidase deficiency

I am still awaiting a diagnosis of PA, but do suspect I do have it. My stomach pH level was recently 8.1, so very low stomach acid, which is why I am not absorbing/processing B12, iron and folate. I also did a test which showed I have very low diamine oxidase in my gut so have histamine intolerance.

Good afternoon to all. I wanted to go straight to the findings I have done, diagnostic tests with top consultants in London. I was diagnosed with hypermobility syndrome and I had a horrible reaction to a covid infection last xmas which caused me long covid: fatigue, pain in bones, muscles and joints,

Hi, Does anyone drink Chuckling Goat kefir? I have had some on and off over the last few weeks, but not consistently so not sure if it helps. It is a very strong kefir that is full of B12. I am not sure yet if I have pernicious anaemia, or whether it is a gut dysbiosis problem as I do not appear to be

I'm low on ferritin (20) I was told I can't inject because it's low? My b12 was low 232 in 2021 with high mma. Last year when all my neuro symptoms started it was around 390 for b12. I took supplements a few times, it raised to 630 and then got one injection on 6/2024. One month later my b12 was 298

I've been taking a magnesium supplement for years, actually either magnesium glycinate or magnesium L threonate, magnesium oxide is a big no-no, it gives me weird stomach palpatations. But recently I've noticed that my preferred magnesium has been having the same effect, I didn't realise at first that

I stumbled upon a study I thought was interesting, in light of recent reports that PwPD harbor elevated levels of desulfovibrio in their microbiome. Desulfovibrio is a sulfur reducing bacteria (SRB). Sulfur reducing bacteria produce hydrogen sulfide, which in small amounts can be beneficial, but in larger

Hello, I recently got some lab results and am trying to understand the possible causes behind the following patterns: Normal B12: My total vitamin B12 levels are within the normal range. Elevated Active B12: However, my active B12 is elevated. Low Ferritin: My ferritin levels are low, indicating

https://acrobat.adobe.com/id/urn:aaid:sc:EU:8eea8238-2116-4138-837d-0f4b35b5ff89 A comprehensive analysis of previous intravenous Iron studies confirms that they improve IRLSS scores but not necessarily quality of life. We know that iron Therapy, preferably a quick iron infusion, should be first line

Did you know that the symptoms of B12 deficiency are similar to hypothyroidism? https://thyroiduk.org/if-you-are-hypothyroid/the-importance-of-vitamins-and-minerals-hypo/checking-for-b12-deficiency-and-pernicious-anaemia/

I’ve had Covid for the last two weeks and stopped my iron supplements during the infection. Can anyone shed any light on when it is safe to restart supplementing? Many thanks.

My husband's results came in yesterday: Iron Bind Cap (TIBC) 313 ug/dL, UIBC 173 ug/dL, Iron 140 ug/dL, Iron Saturation 45%, TSH 1.810 uIU/mL, Ferritin 172 ng/mL. Look to be satisfactory? Thanks so very much for the insights and guidance this group provides for us, every day.

I am not a great red meat eater or sardine lover and having had 9 months of prescribed iron tablets from the GP for anemia ask what iron supplements others safely take with Predisolone. I am having my levels checked so I will be able to gauge whether I need more iron. I was looking at Floradix which

Hi My haemoglobin was 145 -March, ferritin in 40's. I restarted b12 inj March due to severe neuro symptoms reoccurring after being changed to tablets. After a fashion! am back to monthly b12 inj. Dec tests showed MCH still overange after 2 mnthly jabs, then 3 months of monthly jabs, which I thought would

should iron supplements be stopped before FBC and Ferritin blood tests? If so how long before? Have always fasted but first time being tested after starting supplement. Thanks .

A blood test 2 months ago showed very low iron (9 on 1st test) I have always taken feroglobin liquid to boost iron and b vitamins. I was put on a months high dose Iron, 610mg daily and after re testing my iron 6 weeks later it is only up to 10! My GP suggests just keep taking Iron supplements however

Hi All, I posted some of this on a recent thread but decided to post it separately in case others interested. I've been thinking a lot ( when my brain allows me to) about how some forum members report B12 deficiency symptoms with normal or above range serum B12 results. Some report B12 deficiency

Cochrane Review: Treatments for Postpartum Iron Deficiency Anaemia Miriam Davis, PhD | 18 December 2024 …………………………….. Overall conclusion… ‘Slight improvement only in fatigue’ BUT they don’t comment on female RLS help (~5% of the population) or general health improvements for women who are often

I’ve been testing my iron levels regularly this year as I’m trying to rectify years of iron deficiency and iron deficiency anaemia. I’ve had my blood tested twice this year by my GP surgery and I test regularly with Monitor my Health. I chose MMH because it uses NHS labs so I had assumed I’d get reliable

Apologies if this is posted on the wrong site but I’m hoping for answers on a couple of basic questions relating to IDA and I’m not sure where to turn. During the Summer I felt increasingly fatigued and suffered dizziness on standing up plus occasional racing heart on the least exertion. My GP brought

Hi...sorry to post again, but had a doctors appointment yesterday & my blood pressure was high, so they are getting me to do a home blood pressure monitor diary for a week. when he went through my blood test results he said so iron is fine, everything looks fine, no anaemia....these are my latest results