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Experiences with
Peroxisomal acyl-CoA oxidase deficiency
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Malabsorption of drugs?
I am still awaiting a diagnosis of PA, but do suspect I do have it. My stomach pH level was recently 8.1, so very low stomach acid, which is why I am not absorbing/processing B12, iron and folate. I also did a test which showed I have very low diamine oxidase in my gut so have histamine intolerance.
I am still awaiting a diagnosis of PA, but do suspect I do have it. My stomach pH level was recently 8.1, so very low stomach acid, which is why I am not absorbing/processing B12, iron and folate. I also did a test which showed I have very low diamine oxidase in my gut so have histamine intolerance.
Chickens44
in
Pernicious Anaemia Society
2 months ago
Treatment for fibro, MCAS, hypermobility syndrom (after catching covid) and long term covid sufferers
Good afternoon to all. I wanted to go straight to the findings I have done, diagnostic tests with top consultants in London. I was diagnosed with hypermobility syndrome and I had a horrible reaction to a covid infection last xmas which caused me long covid: fatigue, pain in bones, muscles and joints,
Good afternoon to all. I wanted to go straight to the findings I have done, diagnostic tests with top consultants in London. I was diagnosed with hypermobility syndrome and I had a horrible reaction to a covid infection last xmas which caused me long covid: fatigue, pain in bones, muscles and joints,
Divinesoul
in
Fibromyalgia Action UK
3 months ago
Goats milk kefir
Hi, Does anyone drink Chuckling Goat kefir? I have had some on and off over the last few weeks, but not consistently so not sure if it helps. It is a very strong kefir that is full of B12. I am not sure yet if I have pernicious anaemia, or whether it is a gut dysbiosis problem as I do not appear to be
Hi, Does anyone drink Chuckling Goat kefir? I have had some on and off over the last few weeks, but not consistently so not sure if it helps. It is a very strong kefir that is full of B12. I am not sure yet if I have pernicious anaemia, or whether it is a gut dysbiosis problem as I do not appear to be
Chickens44
in
Pernicious Anaemia Society
4 months ago
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Typical…
Started taking magnesium supplement from the supermarket and slept really well and felt more relaxed and less joint pain. Have only been taking half a tablet every night for about three nights, with the intention of building up to a full tablet slowly. Today my bladder seems to be irritated, running
Started taking magnesium supplement from the supermarket and slept really well and felt more relaxed and less joint pain. Have only been taking half a tablet every night for about three nights, with the intention of building up to a full tablet slowly. Today my bladder seems to be irritated, running
JoJoloveschocolate
in
Thyroid UK
1 month ago
Does anybody get severe cramps; legs,pectoral and feet?
I have been on Ibrance for nearly 6 years. I feel I am doing well overall but I get very painful muscle cramps. I have experimented with Magnesium Oxide, Glycinate/Hylands Leg Cramps/Curcumin/Tonic water/Calcium and Potasium. The only thing that helps is drinking magnesium citrate power in water during
I have been on Ibrance for nearly 6 years. I feel I am doing well overall but I get very painful muscle cramps. I have experimented with Magnesium Oxide, Glycinate/Hylands Leg Cramps/Curcumin/Tonic water/Calcium and Potasium. The only thing that helps is drinking magnesium citrate power in water during
1horse
in
SHARE Metastatic Breast Cancer
3 months ago
Magnesium Oxide
Looking to take Magnesium Oxide but struggling to find any tablets that aren't giant size. Does anyone know any brand that are smallish?
Looking to take Magnesium Oxide but struggling to find any tablets that aren't giant size. Does anyone know any brand that are smallish?
dinahdough
in
Thyroid UK
3 months ago
Best magnesium dosage
I have been taking Life Extension extended release magnesium (as ZumXR magnesium oxide, magnesium citrate) 500 mg (2 capsules of 250 mg each). I understand from Daphne’s Facebook group that Mg Oxide is not recommended. I intend to switch to Mg-1-threonate. Does anyone know what dosage of Mg-1-threonate
I have been taking Life Extension extended release magnesium (as ZumXR magnesium oxide, magnesium citrate) 500 mg (2 capsules of 250 mg each). I understand from Daphne’s Facebook group that Mg Oxide is not recommended. I intend to switch to Mg-1-threonate. Does anyone know what dosage of Mg-1-threonate
Meramt
in
Cure Parkinson's
5 months ago
Help!
I am a 57 year old male. I've been feeling very tired and run down over the past months. I've been suffering from bouts of dizziness and my balance has become a real problem. My G.P. has run a whole range of blood tests. One of the tests carried out was Iron Profile and another was the Haematinics
I am a 57 year old male. I've been feeling very tired and run down over the past months. I've been suffering from bouts of dizziness and my balance has become a real problem. My G.P. has run a whole range of blood tests. One of the tests carried out was Iron Profile and another was the Haematinics
Henbud
in
Pernicious Anaemia Society
6 hours ago
Is there concerning interactions with cytomel/T3?
Hey folks Was wondering, are there any potentially dangerous interactions that me/people should bê aware of ? Wondering as i deal with some stuff,só i take some chemicals, as for example i take tropisetron an 5ht3 antagonist /nicotinc receptor agonist, Tudca/Udca (bile acids) but also others as sometimes
Hey folks Was wondering, are there any potentially dangerous interactions that me/people should bê aware of ? Wondering as i deal with some stuff,só i take some chemicals, as for example i take tropisetron an 5ht3 antagonist /nicotinc receptor agonist, Tudca/Udca (bile acids) but also others as sometimes
Mobilepirate
in
Thyroid UK
2 days ago
Iron problem?
Hi,I have a low iron saturation - latest blood tests show range = just out (low side). Apologies I haven't got details atm. Although I do supplement with iron it's obviously not enough? I'm not too sure regarding Folate and Ferritin? What exactly do I purchase? Love to you all
Hi,I have a low iron saturation - latest blood tests show range = just out (low side). Apologies I haven't got details atm. Although I do supplement with iron it's obviously not enough? I'm not too sure regarding Folate and Ferritin? What exactly do I purchase? Love to you all
Booblet
in
Thyroid UK
4 days ago
ferritin still low
As mentioned before my ferritin is 13, can’t tolerate any oral form and have had infusions in the past. Am being denied infusion as Full bloods are within range, no idea what to do now, eating plenty of iron rich foods, feeling really unwell and down. Recent test results: B12=651(187-883), vit D=92(
As mentioned before my ferritin is 13, can’t tolerate any oral form and have had infusions in the past. Am being denied infusion as Full bloods are within range, no idea what to do now, eating plenty of iron rich foods, feeling really unwell and down. Recent test results: B12=651(187-883), vit D=92(
Pennypingu
in
Thyroid UK
16 days ago
The Origin of Ferritin Reference Intervals: A Systematic Review
I've slightly altered the formatting of the abstract in the hope of making it easier to read. ... Authors : Judy Truong, Kanza Naveed, Daniel Beriault, David Lightfoot, Michael Fralick, Michelle Sholzberg Link : https://ashpublications.org/blood/article/140/Supplement%201/11078/490505/The-Origin-of-Ferritin-Reference-Intervals-A
I've slightly altered the formatting of the abstract in the hope of making it easier to read. ... Authors : Judy Truong, Kanza Naveed, Daniel Beriault, David Lightfoot, Michael Fralick, Michelle Sholzberg Link : https://ashpublications.org/blood/article/140/Supplement%201/11078/490505/The-Origin-of-Ferritin-Reference-Intervals-A
humanbean
in
Thyroid UK
16 days ago
Magnesium CAUSING muscle cramps
Forgive the capitals. I have found the sweet spot for magnesium supplementation for constipation and its about 600mg split between 2 doses of 1/4 ts oxide but its also unfortunately causing me muscle cramps and dry eyes to the point I can't wear contact lenses during supplementation. I have tried many
Forgive the capitals. I have found the sweet spot for magnesium supplementation for constipation and its about 600mg split between 2 doses of 1/4 ts oxide but its also unfortunately causing me muscle cramps and dry eyes to the point I can't wear contact lenses during supplementation. I have tried many
SteveT3
in
Thyroid UK
6 months ago
A clinical picture of a B12 deficiency and PA explained.........
Hopefully the following will be of interest to newbies on the sight and give a little insight of the condition and how to treat............ https://www.bmj.com/content/383/bmj-2022-071725
What is a patient with a lack of B12 would have pa?
Pernicious anemia (PA) is a decrease in red blood
Hopefully the following will be of interest to newbies on the sight and give a little insight of the condition and how to treat............ https://www.bmj.com/content/383/bmj-2022-071725
What is a patient with a lack of B12 would have pa?
Pernicious anemia (PA) is a decrease in red blood
Jillymo
in
Pernicious Anaemia Society
18 days ago
Recent blood test results advice please
I have just received some blood test results, having had an iron infusion in October 2023, I would love advice please, bearing in mind my serum ferritin is still over reference range. I have not taken iron tablets since the iron infusion. Serum folate 5.5 ug/L (ref. range 3.0-20.5) Serum ferritin
I have just received some blood test results, having had an iron infusion in October 2023, I would love advice please, bearing in mind my serum ferritin is still over reference range. I have not taken iron tablets since the iron infusion. Serum folate 5.5 ug/L (ref. range 3.0-20.5) Serum ferritin
yorkshiregirl4
in
Thyroid UK
23 days ago
Please advise on iron panel blood test results
Please can anyone advise if I need to take iron tablets with these results. I feel so tired. Due to see the endo on Monday but I know he might say it is in range.The blood tests are as follows: I sent the TSH, T3and t4 in a previous email. Folic acid 9.6 range e >2.7 B12 695 ng/L range 160-800ng/L MCV
Please can anyone advise if I need to take iron tablets with these results. I feel so tired. Due to see the endo on Monday but I know he might say it is in range.The blood tests are as follows: I sent the TSH, T3and t4 in a previous email. Folic acid 9.6 range e >2.7 B12 695 ng/L range 160-800ng/L MCV
cbraffe
in
Thyroid UK
27 days ago
Massachusetts Opioid Register Year 4 results
I attach the latest Massachusetts Opioid Register results, showing the medications taken by participants and the doses. Dr Winkelman set up the Register to show that addiction and tolerance are unlikely to happen when low dose opioids are used for RLS. For those who have augmented on dopamine agonists
I attach the latest Massachusetts Opioid Register results, showing the medications taken by participants and the doses. Dr Winkelman set up the Register to show that addiction and tolerance are unlikely to happen when low dose opioids are used for RLS. For those who have augmented on dopamine agonists
Joolsg
in
Restless Legs Syndrome
28 days ago
teeth clenching
I’m titrating NDT Armour over the last year but I’ve got a hypo symptom that’s bothering me, nighttime teeth clenching. I have no knowledge I’m doing this. I take amitriptyline and once I get to sleep midnight to 1am, I’m out for the count. I think the dentist told me September 2023 that I was clenching
I’m titrating NDT Armour over the last year but I’ve got a hypo symptom that’s bothering me, nighttime teeth clenching. I have no knowledge I’m doing this. I take amitriptyline and once I get to sleep midnight to 1am, I’m out for the count. I think the dentist told me September 2023 that I was clenching
Insomania
in
Thyroid UK
29 days ago
Blood test results
I have recently had a full panel fasting blood test done, and these are the results. I would appreciate your thoughts before I make an appointment with my GP. Serum ferritin level 144 Serum iron 17.8 Serum transferrin 2.44 Iron saturation 32.3% Thank you
I have recently had a full panel fasting blood test done, and these are the results. I would appreciate your thoughts before I make an appointment with my GP. Serum ferritin level 144 Serum iron 17.8 Serum transferrin 2.44 Iron saturation 32.3% Thank you
Flora-Rose
in
Restless Legs Syndrome
1 month ago
Tigger is bouncing around Winnie the Pooh, because he is happy his RLS is better
I was originally trialing 5 microgram 7 day patches that got me out of that dark tunnel but wasn’t 100% effective so after the initial 3 week trial I wrote to Dr Christopher Murphy explained the situation and he arranged for me to collect 10 microgram 7 day patches from Salford Royal Infirmary. I applied
I was originally trialing 5 microgram 7 day patches that got me out of that dark tunnel but wasn’t 100% effective so after the initial 3 week trial I wrote to Dr Christopher Murphy explained the situation and he arranged for me to collect 10 microgram 7 day patches from Salford Royal Infirmary. I applied
HipHop1972
in
Restless Legs Syndrome
1 month ago
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