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Experiences with
Peroxisomal acyl-CoA oxidase deficiency
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Treatment for fibro, MCAS, hypermobility syndrom (after catching covid) and long term covid sufferers
Good afternoon to all. I wanted to go straight to the findings I have done, diagnostic tests with top consultants in London. I was diagnosed with hypermobility syndrome and I had a horrible reaction to a covid infection last xmas which caused me long covid: fatigue, pain in bones, muscles and joints,
Good afternoon to all. I wanted to go straight to the findings I have done, diagnostic tests with top consultants in London. I was diagnosed with hypermobility syndrome and I had a horrible reaction to a covid infection last xmas which caused me long covid: fatigue, pain in bones, muscles and joints,
Divinesoul
in
Fibromyalgia Action UK
15 days ago
Goats milk kefir
Hi, Does anyone drink Chuckling Goat kefir? I have had some on and off over the last few weeks, but not consistently so not sure if it helps. It is a very strong kefir that is full of B12. I am not sure yet if I have pernicious anaemia, or whether it is a gut dysbiosis problem as I do not appear to be
Hi, Does anyone drink Chuckling Goat kefir? I have had some on and off over the last few weeks, but not consistently so not sure if it helps. It is a very strong kefir that is full of B12. I am not sure yet if I have pernicious anaemia, or whether it is a gut dysbiosis problem as I do not appear to be
Chickens44
in
Pernicious Anaemia Society
25 days ago
Does anybody get severe cramps; legs,pectoral and feet?
I have been on Ibrance for nearly 6 years. I feel I am doing well overall but I get very painful muscle cramps. I have experimented with Magnesium Oxide, Glycinate/Hylands Leg Cramps/Curcumin/Tonic water/Calcium and Potasium. The only thing that helps is drinking magnesium citrate power in water during
I have been on Ibrance for nearly 6 years. I feel I am doing well overall but I get very painful muscle cramps. I have experimented with Magnesium Oxide, Glycinate/Hylands Leg Cramps/Curcumin/Tonic water/Calcium and Potasium. The only thing that helps is drinking magnesium citrate power in water during
1horse
in
SHARE Metastatic Breast Cancer
4 days ago
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Magnesium Oxide
Looking to take Magnesium Oxide but struggling to find any tablets that aren't giant size. Does anyone know any brand that are smallish?
Looking to take Magnesium Oxide but struggling to find any tablets that aren't giant size. Does anyone know any brand that are smallish?
dinahdough
in
Thyroid UK
21 days ago
Best magnesium dosage
I have been taking Life Extension extended release magnesium (as ZumXR magnesium oxide, magnesium citrate) 500 mg (2 capsules of 250 mg each). I understand from Daphne’s Facebook group that Mg Oxide is not recommended. I intend to switch to Mg-1-threonate. Does anyone know what dosage of Mg-1-threonate
I have been taking Life Extension extended release magnesium (as ZumXR magnesium oxide, magnesium citrate) 500 mg (2 capsules of 250 mg each). I understand from Daphne’s Facebook group that Mg Oxide is not recommended. I intend to switch to Mg-1-threonate. Does anyone know what dosage of Mg-1-threonate
Meramt
in
Cure Parkinson's
3 months ago
Magnesium CAUSING muscle cramps
Forgive the capitals. I have found the sweet spot for magnesium supplementation for constipation and its about 600mg split between 2 doses of 1/4 ts oxide but its also unfortunately causing me muscle cramps and dry eyes to the point I can't wear contact lenses during supplementation. I have tried many
Forgive the capitals. I have found the sweet spot for magnesium supplementation for constipation and its about 600mg split between 2 doses of 1/4 ts oxide but its also unfortunately causing me muscle cramps and dry eyes to the point I can't wear contact lenses during supplementation. I have tried many
SteveT3
in
Thyroid UK
3 months ago
Vitamin B12
Did you know that the symptoms of B12 deficiency are similar to hypothyroidism? https://thyroiduk.org/if-you-are-hypothyroid/the-importance-of-vitamins-and-minerals-hypo/checking-for-b12-deficiency-and-pernicious-anaemia/
Did you know that the symptoms of B12 deficiency are similar to hypothyroidism? https://thyroiduk.org/if-you-are-hypothyroid/the-importance-of-vitamins-and-minerals-hypo/checking-for-b12-deficiency-and-pernicious-anaemia/
TUKOffice
Thyroid UK
in
Thyroid UK
3 days ago
How reliably does NHS retest Blood iron levels after IV Iron?
my new NHS gastroenterologist ordered my iron infusion when my GP alerted her to what they are calling complex iron deficiency blood test results, some longstanding. I was given Ferinject on April 11th. The infusion appointment letter says: the physician who is looking after you may follow up with
my new NHS gastroenterologist ordered my iron infusion when my GP alerted her to what they are calling complex iron deficiency blood test results, some longstanding. I was given Ferinject on April 11th. The infusion appointment letter says: the physician who is looking after you may follow up with
Barnclown
in
Restless Legs Syndrome
4 days ago
So many supplements!
I take so many supplements now that sometimes i feel like i'm going to rattle! 😂 I keep adding more and more so i wanted to check that i'm not messing up with timings and supplements taken together. The timings of the ones i take during the day are because of my breaks at work, so i tend to try and
I take so many supplements now that sometimes i feel like i'm going to rattle! 😂 I keep adding more and more so i wanted to check that i'm not messing up with timings and supplements taken together. The timings of the ones i take during the day are because of my breaks at work, so i tend to try and
catpurple7
in
Thyroid UK
4 days ago
Vitamin B12—Multifaceted In Vivo Functions and In Vitro Applications
Another interesting paper (already posted on PAS forum!) Parts are very easy to read - but not all. [i]Nutrients. 2023 Jun; 15(12): 2734.[/i] [i]Published online 2023 Jun 13. doi: 10.3390/nu15122734[/i] [i]PMCID: PMC10305463[/i] [i]PMID: 37375638[/i] [i]
Vitamin B12—Multifaceted In Vivo Functions
Another interesting paper (already posted on PAS forum!) Parts are very easy to read - but not all. [i]Nutrients. 2023 Jun; 15(12): 2734.[/i] [i]Published online 2023 Jun 13. doi: 10.3390/nu15122734[/i] [i]PMCID: PMC10305463[/i] [i]PMID: 37375638[/i] [i]
Vitamin B12—Multifaceted In Vivo Functions
helvella
Thyroid UK
in
Thyroid UK
7 days ago
Trazodone
Hi , after trying very hard to navigate depression without drugs I have now just started Trazodone . Taking Gabapentin successfully, only mild RL . Had every dopamine drug for many years and now completely free of them for at least 6 months . My question is although Trazodone is deemed not to affect
Hi , after trying very hard to navigate depression without drugs I have now just started Trazodone . Taking Gabapentin successfully, only mild RL . Had every dopamine drug for many years and now completely free of them for at least 6 months . My question is although Trazodone is deemed not to affect
Rubynessie
in
Restless Legs Syndrome
8 days ago
Low iron, supplementing with 3 Arrows
Hi everyone, I posted about a week ago after having iron studies done through the NHS, it came back that I wasn’t iron deficient enough to be treated by a doctor, but my levels were definitely low enough to start treatment since I’m already experiencing symptoms and don’t want to get worse….. Latest
Hi everyone, I posted about a week ago after having iron studies done through the NHS, it came back that I wasn’t iron deficient enough to be treated by a doctor, but my levels were definitely low enough to start treatment since I’m already experiencing symptoms and don’t want to get worse….. Latest
MarvelDC
in
Thyroid UK
13 days ago
Advice please - Latest Thyroid Blood Results - good results but unwell
Hello, I had new blood tests done and the results are: T4 17.9 (12-22) TSH 0.77 (0.27-4.2) T3 4.5 (3.1-6.8) Been taking 75mcgs of Levothyroxine for last 5 weeks - endo says these results are good and to stay on this dose. I have been feeling so unwell for the last week - same bouts of symptoms
Hello, I had new blood tests done and the results are: T4 17.9 (12-22) TSH 0.77 (0.27-4.2) T3 4.5 (3.1-6.8) Been taking 75mcgs of Levothyroxine for last 5 weeks - endo says these results are good and to stay on this dose. I have been feeling so unwell for the last week - same bouts of symptoms
jenny876
in
Thyroid UK
16 days ago
Iron Panel Results
I've just received the results for my blood test today. TSH: 3.46 T4: 11.5 (7.86 - 14.41) Serum Iron: 14.7 umol/L (8.8-27) Serum Transferrin: 2.9 g/L (2.2 -4) Percentage Iron Saturation: 22% Serum TIBC: 65 umol/L (45 - 70) RBC: 4.89 (3.8 - 5.8) From my research online, it seems my iron saturation
I've just received the results for my blood test today. TSH: 3.46 T4: 11.5 (7.86 - 14.41) Serum Iron: 14.7 umol/L (8.8-27) Serum Transferrin: 2.9 g/L (2.2 -4) Percentage Iron Saturation: 22% Serum TIBC: 65 umol/L (45 - 70) RBC: 4.89 (3.8 - 5.8) From my research online, it seems my iron saturation
katyy94x
in
Thyroid UK
17 days ago
B12 and Ferritin
I said I would post after my haematology consultation. I had a ferritin infusion in February after suspecting that I was ferritin/iron deficient as a result of research into ranges etc. I discovered that 30 can be regarded as ferritin deficient, a lot more than the bottom of the range 11 regarded as
I said I would post after my haematology consultation. I had a ferritin infusion in February after suspecting that I was ferritin/iron deficient as a result of research into ranges etc. I discovered that 30 can be regarded as ferritin deficient, a lot more than the bottom of the range 11 regarded as
Orchard33
in
Pernicious Anaemia Society
21 days ago
symptoms flare-up
I have been battling an iron deficiency since November, that seems to be a result of my correcting b12 deficiency with shots. I have not been taking the full recommended dose of iron until about a week ago. My ferritin is 25, which is up from 14, but still deficient. The last 3 weeks or so I have notice
I have been battling an iron deficiency since November, that seems to be a result of my correcting b12 deficiency with shots. I have not been taking the full recommended dose of iron until about a week ago. My ferritin is 25, which is up from 14, but still deficient. The last 3 weeks or so I have notice
MuppDog
in
Pernicious Anaemia Society
23 days ago
Iron and ferritin advice requested
I have recently had a full set of iron and ferritin blood tests completed and would like some advice on the numbers, please (prior to these tests, only my ferritin levels have been tested). They result from early morning fasting with no iron supplements for one week. My serum ferritin was 160 µg/L.
I have recently had a full set of iron and ferritin blood tests completed and would like some advice on the numbers, please (prior to these tests, only my ferritin levels have been tested). They result from early morning fasting with no iron supplements for one week. My serum ferritin was 160 µg/L.
MrVimes
in
Restless Legs Syndrome
24 days ago
Ferritin
I know that Ferritin is stored iron but I’m a bit confused about how Ferritin and iron correlate. Is it possible to have Ferritin in range but low iron - and what would be considered optimal Ferritin? My level has just been tested and has gone down from a stable 88 to 34 I’m sorry to be so dumb
I know that Ferritin is stored iron but I’m a bit confused about how Ferritin and iron correlate. Is it possible to have Ferritin in range but low iron - and what would be considered optimal Ferritin? My level has just been tested and has gone down from a stable 88 to 34 I’m sorry to be so dumb
Hidden
in
Thyroid UK
25 days ago
Restless legs and iron anaemia
Pronounced iron anaemia, but no possibility of iron infusion in Denmark. So I'm now taking iron tablets, but I'm not sure how much iron I should take? My doctor knows less about restless legs, about augmentation and how much iron in iron anaemia than I do!Will it be enough to take Amino Iron Ferrocel
Pronounced iron anaemia, but no possibility of iron infusion in Denmark. So I'm now taking iron tablets, but I'm not sure how much iron I should take? My doctor knows less about restless legs, about augmentation and how much iron in iron anaemia than I do!Will it be enough to take Amino Iron Ferrocel
Gibbel
in
Restless Legs Syndrome
26 days ago
Is my problem poor T4-T3 conversion also Endo recommendation please.
Hello all this is my first post although I have been a member of this group for quite a while and have taken so much advice from all the posts. For the past year I have been working on gut health and maximizing my Vitamins. I have been taking Vits – D with K2, B complex with folate not folic acid (
Hello all this is my first post although I have been a member of this group for quite a while and have taken so much advice from all the posts. For the past year I have been working on gut health and maximizing my Vitamins. I have been taking Vits – D with K2, B complex with folate not folic acid (
nannieJen
in
Thyroid UK
1 month ago
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