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AtreMorine
Has anyone tried this and lived to see if it works?,I am about to have DBS and would love to avoid it
Has anyone tried this and lived to see if it works?,I am about to have DBS and would love to avoid it
Boofish
in
Cure Parkinson's
8 years ago
What is the difference between the antibodies tested please?
Hello, I have been following a gluten free diet for three months and had a BH blood test just to see if it was working at all. I do realise it takes longer to work but just hoped something would have changed. Well it has but I don't understand why. The anti-thyroid peroxidase abs has dropped from 256.4
Hello, I have been following a gluten free diet for three months and had a BH blood test just to see if it was working at all. I do realise it takes longer to work but just hoped something would have changed. Well it has but I don't understand why. The anti-thyroid peroxidase abs has dropped from 256.4
TraceyLE
in
Thyroid UK
8 years ago
DBS
I'm preparing to undergo dbs surgery at ku med in January for pd. I'm concerned about the surgery and the after care that will be needed. Any thoughts or advice, welcomed.
I'm preparing to undergo dbs surgery at ku med in January for pd. I'm concerned about the surgery and the after care that will be needed. Any thoughts or advice, welcomed.
MammaChil
in
Cure Parkinson's
8 years ago
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Newbie............results for my daughter
Following all the fantastic advice here I have been able to advise my daughter on what to do with her vits levels, and also gluten free diet, etc etc. My question is this...........she very much wants to go a 'natural' way, and fancies trying NDT. This is rather fraught with supply issues, persuading
Following all the fantastic advice here I have been able to advise my daughter on what to do with her vits levels, and also gluten free diet, etc etc. My question is this...........she very much wants to go a 'natural' way, and fancies trying NDT. This is rather fraught with supply issues, persuading
Hidden
in
Thyroid UK
8 years ago
Neuros and movement specialist
Many pwp are dissatisfied with their specialists. Every neuro is a self proclaimed expert and the best out there! But sadly they only have a few things they can influence with pd: 1) Prescribe meds: l/d, agonists and azilect. Basically if you feel compromised and you have pd then l/d is prescribed and
Many pwp are dissatisfied with their specialists. Every neuro is a self proclaimed expert and the best out there! But sadly they only have a few things they can influence with pd: 1) Prescribe meds: l/d, agonists and azilect. Basically if you feel compromised and you have pd then l/d is prescribed and
Ozie
in
Cure Parkinson's
8 years ago
An interesting read on Botox Therapy from CurePSP. For those of you not on Facebook.
Dr. Brent Bluett Talks About Botox and Therapy For PSP Patients November 29, 2016 | By Lucas Metherall Categories: Research News Ask a Doctor: Dr. Brent Bluett on PSP by Sylvia Rupani-Smith brent-bluett-do-suit-jacket-ju6_2109Very few patients with a rare brain disease such as Progressive Supranuclear
Dr. Brent Bluett Talks About Botox and Therapy For PSP Patients November 29, 2016 | By Lucas Metherall Categories: Research News Ask a Doctor: Dr. Brent Bluett on PSP by Sylvia Rupani-Smith brent-bluett-do-suit-jacket-ju6_2109Very few patients with a rare brain disease such as Progressive Supranuclear
am2015
in
PSP Association
8 years ago
Can adrenals heal?
I was diagnosed with Hashi's 15 years ago, I'm now 62 and retired. I'm also in stage 3 adrenal fatigue syndrome (virtually no cortisol in June 2016). I've been self-navigating for the past 6 months, and have seen a LITTLE improvement in the fatigue and depression. I am able to take care of myself and
I was diagnosed with Hashi's 15 years ago, I'm now 62 and retired. I'm also in stage 3 adrenal fatigue syndrome (virtually no cortisol in June 2016). I've been self-navigating for the past 6 months, and have seen a LITTLE improvement in the fatigue and depression. I am able to take care of myself and
Klagh
in
Women's Health
8 years ago
Test results: 1st test post-NDT switch
Hi all, I have Hashimoto's Hypothyroidism and made the switch to NDT around 8-9 weeks ago after an unsuccessful year on Levothyroxine (finishing dose of 125mcg). I'm on 2 grains on Thyroid-S which I tolerate well and I've felt good, not always great, but certainly miles better than I ever felt on Levothyroxine
Hi all, I have Hashimoto's Hypothyroidism and made the switch to NDT around 8-9 weeks ago after an unsuccessful year on Levothyroxine (finishing dose of 125mcg). I'm on 2 grains on Thyroid-S which I tolerate well and I've felt good, not always great, but certainly miles better than I ever felt on Levothyroxine
hypoash
in
Thyroid UK
8 years ago
Just diagnosed
Hi I have just received my results from the endoscopy confirming celiac disease although my consultant was 95% positive I had it after the original blood tests. I would be interested to know how long it takes for people to feel better after following a gluten free diet as I have been gluten free for
Hi I have just received my results from the endoscopy confirming celiac disease although my consultant was 95% positive I had it after the original blood tests. I would be interested to know how long it takes for people to feel better after following a gluten free diet as I have been gluten free for
Di64
in
Gluten Free Guerrillas
8 years ago
Deep brain stimulation research
Hi all - I've just been browsing through Pubmed and came across this study http://www.clinph-journal.com/article/S1388-2457(16)30523-5/abstract. I can't access the full article, only the abstract that states 'ppn deep brain stimulation has emerged as a potential treatment for balance disorders'. It
Hi all - I've just been browsing through Pubmed and came across this study http://www.clinph-journal.com/article/S1388-2457(16)30523-5/abstract. I can't access the full article, only the abstract that states 'ppn deep brain stimulation has emerged as a potential treatment for balance disorders'. It
sasmock
in
PSP Association
8 years ago
bllod test results
Hi can anyone explain my blood test results :) Before I decided to ask my doctor to be tested I thought I would remove wheat/gluten from my diet as an experiment as had quite a lot of symptoms and a few getting worse this year at one point I thought I might be pregnant as I felt like I had morning sickness
Hi can anyone explain my blood test results :) Before I decided to ask my doctor to be tested I thought I would remove wheat/gluten from my diet as an experiment as had quite a lot of symptoms and a few getting worse this year at one point I thought I might be pregnant as I felt like I had morning sickness
tasha42
in
Gluten Free Guerrillas
8 years ago
Fibromyalgia pain
Hi all!! I can't take it anymore!! I have 3 children and suspect my 11 year old daughter has the condition to!! Drinking aloe vera helps with the stomach bloating!! I'm forever using deep heat and feel guilty because I can't do the things that I did with my 2 older children my son is 15 and my 1 of my
Hi all!! I can't take it anymore!! I have 3 children and suspect my 11 year old daughter has the condition to!! Drinking aloe vera helps with the stomach bloating!! I'm forever using deep heat and feel guilty because I can't do the things that I did with my 2 older children my son is 15 and my 1 of my
Hayley1983
in
Andover Fibromyalgia & ME Community Group
8 years ago
Ataxia, stomach problems and lycopene
Although i tested negative for gluten ataxia (I have "idiopathic" SCA), I am considering starting a gluten-free diet. Partly due to comments I have read on here. Quite a few people with ataxia, but not gluten ataxia, have reported only positive results after removing gluten from their diet. Somebody
Although i tested negative for gluten ataxia (I have "idiopathic" SCA), I am considering starting a gluten-free diet. Partly due to comments I have read on here. Quite a few people with ataxia, but not gluten ataxia, have reported only positive results after removing gluten from their diet. Somebody
Iain_100
in
Ataxia UK
8 years ago
New to Hashimoto's any advice welcome
I have just found out recently that when I was first diagnosed with Hypothroidism in 2010, I was actually diagnosed with Hashi's but my Dr/Endo didn't tell me :-/ So my question is what actually helps with alleviating the pain/flare ups that you people who suffer with it apart from a gluten free diet
I have just found out recently that when I was first diagnosed with Hypothroidism in 2010, I was actually diagnosed with Hashi's but my Dr/Endo didn't tell me :-/ So my question is what actually helps with alleviating the pain/flare ups that you people who suffer with it apart from a gluten free diet
Bird-Girl
in
Thyroid UK
8 years ago
Pro-biotics, anyone?
First, a blessed Christmas to all! I have been gaining knowledge from all of you for a couple of years now. You. Have. Helped. I'm on warfarin, changed my hemotologist's idea about INR (now 2.5-3.5) and bought STICKY BLOOD for all of my docs. Waiting (for what I'm not sure) to try a gluten free
First, a blessed Christmas to all! I have been gaining knowledge from all of you for a couple of years now. You. Have. Helped. I'm on warfarin, changed my hemotologist's idea about INR (now 2.5-3.5) and bought STICKY BLOOD for all of my docs. Waiting (for what I'm not sure) to try a gluten free
Hidden
in
Hughes Syndrome APS Forum
8 years ago
Coeliac disease and friendly bacteria
I'm stuck forever never knowing as I can't do the coeliac test I get that bad I collapse on the floor unconcious and the Nhs do not have a clue about coeliac disease I don't think they know what coeliac disease is half the time and their not bothered how it affects you anyway. Im being left trying to
I'm stuck forever never knowing as I can't do the coeliac test I get that bad I collapse on the floor unconcious and the Nhs do not have a clue about coeliac disease I don't think they know what coeliac disease is half the time and their not bothered how it affects you anyway. Im being left trying to
Heman69
in
Gluten Free Guerrillas
8 years ago
Im back
Just got computer up and running hope all is well. As for Aunt Bev and I we are doing fine. Heres an update , I got Aunt Bev a nuroligest hes young and full of life he wants to figure out whats going on with her. Because of her he went and got certified for what we call the chair. I dont know how
Just got computer up and running hope all is well. As for Aunt Bev and I we are doing fine. Heres an update , I got Aunt Bev a nuroligest hes young and full of life he wants to figure out whats going on with her. Because of her he went and got certified for what we call the chair. I dont know how
kryste
in
PSP Association
8 years ago
DBS followed by stroke. Dr. doesnt want to turn on DBS.
Friend had DBS. Suffered stroke and loss of left side In rehab now. She has severe dyskinesia from Parkinson's drugs which is why she had the surgery. Anyone experience this?
Friend had DBS. Suffered stroke and loss of left side In rehab now. She has severe dyskinesia from Parkinson's drugs which is why she had the surgery. Anyone experience this?
sankay
in
Cure Parkinson's
8 years ago
canker sores
So before going gluten free, I would get canker sores all the time as a kid.. I then became sick by vomiting and diarrhea and stomach bloating. So I went to the doctor and they told me 2 try a gluten free diet for 3 months. I got better and sores went away and all. They told me to stay on the diet.
So before going gluten free, I would get canker sores all the time as a kid.. I then became sick by vomiting and diarrhea and stomach bloating. So I went to the doctor and they told me 2 try a gluten free diet for 3 months. I got better and sores went away and all. They told me to stay on the diet.
kkgirl
in
Gluten Free Guerrillas
8 years ago
Week 2 post graduation
Just a quick update on my running and quick tip that helped me with my shins. As per my previous post, my first run after graduating I successfully attempted to break my 5K record, dropping full 3 minutes of my 40-minute graduation 5K. My second run was not that great, I had this pain in my shins (shin
Just a quick update on my running and quick tip that helped me with my shins. As per my previous post, my first run after graduating I successfully attempted to break my 5K record, dropping full 3 minutes of my 40-minute graduation 5K. My second run was not that great, I had this pain in my shins (shin
ench0
Graduate
in
Couch to 5K
8 years ago
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