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DBS
For those who have had dbs and had no tremor, how did the surgery help? In what ways? Did it affect swallowing, speech, walking, medication?
For those who have had dbs and had no tremor, how did the surgery help? In what ways? Did it affect swallowing, speech, walking, medication?
michaela13
in
Cure Parkinson's
9 years ago
RLS symptoms
I used to find it really hard to describe what my actual 'urge' to move my legs felt like, although after reading online I would say that since birth it has been a 'pulling' or 'tugging' feeling in my thighs. However over the past couple of days I've been feeling this creepy crawly feeling and today
I used to find it really hard to describe what my actual 'urge' to move my legs felt like, although after reading online I would say that since birth it has been a 'pulling' or 'tugging' feeling in my thighs. However over the past couple of days I've been feeling this creepy crawly feeling and today
catherinem13
in
Restless Legs Syndrome
9 years ago
Sertraline (SSRI) causing persistent IBS symptoms?
Hello! I have been suffering with constant (although fluctuating) IBS symptoms for almost 2 months now. I have classic symptoms - constant bloating from morning til night but worseing throughout the day, intermittent diarrhoea and constipation, terrible gas, almost constant cramping in my lower abdomen
Hello! I have been suffering with constant (although fluctuating) IBS symptoms for almost 2 months now. I have classic symptoms - constant bloating from morning til night but worseing throughout the day, intermittent diarrhoea and constipation, terrible gas, almost constant cramping in my lower abdomen
TillyKay
in
IBS Network
9 years ago
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'MENS' (magneto-electric nanoparticles) - the next gen of DBS?
Excerpt: "With a magnet placed over the head of each subject animal, the particles were pulled through the blood-brain barrier, where they “coupled” the externally created magnetic field with the brain’s intrinsic electric field. This enabled researchers to wirelessly connect their computers and electronics
Excerpt: "With a magnet placed over the head of each subject animal, the particles were pulled through the blood-brain barrier, where they “coupled” the externally created magnetic field with the brain’s intrinsic electric field. This enabled researchers to wirelessly connect their computers and electronics
metacognito
in
Cure Parkinson's
9 years ago
Weight gain after DBS?
I keep hearing about weight gain after DBS surgery. Anyone experience that?
I keep hearing about weight gain after DBS surgery. Anyone experience that?
BaileyT
in
Cure Parkinson's
9 years ago
Still no change, 18 days into a gluten free diet.
I have very high antibodies and TSH, 966 and over 10 and on the advice of Grey, who replied to my first post, I have been on a gluten free diet for last 3 weeks. Also I've increased my NDT dose to 3 grains from 2 and have done no exercise. Still not lost an ounce. Getting pretty fed up with all this
I have very high antibodies and TSH, 966 and over 10 and on the advice of Grey, who replied to my first post, I have been on a gluten free diet for last 3 weeks. Also I've increased my NDT dose to 3 grains from 2 and have done no exercise. Still not lost an ounce. Getting pretty fed up with all this
Runningcath55
in
Thyroid UK
9 years ago
Life with PBC
Hi again everyone, As I mentioned in a previous post, I have been reading and studying on leaky gut and gluten intolerance, as I am at a loss as to how I have this disease and am quite frankly, tired of it. No one in my family has ever had autoimmune or liver problems. Heart problems and High blood
Hi again everyone, As I mentioned in a previous post, I have been reading and studying on leaky gut and gluten intolerance, as I am at a loss as to how I have this disease and am quite frankly, tired of it. No one in my family has ever had autoimmune or liver problems. Heart problems and High blood
donna01
in
PBC Foundation
9 years ago
Dietician
Went to see a dietician a couple a weeks ago concerning my bloating, pain etc. She was very helpful although I have been on a wheat and gluten free diet for about 18months which has helped I'm know on a lactose diet. The whole thing is called FODMAP diet. The letters stand for Fermentable Oligo-saccharides
Went to see a dietician a couple a weeks ago concerning my bloating, pain etc. She was very helpful although I have been on a wheat and gluten free diet for about 18months which has helped I'm know on a lactose diet. The whole thing is called FODMAP diet. The letters stand for Fermentable Oligo-saccharides
Jude1
in
PBC Foundation
9 years ago
Sierra Farris Blog
I've seen several people mentioned how good Sierra is at DBS programming. I agree she's been doing my programming for the past 5 months and we are almost there. Here is her blog on DVS which many may find helpful. http://www.dbsprogramming.com/author/dbsprogramming/
I've seen several people mentioned how good Sierra is at DBS programming. I agree she's been doing my programming for the past 5 months and we are almost there. Here is her blog on DVS which many may find helpful. http://www.dbsprogramming.com/author/dbsprogramming/
mktbob55
in
Cure Parkinson's
9 years ago
Thoughts on DBS
https://youtu.be/7udZ5ux0dYE 88
https://youtu.be/7udZ5ux0dYE 88
openbook
in
Cure Parkinson's
9 years ago
dbs
What is DBS pl?
What is DBS pl?
konrad
in
Cure Parkinson's
9 years ago
DBS update
It's 5 months since I underwent this procedure. I was programmed by my local neuro with some good results. However at my last visit she stated that I was doing great and should wait 8 weeks for follow up. I described my off times as increasing and my gait pretty poor from 6-9pm as dismally slow.
It's 5 months since I underwent this procedure. I was programmed by my local neuro with some good results. However at my last visit she stated that I was doing great and should wait 8 weeks for follow up. I described my off times as increasing and my gait pretty poor from 6-9pm as dismally slow.
etterus
in
Cure Parkinson's
9 years ago
After RAI
Hi I had an over active thyroid with palpitations and shaking, treated with Carbinazole this affected my liver so taken off. Appointment with Endo, advised RAI. Asked if any side effects, as previously had radio active treatment (iridium implants) for cancer. Assured no side efffects. This was January
Hi I had an over active thyroid with palpitations and shaking, treated with Carbinazole this affected my liver so taken off. Appointment with Endo, advised RAI. Asked if any side effects, as previously had radio active treatment (iridium implants) for cancer. Assured no side efffects. This was January
Jacdavey
in
Thyroid UK
9 years ago
Left Leg Pain
I am a 71 year old female, diagnosed with Pd for 20 years. Three years ago, I had very successful bilateral DBS surgery. For several years I have had left leg pain. I have had several cortisone injections in L4 and L5 also in my hamstring bursa. None have improved the pain. Does anyone have any thoughts
I am a 71 year old female, diagnosed with Pd for 20 years. Three years ago, I had very successful bilateral DBS surgery. For several years I have had left leg pain. I have had several cortisone injections in L4 and L5 also in my hamstring bursa. None have improved the pain. Does anyone have any thoughts
Fancy_Nancy
in
Cure Parkinson's
9 years ago
Shingles
Hi everyone guess what happened to me i got shingles thought i had pulled my muscle at work was so painful around the neck. Next day brought deep heat and placed it around my shoulder developed a rash me in my infinite wisdom thought oh dear must be allergic to deep heat made a Dr appointment because
Hi everyone guess what happened to me i got shingles thought i had pulled my muscle at work was so painful around the neck. Next day brought deep heat and placed it around my shoulder developed a rash me in my infinite wisdom thought oh dear must be allergic to deep heat made a Dr appointment because
furzdale1
in
Lung Conditions Community Forum
9 years ago
Ritalin for gait freezing?
I've had PD for 18 years (I'm 52 now). Had DBS surgery 4 1/2 years ago. The physical symptom that still gives me the most trouble -- not helped by either the meds or the surgery -- is gait freezing, and subsequent falling. My MD just prescribed a low dosage of Ritalin for this, and I haven't filled
I've had PD for 18 years (I'm 52 now). Had DBS surgery 4 1/2 years ago. The physical symptom that still gives me the most trouble -- not helped by either the meds or the surgery -- is gait freezing, and subsequent falling. My MD just prescribed a low dosage of Ritalin for this, and I haven't filled
djbk1111
in
Cure Parkinson's
9 years ago
DBS question
I am scheduled for DBS surgery in August. Just wondering if it improved facial masks on any of you that have had the surgery. Thanks in advance for your response
I am scheduled for DBS surgery in August. Just wondering if it improved facial masks on any of you that have had the surgery. Thanks in advance for your response
BaileyT
in
Cure Parkinson's
9 years ago
Anyone here who has fixed their dry eyes by going gluten free?
I've got a few symptoms and one of them is dry eyes. I have had blood tests and an endoscopy for coeliac disease and they were negative but I was wondering whether a gluten free diet could help anyway? Thanks
I've got a few symptoms and one of them is dry eyes. I have had blood tests and an endoscopy for coeliac disease and they were negative but I was wondering whether a gluten free diet could help anyway? Thanks
Ctb567
in
Gluten Free Guerrillas
9 years ago
worn out and in pain!!
Hello ladies I am 28 years old I have endo and adenomyosis, recently I have had an ovarian cyst the burst and pre-cancerous cells removed with a loop excision from my cervix... Needless to say it's been a bit of a nightmare!! I am currently signed off work as I don't feel myself at all I feel run down
Hello ladies I am 28 years old I have endo and adenomyosis, recently I have had an ovarian cyst the burst and pre-cancerous cells removed with a loop excision from my cervix... Needless to say it's been a bit of a nightmare!! I am currently signed off work as I don't feel myself at all I feel run down
claire1987
in
Endometriosis UK
9 years ago
Right rib pain
Hi everyone, been ill now since Feb 15, right rib pain where my gallbladder was, feel sick to my stomach. I have no apppeite at all. My bowels were funny but that seems to have settled. I am so tired as well just sleeping all the time!! I have seen a specialist who said I could have coeliac and a infection
Hi everyone, been ill now since Feb 15, right rib pain where my gallbladder was, feel sick to my stomach. I have no apppeite at all. My bowels were funny but that seems to have settled. I am so tired as well just sleeping all the time!! I have seen a specialist who said I could have coeliac and a infection
Lit27st
in
IBS Network
9 years ago
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