Has anyone tried this and lived to see if it works?,I am about to have DBS and would love to avoid it
AtreMorine: Has anyone tried this and lived... - Cure Parkinson's
AtreMorine
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Boofish
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what is it
you joined today and ask about a new product. Sounds like a ad. Only been out a short time. Cost is high $170.00 US per month for the min dose. Up to $680 for the max dose.
Information from Parkinson's UK researchers:
AtreMorine is a supplement made from broad beans (Vicia faba). Broad beans can provide a natural source of levodopa, the chemical building-block that your body converts into dopamine and the 'active ingredient' found in some conventional Parkinson's medications.
Essentially, natural sources of levodopa, such as AtreMorine work in the same way as Parkinson’s medications, which work to replace dopamine and help ease symptoms. However unlike with Parkinson’s medications which are of known doses, it’s hard to control the amount of levodopa you receive with natural sources.
We would encourage anyone with Parkinson’s who is thinking about trying supplements to speak to their specialist or Parkinson’s nurse. We also urge people to be cautious when buying supplements over the internet and be aware that they are not subjected to the same careful safety testing and monitoring as approved medical treatments.
At the moment, there is no treatment available that is able to slow, stop or reverse the progression of Parkinson’s. Our new research strategy strives to bring new and better treatments to people with the condition and we are funding many projects looking into treatments that could potentially stop, slow or reverse the progression of Parkinson’s.
How does it compare to Mucuna Prureins (velvet fava bean with L LDOPA ingredients)? superjanet Boofish Bailey_Texas
Sorry, no idea. I just copied some information from the Parkinson's UK website.
have you seen the mannitol thing clincrowd pd english on youtube
isreali research just released in april2016
trying mannitol 4grams per day in coffee and on cereal,3 months in. no results yet nor do I expect any but I keep trying, no side effects
have you looked at toxicology ie have you been working with organophosates or pesticides ....giving the pattern back of toxic substances homeopathically can show the body what poisoned it and lead to reduction in symptoms ..its possible to be tested with bio resonance machines for this if you are unaware of toxins
? have you worked out the right dose of mannitol i read 10mg am and pm was the right dose and to much or to little wasnt benifical.
20mg max dose
I also read 10 mg for person weighing around 65kg, up to 20mg if heavier.
Please do not confuse "mg" with "gm"! "mg" stands for milligram and amounts to a tiny speck! A "gm" or a "g" is one gram and is about 1/30th of an ounce.
The suggested dose of mannitol (to work up to gradually) is 20 gm or three level tablespoonfuls, possibly taken in 2 divided doses. (I measured it, and there is some variation depending on the tablespoon used and how tightly packed the mannitol powder is, but one level tablespoon is about 6-7 gm. So you'll need three of these to get a full dose. One rounded teaspoon, where the mannitol is heaped up high, comes to about 5 gm. You'll need four of these.)
I used 1/2 tsp of KRATOM today and so that might be equivalent to 3-3.5 GM (powder). My tremors abated and I was amazed later in the same day. @dumpelkin, any personal experience w this product and confirmation or reference for my "conversion effort" of GM weight to TSP?
taking smaller dose 4gr due to lack of knowledge I fear all the hype with all these products. be careful.
curious, AmyI had it 2 1/2 years ago. Love it!! wish I had done it sooner AND it is even easier now!!
Are you referring to DBS or use of mannitol?
If mannitol, how much mannitol do you consume (and in what form)? Do you add it to food or take it as a supplement? What effects have you noticed?
Mannitol. It is taken as a powder dissolved in juice or in my husbands case I usually put it in his morning and evening shake. I buy it through bulksupplements.com When you register at clinicrowd.info they give you the formula for calculating how much to take based on your weight. We started at about 1/4 the dose and built up gradually but he wound up getting gassy anyway (the major side effect). He uses a homeopathic called Gasalia by Boiron that helps the gas resolve fairly quickly.
Results come slowly. Some are subtle. The first thing I noticed in my husband is more facial expression. His mood improved as well. In the last survey we did after 3 months at recommended dose, he said to me that he wasn't sure but he thought his tremor was less which I thought I was noticing also. He goes longer periods with no tremor at all (has always had the ability to stop his tremor with a short meditation or when relaxing reading or watching TV. If you are considering giving it a try, everyone keep saying have patience but it is after exercise the least expensive remedy I have seen with negligible side effects for improving symptoms and if the animal research is correct perhaps even reversing the plaques in the brain that right now scientists are thinking cause PD.
Which it? Kratom or Mannitol - lol
Mannitol--I don't know what the other one is.
DBS Have you tried mannitol?
I have not heard anything negative about DBS by anyone who has had the procedure. ( maybe that the halo hurt and also it freaked them out when they lost control of their bodies and the surgeon took over ). I do not think that is even a worry now.
Like any medical /surgical intervention there are risks HAL. People dont seem to post about them but they are real but need to be kept in perspective.
What i dont understand Boofish is why have DBS if you dont want to or at least until you feel ready. Its not inevitable, the majority of people dont have it.
I understand but have been told that It is better to do it sooner than latter because it does increase the quality of life. Like meds there are possibilities of complications but if it is time to try it. You are right with the ( why get it done if you don't want it though ).
Hal, agree
The risk of stroke is minimal, i know of two people also a few who have had complications with infections and speech problems. Just about all continue to take some medication. I have been considering it. ( Everyone thinking of the surgery needs to know these and other potential problems )
neurosurgery.ucsf.edu/index...
I have to keep reminding myself self that not everyone on this site has early onset. I run with a different group. If you have more snow on the roof than I you just might prefer not to risk it. Every body that I know who has had it done was under the age of 60.
I concur!!!
Hi ,
I had DBS in Oct 16 and lived to tell the tale, I wasn't sure I would though.. It was successful thankfully. I don't know whatAtreMorine is though sorry.
Very glad to hear that. Were you asleep for the procedure and is the Halo still painful?
I was awake for part of it and then they put me to sleep. The halo was uncomfortably only, some initial pinching and then I got used to it.
Once they gave me the meds to keep me calm, I was good really. The drilling was the worst but the rest was pretty breezy, given what they are doing. The recovery went well and I went home about 12 days afterwards.
I was under the impression that you were in and out of DBS hospitalization 2 to 3 days max. One of my PD buddies is scheduled for his DBS next month.
Are your adjustments still being tweaked and what wonderful meds did you receive to keep you calm and do you share? smile
Hmm I guess I need to look in on him before the good stuff is all gone.
I don't remember what the meds were but they worked well. I think they are pretty standard so he may be able to get some, albiet only once. lol The recovery time is pretty fluid I think with 3-4 days the minimum. Where is your buddy going to have the DBS ?
That is an excellent question. One I never thought to ask. I will have to find out.
