Although i tested negative for gluten ataxia (I have "idiopathic" SCA), I am considering starting a gluten-free diet. Partly due to comments I have read on here. Quite a few people with ataxia, but not gluten ataxia, have reported only positive results after removing gluten from their diet.
Somebody suggested that I should think about drinking LycoLife (it's a gluten-free tomato & fruit drink which contains a "lycopene" supplement).
This was the first time that I'd heard about lycopene, so I did a wee bit of research, and found this article:
In my case, this might be quite relevant. And I'm hoping that this might ring a few bells here:
I've always had stomach problems since I was a teenager. About 15 years ago, so prior to the onset of my ataxia symptoms, my GP tried to eradicate the helicobacter pylori in my stomach, using a specific drug (I forget the name of which) in conjunction with a variety of different antibiotics. The attempt ultimately failed (it is notoriously difficult to eradicate HP), so I now take a daily Lansoprazole tablet. This is a "protein pump inhibitor" that stops the production of too much stomach acid (as the HP produces lots on its own).
The fact that my symptoms appeared a few years after this may just be coincidental. And the lansoprazole/ataxia link was discounted at my very first GP consultation. But this was a GP who, at that time, new nothing of ataxia. So I'll speak to him again and the neurologist who eventually diagnosed my SCA - to see if it rings any bells.
Are there any other ataxia sufferers here, who have tested negative for gluten ataxia but who have adopted a gluten-free diet?