Experiences with

Deep freeze

What else can I do , I use a deep freeze gel but that’s not doing anything to help tonight 😢😢😢

Question is , since being on the medicine, I am constipated headaches, sickness, dizzy, tired, fed up, and now when i take my vitals, even before i take my meds in morning and eve, my bp is 102/63 my heart rate is 59 - 61, my heart rate and bp makes me so cold like a deep freeze which gives me light

Shooting left forearm pain put deep freeze on nothing had a paracetamol nothing ... any advice ?

Having been on this PMR road for almost 3 years, I have spent lots of time reading all of the helpful posts on this Forum and have received and taken some very useful advice. Initially, I thought I might be the lucky one to say goodbye to my "friends" on here after 2 years, not so!!!! and I will not

So , I have been putting up with lots of pain , horrible, while exercising again , why , well I reached a point where I was suffering so much with no energy and just feeling crap, depressed under the mental health team, I guess after looking in the mirror and not liking this terrible life, I felt I had

You’ve all given me loads of help in the past, however I am still stuck with PMR or PMR symptoms. I have been on 6mg Pred for ages, last saw Rheumatologist in April, increased methotrexate to 20mg and said he would see me some time in the future. All of this has really made no difference to my symptoms

I'm 41. Never had health issues before. I don't smoke, I used to, about 7 years ago. I don't drink. Haven't drank for ten years. I have been going to the gym weekly for 12 years, doing cross fit for the last 2/3. I woke up on May the 11th this year with a sore arm and shoulder and a bruised feeling

https://www.science.org/doi/10.1126/sciadv.ado4927?fbclid=IwY2xjawJVMGZleHRuA2FlbQIxMQABHRBDa9RJWMGOFOYxLDnqxNsFaANf9RTriEX2OOQMySm4AdwkZzAJlkgGmg_aem_C7Z_4PXuqgDEIWF8E8v8jg

As a follow up to my recent post...and to recap, 6 months into Tinnitus that started following performing at a gig with excessively loud stage volume....on Mirtazipine for 4 months (hoping to taper off in August) and 10 CBT sessions in...... I currently take care with noise, wear hearing protection

Hi all. You might remember that I recently posted about voice issues. There was a great response which I’m thankful for. However,I think I’ve realised that there are definitely two things at work: one is the PD of course and your possible solutions were pertinent here. Second though is the DBS which

Read the story : https://www.scientificamerican.com/article/new-form-of-parkinsons-treatment-uses-real-time-deep-brain-stimulation/

The new adaptive system adjusts stimulation levels automatically based on the person’s individual brain signals. https://apple.news/AGaCfygkITMytjSd7gJe2CQ

Hi, I just had DBS and am looking for a P/T that specializes in PD. I am in Northern New Jersey but it seems like all the qualified people are in NYC. TIA.

I'm scheduled for DBS surgery in June (and I'm excited I'm going to be able to get the newly approved adaptive device from Medtronic). But I have a question that my neurologists have not really been able to clarify for me, so I was hoping for some lived experience from any of you (the "hive mind").

I found a message that says I've been here more than 5 years: So I finished the book... kaypeeoh profile image kaypeeoh • 5 years ago • 5 Replies I didn't know what to expect, maybe a primer on running and PD. Lots of aphorisms similar to Just Do It and Git 'er Done. Learned that standing is

A recent study indicates that DBS may not only reduce symptoms but could also potentially slow the progression of the disease—good news for individuals with DBS and an important finding for future treatments. Rhonda L. McFleder et al., 2025. Deep brain stimulation halts Parkinson’s disease-related

https://neurosciencenews.com/fda-parkinsons-dbs-28438/

There are many of you or your loved ones who have had DBS. Your experiences are scattered around HU, and it becomes very difficult to search and refer. Please if you could share your respective experiences and current status here, it would all be at one page for reference.

I had DBS 1 and half years ago. It's been a disaster. Prior to having it I could be fairly active. I was experiencing an off period where I could hardly move. So, I had the DBS and the result was I can no longer walk, and now I have lost my voice. Has anyone experience of switching the DBS off?

I just want to share my thoughts about DBS. I’m going to be in absolute agony for 2 more weeks. My DBS equipment is implanted, but it can not be turned on for two weeks. My symptoms are now so painful and debilitating. It’s not funny. Awful painful constant dystonia! I started the process nine months