Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

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Am I crazy

Hi everyone. I am HER2+ with mets to liver and bone. After treatment liver lesions undetectable and bone is stable I have been stable with no progression...

Hi everyone. I am HER2+ with mets to liver and bone. After treatment liver les...

Onedayatatime60

•46 minutes ago

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ibrance

I’ve been taking ibrance with faslodex since 2018. I had to stop taking ibrance because of hospitalization (3) for infections that I needed my immune system to...

I’ve been taking ibrance with faslodex since 2018. I had to stop taking ibrance ...

Jewelyn

•4 hours ago

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NED/NEAD and 5-13 markers

For those of you who are NED or NEAD, what are your 5-13 tumor marker numbers? Are your numbers in the "normal" range? Have any of you been 0 (zero)?

For those of you who are NED or NEAD, what are your 5-13 tumor marker numbers? ...

Greatday2

•1 day ago

12 Replies

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where to donate unused meds

hi everyone - I recently transitioned from ibrance and exemastane to Faslodex and Perjeta Herceptin injections and now I have a lot of unused and brand new...

hi everyone - I recently transitioned from ibrance and exemastane to Faslodex an...

Georgelila

•1 day ago

11 Replies

pertinieum meds

hi. I am so nervous. They found Mets in my lining and it is causing ascites. Does anyone have any of these issues. I’m really trying to connect with someone...

hi. I am so nervous. They found Mets in my lining and it is causing ascites. Doe...

marianne88

•3 days ago

15 Replies

Does anyone have muscle and bone pain with falodex and has it helped with cancer markers??

I have been on exemethzine for 4 years and now my CA 15 is rising and was switched to falodex. I have terrible muscle weakness and bone pain. Has anyone...

I have been on exemethzine for 4 years and now my CA 15 is rising and was switch...

Mcangel11

•3 days ago

4 Replies

Joint pain

I started on an aromatese inhibitor about a year ago. At first I had some pain and weakness in my right wrist. This eventually went away. I am now having...

I started on an aromatese inhibitor about a year ago. At first I had some pain...

Suite1000

•5 days ago

20 Replies

Advice

Dear friends, the doctor recommended to do oblation on the liver, I have 2.8 cm met. If anyone has experience with this procedure, I would like to know. What...

Dear friends, the doctor recommended to do oblation on the liver, I have 2.8 cm ...

yevgeniakoretskaya

•9 days ago

5 Replies

leg and foot numbness and skin turns bright red in shower/heat

recently on Orserdu. Weird things happening. legs and feet very numb. And I have hands , feet and legs turning off color in warm shower. Feel completely...

recently on Orserdu. Weird things happening. legs and feet very numb. And I ha...

Elle713

•10 days ago

12 Replies

Bone Mets on Skull

I have new bone met on skull showed in recent brain scan. They are discussing targeted radiation but waiting on my PT scan to see if I have any progression...

I have new bone met on skull showed in recent brain scan. They are discussing t...

Elle713

•11 days ago

16 Replies

Chemotherapy holiday

Good morning to all! I was diagnosed stage 4 mbc, er+, pr+, her2 low to+, 2 years ago. I also found out last summer I have the PIK3 mutation...not much luck...

Good morning to all! I was diagnosed stage 4 mbc, er+, pr+, her2 low to+, 2 year...

Tuckermom

•11 days ago

30 Replies

Hospice

Sharing that my daughter and I are meeting with hospice for in home hospice care this afternoon. I was going to wait for one more CT scan and oncologist...

Sharing that my daughter and I are meeting with hospice for in home hospice care...

NPmary

•12 days ago

65 Replies

tumor marker levels

depends on the tumor marker test. For CEA, under 5 is normal. For CA-15, I think under 20 is normal.

depends on the tumor marker test. For CEA, under 5 is normal. For CA-15, I think...

Fiercelypink

•13 days ago

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Changing treatment drugs again …

I have been on a trial drug ( OP 1250) and Kisqali for 2 months.. and unfortunately they didn’t work..my ANC is now at 0.6 ! So I need to wait before I start...

I have been on a trial drug ( OP 1250) and Kisqali for 2 months.. and unfortunat...

Salmon4

•13 days ago

4 Replies

Does anybody get severe cramps; legs,pectoral and feet?

I have been on Ibrance for nearly 6 years. I feel I am doing well overall but I get very painful muscle cramps. I have experimented with Magnesium Oxide,...

I have been on Ibrance for nearly 6 years. I feel I am doing well overall but I ...

1horse

•14 days ago

16 Replies

Normal range for tumor markers?

Does anyone know the normal range for tumor markers - for breast cancer? Does everybody (including people without cancer) have some in their body or should it...

Does anyone know the normal range for tumor markers - for breast cancer? Does ev...

Greatday2

•14 days ago

18 Replies

Oserdu and Increase Cholestrol

I was told Oserdu can increase cholesterol. I’ve been on it two months so far and, yes, my cholesterol is high! oncologist is encouraging getting on a...

I was told Oserdu can increase cholesterol. I’ve been on it two months so far a...

Elle713

•15 days ago

7 Replies

Have Ibrance mouth sores?

I found something that works! I used a good quality tea tree oil (Do Terra metaluca) and applied it directly onto the sores before bed. Most were gone in the...

I found something that works! I used a good quality tea tree oil (Do Terra meta...

NeverOutOfTheFight

•15 days ago

2 Replies

Rising T Bili on Xeloda

Hi ladies!! my mom has been on xeloda and her T bili continues to go up last few weeks. Her last scans showed shrinking lesions on liver. Her Tumor...

Hi ladies!! my mom has been on xeloda and her T bili continues to go up last...

Flower1513

•16 days ago

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Need help with cancer pain

Hello my fellow thrivers, May I consult with you all for advice on how to manage cancer pain please? My cancer recently progressed again and the pain is...

Hello my fellow thrivers, May I consult with you all for advice on how to manag...

hopeoflife

•16 days ago

15 Replies

xeloda and radiation to liver mets

hi , anyone had radiation to liver mets while on xeloda ? Did you stop xeloda during radiation

hi , anyone had radiation to liver mets while on xeloda ? Did you stop xeloda ...

Pbura

•16 days ago

8 Replies

Ibrance and letrozole

Hi I start I brance tomorrow anyone else on Ibrance and letrozole and what are your side effects

Hi I start I brance tomorrow anyone else on Ibrance and letrozole and what are y...

2345678

•17 days ago

20 Replies

thanks for all the advice

I appreciate all the suggestions regarding reducing ANC and loved the chocolate, turkey tail mushrooms nd timing options. It appears my oncologist doesn’t love...

I appreciate all the suggestions regarding reducing ANC and loved the chocolate,...

jltorcz

•17 days ago

9 Replies

Clinical trial update

Trial Drugs: Inavolisib and Giredestrant. Today was my second set of scans (every 8 weeks) and the results of the chest CT and Bone scans were great, nothing...

Trial Drugs: Inavolisib and Giredestrant. Today was my second set of scans (eve...

Trissh

•18 days ago

11 Replies

Ibrance dose reduction

I started out on Ibrance at 125. After a few months my neutrophils weren't terrible, but borderline. I convinced my oncologist to lower to 100. Now I am...

I started out on Ibrance at 125. After a few months my neutrophils weren't terr...

Suite1000

•18 days ago

17 Replies

Taking Meds in the AM vs PM

Hi I’m newly on Kisqali and Letrozole and I am wondering if anyone has feedback about whether it seems better to take these during the day or at night before...

Hi I’m newly on Kisqali and Letrozole and I am wondering if anyone has feedbac...

CatLoverinthe206

•18 days ago

6 Replies

I am wondering again, what do those of you on kisqali do when your ANC is lower than 1?

Once again my anc is below 1. It is .93 and they don't want me to restart my kisqali yet. Tomorrow I will hear from the doctor's assistant. It is so...

Once again my anc is below 1. It is .93 and they don't want me to restart my kis...

jltorcz

•19 days ago

21 Replies

Bad weekend!

The last few days have taken alot out of me! Wednesday afternoon I slided to the bathroom floor and couldn't get up! I was weak and confused and my husband...

The last few days have taken alot out of me! Wednesday afternoon I slided to th...

PJBinMI

•19 days ago

40 Replies

Any advice for sister with MBC

My sister was diagnosed with stage4 MBC in January that spread to the bones and possible spots on liver, after successfully beating DCIS more than 15 years...

My sister was diagnosed with stage4 MBC in January that spread to the bones and ...

Sjherm

•19 days ago

31 Replies

Thank you

Thank you all for you informative replies. What a God send this forum is as we try and navigate our way through this awful situation. I just didn’t want to...

Thank you all for you informative replies. What a God send this forum is as we ...

BritSammy

•20 days ago

2 Replies

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Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

Am I crazy

ibrance

NED/NEAD and 5-13 markers

where to donate unused meds

pertinieum meds

Does anyone have muscle and bone pain with falodex and has it helped with cancer markers??

Joint pain

Advice

leg and foot numbness and skin turns bright red in shower/heat

Bone Mets on Skull

Chemotherapy holiday

Hospice

tumor marker levels

Changing treatment drugs again …

Does anybody get severe cramps; legs,pectoral and feet?

Normal range for tumor markers?

Oserdu and Increase Cholestrol

Have Ibrance mouth sores?

Rising T Bili on Xeloda

Need help with cancer pain

xeloda and radiation to liver mets

Ibrance and letrozole

thanks for all the advice

Clinical trial update

Ibrance dose reduction

Taking Meds in the AM vs PM

I am wondering again, what do those of you on kisqali do when your ANC is lower than 1?

Bad weekend!

Any advice for sister with MBC

Thank you

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