Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

6,607 members • 8,142 posts

All posts for December 2023

thank-you

Thank-you to everyone who replied to my post. You have all lifted my spirits and given me hope! So glad I found this forum.

Thank-you to everyone who replied to my post. You have all lifted my spirits and...

Dragonfighter

•5 months ago

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reduced doseage of ibrance

Hi, I saw my oncologist yesterday and she reduced my ibrance from 125 to 100 mg. This makes me very nervous, though she says there should be no reduction in...

Hi, I saw my oncologist yesterday and she reduced my ibrance from 125 to 100 mg....

Dragonfighter

•5 months ago

61 Replies

Starting Trodelvy

Good morning, Didn’t get much sleep last night because I’ve been thinking about my mom and her starting her first Trodelvy infusion tomorrow morning....

Good morning, Didn’t get much sleep last night because I’ve been thinking ab...

Maraki

•5 months ago

9 Replies

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Oncothermia

Good morning fellow warriors, I'm with lesions in vertebra and pelvis with medication as of a month. I've heard that oncothermia has very good results which...

Good morning fellow warriors, I'm with lesions in vertebra and pelvis with medi...

Tanyateresa

•5 months ago

1 Reply

Is it safe to take antibiotics while on Ibrance and Letrozole?

Good day my fellow warriors! A quick question about taking antibiotics while on Ibrance and Letrozole. I am on vacation right now and unfortunately is...

Good day my fellow warriors! A quick question about taking antibiotics while on...

Taurus28

•5 months ago

20 Replies

COVID

My husband just had a positive home covid test. My test was negative. I"ve phoned both onc and rad onc and am waiting to hear back about starting Taxol...

My husband just had a positive home covid test. My test was negative. I"ve pho...

PJBinMI

•5 months ago

15 Replies

Rads to spine scheduled

I had an appt at the Rad Center (over 50 miles away) this morning. I don't remember what it's called, but it was for a scan to set things up for radiation for...

I had an appt at the Rad Center (over 50 miles away) this morning. I don't reme...

PJBinMI

•5 months ago

9 Replies

TAPUR study

Following up on a genomics report (47 pages ! Plus 54 min consult) and came across this study (phase 2 basket trial) in the US. Essentially when exhausting,...

Following up on a genomics report (47 pages ! Plus 54 min consult) and came acro...

muzzatron

•5 months ago

5 Replies

Suggestions-major digestive issues-both "ends"

My GI tract is a mess! Blocked bowel 14 months ago landed me in the hospital and led to removal of a bit of the first part of the small intestine and the...

My GI tract is a mess! Blocked bowel 14 months ago landed me in the hospital an...

PJBinMI

•5 months ago

15 Replies

Distractions 101

It’s me Beth- just had my 3rd scan in 2 weeks. 1) Head and neck for DFCI study of familial CHD mutation, 2) then a brain MRI due to new headaches and...

It’s me Beth- just had my 3rd scan in 2 weeks. 1) Head and neck for DFCI study o...

Bettybuckets

•5 months ago

45 Replies

Family Christmas dinner

Today was the only time we could get four households together for a holiday meal, 7 of us, hubby & me, my brother-in-law, two daughters, 1 son in law and 1...

Today was the only time we could get four households together for a holiday meal...

PJBinMI

•5 months ago

17 Replies

anyone else feel wierd after discontinuing Piqray / Faslodex?

Hi all, my docs took me off Piqray and Faslodex a week ago. Since then I’ve had worse night sweats and diarrhea then when I was on the drugs! Plus a lingering...

Hi all, my docs took me off Piqray and Faslodex a week ago. Since then I’ve had ...

LDR1

•5 months ago

4 Replies

Reacting to piqray.

Don’t want to worry anyone, but just wanting to know if anyone has had this reaction to Piqray. I’m into my second week. On Piqray and Fulvestrant. At first I...

Don’t want to worry anyone, but just wanting to know if anyone has had this reac...

Timtam56

•5 months ago

41 Replies

innumerable brain mets Help!!

Hello. I hope this post finds everyone well. So I just had an MRI yesterday that found innumerable small brain Mets. In retrospect I probably had a few...

Hello. I hope this post finds everyone well. So I just had an MRI yesterday th...

Ticket123

•5 months ago

29 Replies

Wine & Verzenio

Can anyone tell me can I drink a glass or two of wine while taking Verzenio?? Not on a every day bases but like for christmas eve party and christmas day...

Can anyone tell me can I drink a glass or two of wine while taking Verzenio?? No...

Justme153

•5 months ago

13 Replies

Hotatlanta

I think I spelled it correctly. Anyone heard from her lately? Please let us know if anyone has heard from her. Blessings all, Hannah

I think I spelled it correctly. Anyone heard from her lately? Please let us k...

Lilywallytootsie

•5 months ago

6 Replies

how long for Radiation to work?

I hope this message finds everyone well and we all have some positive news during these holidays coming up❤️🙏🏻 my mom has had radiation on her T4 which...

I hope this message finds everyone well and we all have some positive news durin...

Maraki

•5 months ago

9 Replies

Capiverstib

Anyone heard of or started this new FDA approved targeted therapy? What is your experience or understanding?

Anyone heard of or started this new FDA approved targeted therapy? What is your ...

Yikes123

•5 months ago

9 Replies

Verzenio and vertigo

Any comments on verzenio and vertigo/dizziness? About to start it after Ibrance fail, and no one (Dr or pharmacist) mentioned dizziness. I have a history of...

Any comments on verzenio and vertigo/dizziness? About to start it after Ibrance ...

mizcaliflower

•5 months ago

10 Replies

Update: post-radiation and New meds

Hello Friends and warriors! Dragonfly is updating the latestest treatment... Radiation to the sacrum and L5 (10 treatments) ended on Dec 4th but since then...

Hello Friends and warriors! Dragonfly is updating the latestest treatment... Rad...

Dragonfly2

•5 months ago

10 Replies

Seeking advise

Hi all, I have been diagnosed with MBC HER2 negative (mets to bones and lymph nodes). I am awaiting a brain CT scan and also another lymph node biopsy. Can...

Hi all, I have been diagnosed with MBC HER2 negative (mets to bones and lymph no...

Amk31

•5 months ago

13 Replies

tamoxifen

I am about to start tamoxifen. Anything you’ve exsperienced? I had DCIS , lumpectomy , not sure I really need it. I do not deal well with side effects. Thank...

I am about to start tamoxifen. Anything you’ve exsperienced? I had DCIS , lumpec...

Ldonovan481

•5 months ago

12 Replies

Skin Rash of little itchy bumps

Hello! Quick question - has anyone on Ibrance and Letrozole developed a skin rash of small random bumps that are itchy? I have been on my lovely “cocktail”...

Hello! Quick question - has anyone on Ibrance and Letrozole developed a skin ra...

CalGal56

•5 months ago

15 Replies

brain mets

My mom had a 13 mm brain met in July . She had the single beam one day radiation treatment and it continues to shrink. She started on evermolimus I know...

My mom had a 13 mm brain met in July . She had the single beam one day radiation...

Flower1513

•5 months ago

8 Replies

Trodelvy update

Having super good run with this drug going onto round 10 or 11 - CEA normal and CA15 down another 4% all other liver and general chemistry normal. I wanted to...

Having super good run with this drug going onto round 10 or 11 - CEA normal and ...

Iwasborntodothis

•5 months ago

36 Replies

Travel insurance- Canadians

Hello everyone - hope you are all well. Has any Canadians been able to get travel insurance with MBC? What company and was price exorbitant? I currently...

Hello everyone - hope you are all well. Has any Canadians been able to get trav...

Onedayatatime60

•5 months ago

2 Replies

Need to Change Treatment

So I have progression after two years on Ibrance and Letrozole. I have an opportunity to participate in a clinical trial in my town in which I would be...

So I have progression after two years on Ibrance and Letrozole. I have an oppor...

Trissh

•5 months ago

17 Replies

Question re: Ablation of Liver Mets

Hello! I've had liver mets - in addition to bone - for a little over a year. When I was scheduled for a biopsy of the liver (a year ago), I asked my doc if...

Hello! I've had liver mets - in addition to bone - for a little over a year. W...

Gallivanter

•5 months ago

7 Replies

MBC since 2019

Wrote lengthy message about stopping Enhertu after 20 successful infusions because I now have ascites. Did anyone see that message about where do I go from...

Wrote lengthy message about stopping Enhertu after 20 successful infusions becau...

Samsontheodore

•5 months ago

15 Replies

Podcast I stumbled upon. I am wondering if RSO may be something I should look into.

https://podcasts.apple.com/au/podcast/episode-390-five-years-cancer-free-metastasized-breast/id1166029008?i=1000623917729

https://podcasts.apple.com/au/podcast/episode-390-five-years-cancer-free-metasta...

ForestHermit

•5 months ago

1 Reply

Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

All posts for December 2023

thank-you

reduced doseage of ibrance

Starting Trodelvy

Oncothermia

Is it safe to take antibiotics while on Ibrance and Letrozole?

COVID

Rads to spine scheduled

TAPUR study

Suggestions-major digestive issues-both "ends"

Distractions 101

Family Christmas dinner

anyone else feel wierd after discontinuing Piqray / Faslodex?

Reacting to piqray.

innumerable brain mets Help!!

Wine & Verzenio

Hotatlanta

how long for Radiation to work?

Capiverstib

Verzenio and vertigo

Update: post-radiation and New meds

Seeking advise

tamoxifen

Skin Rash of little itchy bumps

brain mets

Trodelvy update

Travel insurance- Canadians

Need to Change Treatment

Question re: Ablation of Liver Mets

MBC since 2019

Podcast I stumbled upon. I am wondering if RSO may be something I should look into.

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