Good morning,
Didn’t get much sleep last night because I’ve been thinking about my mom and her starting her first Trodelvy infusion tomorrow morning.
I’m so worried. I’m trying to be hopeful and I find that one day I am and the other I’m in complete despair.
I hope this drug works for her for a long time and helps her tumors shrink and not become painful. She’s had to do radiation a couple times and it’s been rough.
Please pray for my mom ❤️🙏🏻
Thank you guys.
hi Maraki, I sure hope it works for your mum for a long time… but if it doesn’t then there is lots of hope than another drug will be tried. Don’t lose hope… she needs you to be strong just at this moment of uncertainty… but I know that can be hard..so we are all with you..
❤️🙏🏻❤️🙏🏻❤️🙏🏻
This is a roller coaster ride and we’ve all experienced good days and bad days but the only way to know if a drug will work is to try it. It’s hard to be a bystander but you have a valuable role. The power of positive thinking has benefits for us all. I’m not sure if I can find the link right now but there’s been articles published online about the placebo effect of positive thinking.
When I was first diagnosed in 2015 and I was being prepped for radiation to my pathological hip fracture and T7 the technician told me she was glad I was holding onto positive thoughts because they’ve noticed that positive people do better. That’s an anecdotal statement but there have been others who’ve made the connection too.
My mother had Alzheimer’s and my father was unwell too and they couldn’t cope with the thought that they’d outlive me so I was in the habit of assuring them that everything was okay. Sometimes, it might not really have been okay because my first line failed and I needed more radiation to my skull and the second line was IV chemo because the cancer wasn’t under control and it was progressing quickly. And then I was started on my third line in mid 2016. As of my last review this week I’m still on the third line and the oncologist I saw was very positive. She thinks my cancer is aging out with me and it’s growing ever slower and in fact in many places it’s still shrinking.
My parents didn’t outlive me so their fears were not realised but they could have been. There’s no benefit in thinking about what could have been. It is what it is and there’s little we can do to change that but we can live our best life by looking for the positives. And you can help your mother live her best life by helping her to see the positives. You have to see them yourself first though. I’m not going to tell you not to worry because of course we worry about the unknown but I am going to suggest that you hold off worrying until you’re sure you know what you’re worrying about. Trodelvy has helped control the disease with minimal, and some have said, no side effects. That’s the holy grail of treatment. If it’s worked for others why can’t it work for your mother? There’s no reason it can’t and every reason that it will.
Try and get out of the cycle of despair, if you can. Your mother’s life is obviously limited right now but that can change very quickly and even a small improvement should be celebrated.
I really hope and pray that we will all find the treatment that works best for us. There’s more treatments than there were when I first started and that’s less that 9 years ago. My oncologist assured me I have many options left and more are coming up.
Stay strong Maraki! You can do this and your example will help your mother cope.
All the best
Kerry
Wonderful well written post! Also wanted to congratulate you on your recent great scan results. May it continue for a long time. Take care and Happy holidays.
Sending hugs and prayers for good results with this new treatment for your mom.
Hi Maraki, I hope the new treatment works well for your Mom. Take comfort in knowing there are many very effective ones out there and more being developed. I too worry about my Mom changing meds. My Mom’s my best friend and I feel that whatever she is going through I am also.
She’s been on fulvestrant and a trial for about six months now but may need to change treatment soon. My Mom’s lab results are excellent but her Oncologist is watching a met in her liver. She’s not sure if there was slight growth and is waiting to get the radiologists report.
It’s good my Mom’s Onc is on top of any slight changes to ensure my Mom gets the best care to prevent progression. I’m trying to be positive and not let changes in meds get me anxious but of course that’s easier said than done ❤️.
I wish you and your Mom the best and I hope her new treatment works well for her for a very long time. Just remember to care for your health too and know your Mom has many good options for treatments. Changes can be positive in this regard.
Sending prayers to you and yours. Wishing you a beautiful Christmas season 🎄💕
April
Sending many prayers!
I did find a couple of the articles I referred to earlier.
mayoclinic.org/healthy-life...
journal.razavihospital.ir/a...
The second article is a long read so probably best to make yourself a coffee before starting!
I hope you find something useful in these and there are a lot more available if you seek them out.
Mom's loving daughter😇🙏 I do pray your mom's tumors will not only shrink, but will be undetectable( Amen) . I also pray that your moms pain will be history (Amen). 🙏😇. GOD bless you, your mom, and your loved ones🙂. I pray this Christmas will be the best ever, and may the 2024 New year bring all that you both hope/pray for. I do send you many virtual hugs Keep the faith 😇🙏 XoXo
Tumor Markers Trodelvy 
First Trodelvy Infusion
Questions on Liver Biopsy and Trodelvy
Will Start Xeloda Soon
