Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

6,607 members • 8,142 posts

All posts for June 2023

Great neurology appt

The oncology palliative care NP that I see occasionally suggested I be evaluated by a neurologist as I expressed concern about my neuropathy, balance and...

The oncology palliative care NP that I see occasionally suggested I be evaluate...

PJBinMI

•11 months ago

15 Replies

Enhertu

Didnt know that your cancer could change from estrogen pos. Her2 neg..to a triple negative. This of course requires new lines of meds to be used. Enhertu is...

Didnt know that your cancer could change from estrogen pos. Her2 neg..to a tripl...

Tazi127

•11 months ago

20 Replies

granny

Has anybody just been on Anastrazole

Granny333

•11 months ago

12 Replies

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Capecitabine(Xeloda) dose change

I have been on Capecitabine for about 9 months at a dose of 2000 mg per day (2 weeks on 1 week off). My scans have shown good results with the last scan...

I have been on Capecitabine for about 9 months at a dose of 2000 mg per day (2 w...

DinNorCal

•11 months ago

15 Replies

MBC and NED status

Most recent scan showed no evidenced of disease. when i was first diagnosed my oncologist told me that MBC is not curable...am I getting bogged down with...

Most recent scan showed no evidenced of disease. when i was first diagnosed my ...

SpongebobMom

•11 months ago

30 Replies

Calling all Elacestrant (Orserdu) users how are you doing? How are your scans please share.

Hoping to hear how others are doing on Elacestrant! Please share your experience.

Hoping to hear how others are doing on Elacestrant! Please share your experience...

DDIL1

•11 months ago

10 Replies

long timers on Ibrance

hello everyone I just wanted to see if there are any long timers out there who have done well on Ibrance and/or lupron letrozole/ how their experience has...

hello everyone I just wanted to see if there are any long timers out there who h...

Jenniferp2122

•11 months ago

66 Replies

CEA tumor marker

hello everyone- just curious to see if your CEA tumor markers get checked with your oncologists. My dads tumor markers have been fluctuating between 2.7 to...

hello everyone- just curious to see if your CEA tumor markers get checked with y...

Jenniferp2122

•11 months ago

12 Replies

Kawartha Retreat

Hellooo beautiful ladies! I have been asked by a few ladies and for those of you still interested, I’m thinking of putting down a deposit on this gorgeous...

Hellooo beautiful ladies! I have been asked by a few ladies and for those of y...

SunShineEveryDay

•11 months ago

5 Replies

Very promising drugs to shrink tumors!

Newest article on shrinking tumors. Thought I would share with all of you! :)...

SunShineEveryDay

•11 months ago

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Enhertu next treatment??

I have been posting a lot lately. Thank you everyone for all your help. Some history…..I have lobular MBC. I have Mets in stomach lining, liver, and hip...

I have been posting a lot lately. Thank you everyone for all your help. Some ...

Ticket123

•11 months ago

17 Replies

Ribociclib and Fluvestrant

Hi everyone, I had 2 Fluvestrant injections 6 days ago and started taking 600mg of Ribociclib 5 days ago. The rash on my upper arms, shoulders, chest and back...

Hi everyone, I had 2 Fluvestrant injections 6 days ago and started taking 600mg ...

Purpleflag

•11 months ago

3 Replies

lobular and orbital eye Mets

Hi all I know I saw a post on here a while ago about lobular MBC and orbital eye Mets. Just curious if anyone had been screened for it and how it was done and...

Hi all I know I saw a post on here a while ago about lobular MBC and orbital ey...

DDIL1

•11 months ago

3 Replies

Med change

Hi everyone, so it looks like I’m up for another med change. ( second one in 2 months 😳). My question is will I have to wait to get first med out of my...

Hi everyone, so it looks like I’m up for another med change. ( second one in 2 ...

Ticket123

•11 months ago

5 Replies

Opening Nights and Curtain Calls

This came to me after a meditation session. Stay Fierce fellow warriors. Opening Nights and Curtain Calls This is not a dress rehearsal. This is the...

This came to me after a meditation session. Stay Fierce fellow warriors. Ope...

MiataMama

•11 months ago

14 Replies

Break from ibrance

Evening all I have thankfully been Ned since November 2021. My oncologist has today suggested that we consider me taking a break from ibrance in the near...

Evening all I have thankfully been Ned since November 2021. My oncologist has ...

Archiedog

•11 months ago

8 Replies

Beautiful Thrivers

How is the beginning of summer?Have you been driving and your mind starts thinking I will not see this Beautiful scenery one day And you tear up. It goes...

How is the beginning of summer?Have you been driving and your mind starts think...

Hidden

•11 months ago

59 Replies

Radiation Mets to bones

hi friends! I was wondering if anyone can help me out here… I have breast cancer Mets to bones and I had 10 rounds of radiation 2 weeks ago! During that time I...

hi friends! I was wondering if anyone can help me out here… I have breast cancer...

DianaSav

•11 months ago

5 Replies

covid

hi. Has anyone got Covid gone off ibrance and feel worse. I am so tired it’s nuts. My blood work today was good although my tumor markers went up 3 points but...

hi. Has anyone got Covid gone off ibrance and feel worse. I am so tired it’s nut...

marianne88

•11 months ago

12 Replies

About to start Orserdu (elacestrant)

Hi all, After 3.5 years of no evidence of disease on Ibrance/letrozole, my bone mets (and one breast tumor) progressed due to my cancer acquiring the ESR1...

Hi all, After 3.5 years of no evidence of disease on Ibrance/letrozole, my bone...

MJ_Michigan38

•11 months ago

22 Replies

Gastric cancer

I have had MBC since September 2019, being in remission for several months. In May I found out that the cancer is in my duodenum and stomach lining plus my...

I have had MBC since September 2019, being in remission for several months. In M...

BlessedMimi

•11 months ago

26 Replies

CA 27-29 has your tumor marker test ever gone into normal range

Update to my last update: the people who ran my blood said they mixed up the vials of blood with another patient. They offered to retest me at no expense. I go...

Update to my last update: the people who ran my blood said they mixed up the via...

CatLady2022

•11 months ago

16 Replies

Rare great news

My daughter, a teacher, called earlier this week to talk about having to decide between being at school for the final day of the kids being there or...

My daughter, a teacher, called earlier this week to talk about having to decide ...

PJBinMI

•11 months ago

9 Replies

The Hole is Closed!

On 6 April, the interventional radiologist slipped with the instrument to ablate a malignant tumor in my liver and punctured a hole in my colon! My health...

On 6 April, the interventional radiologist slipped with the instrument to ablate...

jersey-jazz

•11 months ago

37 Replies

BC metastasizes to dermis

Hi everyone, I would love to hear if any of your diagnosis’ are a local recurrence presenting itself as a lesion in your dermis as metastatic disease. As I...

Hi everyone, I would love to hear if any of your diagnosis’ are a local recurr...

CalGal56

•11 months ago

8 Replies

Someone was talking about skin cancer

and my friend had recently told me this concoction got rid of hers. I am not a doctor, I have not used this but my friend swears by it. One aspirin...

and my friend had recently told me this concoction got rid of hers. I am not a ...

Godbeforme

•11 months ago

14 Replies

Phase 3 SONIA Trial Challenges the Routine Practice of Using a 1st Line CDK4/6 Inhibitor in HR+, HER2- MBC

Apologies for the length, but I thought you might find this interesting! from:...

Apologies for the length, but I thought you might find this interesting! from...

Bestbird

•11 months ago

24 Replies

Trodelvy Update

I started my second cycle of Trodelvy ( 2 weeks on one week off) yesterday. I am going to tell you that the first round was not easy because I guess this drug...

I started my second cycle of Trodelvy ( 2 weeks on one week off) yesterday. I a...

Iwasborntodothis

•11 months ago

26 Replies

can someone help with some experiences with Doxil?

Hello everyone, My mom has been in Xeloda for a year and it just stopped working.ok she had her first round of doxil this morning and will be on it until it...

Hello everyone, My mom has been in Xeloda for a year and it just stopped worki...

Maraki

•11 months ago

2 Replies

Afinitor side effects

I have been in treatment for breast cancer since 2006 and have done the drill - lumpectomy, lymph nodes removal, chemo, radiation, herceptin, Arimidex for six...

I have been in treatment for breast cancer since 2006 and have done the drill -...

Whitaker

•11 months ago

9 Replies

Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

All posts for June 2023

Great neurology appt

Enhertu

granny

Capecitabine(Xeloda) dose change

MBC and NED status

Calling all Elacestrant (Orserdu) users how are you doing? How are your scans please share.

long timers on Ibrance

CEA tumor marker

Kawartha Retreat

Very promising drugs to shrink tumors!

Enhertu next treatment??

Ribociclib and Fluvestrant

lobular and orbital eye Mets

Med change

Opening Nights and Curtain Calls

Break from ibrance

Beautiful Thrivers

Radiation Mets to bones

covid

About to start Orserdu (elacestrant)

Gastric cancer

CA 27-29 has your tumor marker test ever gone into normal range

Rare great news

The Hole is Closed!

BC metastasizes to dermis

Someone was talking about skin cancer

Phase 3 SONIA Trial Challenges the Routine Practice of Using a 1st Line CDK4/6 Inhibitor in HR+, HER2- MBC

Trodelvy Update

can someone help with some experiences with Doxil?

Afinitor side effects

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