Enhertu

[Tazi127]

Didnt know that your cancer could change from estrogen pos. Her2 neg..to a triple negative. This of course requires new lines of meds to be used. Enhertu is now my new med. I have mets to bone. Pet scan to reveal how this is working at end of june. I was trying to respond to a post...whose name i cant find now that im typing. Hope this goes to that person who was concerned about enhertu. Im on it every 3.5 weeks. Side effects for me are extreme fatigue, nausea. Then aftee 7 days i go back to feeling pretty normal. Best wishes. Tazi

[Andersl]

Hi thank you for sharing how you're doing in Enhurtu. I am changing from Kadcyla to Enhurtu in the next few weeks.

[Hopeful4Cure]

I thank you too to let us all know, as with any medication we are grateful for those that share their experiences. Please do let us know how your scan comes out. Yeah, crazy that our original dx can change and that i do not get. I am supposedly hr/pr + and her2 low. I would really like an updated test of some sort. I just might be starting enhertu too. Just waiting for blood markers and scan with doc. Blessings

[Jhshl512]

Hi Tazi

I’m going on my 3rd round of Enhertu. How do you deal with the nausea? I’ve tried every medication and nothing seems to make it better. Hoping for a better tomorrow.

Thanks

Lori

[Totheriver in reply to Jhshl512]

I am not on that drug but I deal with nausea to and I find gravol works the best for me.

[Jhshl512 in reply to Totheriver]

thank you. I just ordered some gravol. Fingers crossed

[Totheriver in reply to Jhshl512]

I hope it works for you.

[Hopeful4Cure in reply to Jhshl512]

Hi Lori, you might not see my recent post, but I fast prior to enhertu and have no issues with nausea. Peppermint oil also helps IF you feel a bit weezy, mixed with a carrier oil and rubbed on your belly/stomach area.

[Jhshl512 in reply to Hopeful4Cure]

Thank you for your advice. I’ll try anything

[Jennifer5249]

Hi! I also went from Er+ to triple negative. I have now had 10 cycles of Enhertu (every 3 weeks) will be going this week for cycle 11 . My liver mets have decreased in size, my bone mets are stable, liver enzymes are in range and tumor markers have gone down. I get 3 pre-meds before infusion - 2 for nausea and some steriod pills. They work well - have energy for first couple days then when steroid wears off I'm tired but increase after awhile. My nails are messed up though but better that then increased mets to liver!! Good luck with your treatments.

Jennifer

[CharaMasiakou in reply to Jennifer5249]

Hello Jennifer,I deal exactly the same with you.

Fingers crossed 🤞 for you and to all of us.

[CharaMasiakou]

Hello there!I am in Enhertu from September 2022. I have met bones and liver.

I take the medicine every 3 weeks. What about you?

Me too I have fatigue, nausea. At the first week because I take big doses of Dexaton for 5 days I have too much nerves, I cannot sleep, i feel very excited. Then at the second week I feel too much fatigue, nausea, vomets. At the third week I feel normally. And then its time again for therapy.

Please tell me more about your feelings.

Kisses

Chara

[Bettybuckets]

oh jeez that sound’s extremely difficult so I sure hope scans show it is working for you

[Ntash01]

Its so scary that things change like that! Hoping your scans come back good… I know how horrid the waiting time is. I’m getting my own scan results Friday - and I’m bracing myself for change, I just know it!

[Hopeful4Cure in reply to Ntash01]

Hey Ntash01, How did your scan come out? I think and worry about you and your status too.

[Ntash01]

Hey Hope…. I was just about to respond to your Ehertu post… freaky🤣

I think about you always too! We’re now on different treatment - we kissed goodbye to Vino around same time. I’m literally in the waiting room waiting for my first Taxol. I shall update & respond to your update soon x

[Hopeful4Cure in reply to Ntash01]

Hi NTash, I don't remember you telling me about going to taxol. I thought you were going to be on enhertu. I hope that your treatment went well. Blessings

[Ntash01 in reply to Hopeful4Cure]

Hey Hope

Oh gosh - did I not! I probably wrote it somewhere in a chat and got confused!

How are you doing? It’s been a week since first infusion. I’m going to have a break now as I’m going away, onc wanted me to have at least one infusion before. Infusion was ok, I was there for ages as I tried the cold cap - apparently hair is going so figured I should try and see if I can keep some as I can afford to lose 30% and it not be too noticeable. I don’t think I’ll be able to wear a wig! Is there a possibility you will lose hair on your new line? Is your new treatment IV? I’m having a port fitted when I return, I’m happy for it as my vein was badly bruised after first treatment. Anyways everything ok thus far, I’m hoping for more of the same moving forward as I still want to work and carry on as ‘normal’ 🙃. I don’t know if I mentioned, I’m also on blood thinners - injecting myself every night in my stomach as I have a blood clot in my neck.. never rain but pours right!

Take care Hope x

[Hopeful4Cure in reply to Ntash01]

I hear you loud and clear Nat. I had to wait a week to my neutrophilos to get up to at least 1.70, as they were .79 before they I could have the second cycle of enhertu. Again, I just do not understand why you were not able to do that instead of taxol. Side effects of enhertu could lose hair and or thinning. Nothing yet and actually, I had a lot of thinning on vin and xeloda. Yep, I read about your clot in the neck. Do they know what caused it? Anyone that may be reading this that is on enhertu, I had my second cycle on the 18th of July. All counts were great and neutro's up to 4.60. Doc wanted to give me an injection for 3 days after that is a gcsf to stimulate bone marrow so my neutro's don't get too low. It is a man made synthetic med and i don't want it. I looked up food that will do it naturally and if that does not work, I guess I will try it. He says that the cycle is every 3 weeks NOT 4. Well, markers did go down and we will see again after 2nd on the 11 of August. I do take the steriod/nausea during my iv treatment and that is it. I do not take it for the next 3 days, as I have no pain or nausea. Plus, I did not have the 30 minute iv on the 2nd one, I asked for it to be longer, as long as it would still be just as effective and the nurse said ok, still effective even if you take the iv longer. I would rather sit there longer than have it pumped in me in a half hour. I drive a scooter to my sessions and need to be sure I don't have any immediate side effects. Dexamethesone I think is the correct spelling of the meds during and they gave me 3 for the following 3 days, but i have not had to use them. The foods that will help stimulate bone marrow to help with neutro's includes many that I just have not thought of. Such as cooked clams, but just don't want to risk those right now, with the climate issues. Fish, I love cod, beans, BROCCOLI, spinach, red meat/pork because we need the iron, protein, b12 and folate. I do not eat turkey or chicken anymore because of the bird flu all around the world and I do not want to eat diseased meat even if it is cooked. Anyway, lentils, pears, apples, beets, specifically greek notfat milk eggs, nuts, seeds and cottage cheese. I also eat a lot of berries too. Black, blue and rasberries on a daily basis and try to eat corn to keep me regular after treatment. One more thing I wanted to add is that you can use lemongrass oil or lavendar to the carrier of almond to help drain your arm. I have been using it whenever I lift something I should not have, since I had so many lymphnodes taken out of that arm and then just jiggle the bottom. If you can find lynfase tea that helps too with flusing the lymphatic system. Keep you chin up Nat and I hope this treatment works wonders for you and everyone else that is in the same boat. Blessings

[Gypsypublisher in reply to Hopeful4Cure]

Thank you for this! My first infusion is on August 21st.

[Hopeful4Cure]

Hello Tazi127! How are you doing? Are you still on Enhertu? Have you had a scan to see if it is working and or checked your tumor markers? I hope all is positive. Blessings