BC metastasizes to dermis: Hi everyone... - SHARE Metastatic ...

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BC metastasizes to dermis

CalGal56 profile image
8 Replies

Hi everyone,

I would love to hear if any of your diagnosis’ are a local recurrence presenting itself as a lesion in your dermis as metastatic disease. As I have shared, I have been diagnosed with BC 3 times. First was triple negative at 44 with a lumpectomy, chemo and radiation. I was cancer free for 17 years. It came back as a second primary in the same area of my breast as HR+ HER2- . Six years later I have had a local recurrence which presented in the dermis right next to the mastectomy scar. The mastectomy was nipple sparing DEIP Flap reconstruction. (I thought it was a pimple HAH!) It was less than 1cm with no lymphovascular involvement, no Mets showed up in bones or other organs in my body on CT or PET or ultrasounds. I had a lumpectomy because this was in a mastectomy breast and they did not want to deconstruct the DEIP Flap reconstruction and the tumor was so small they could remove it with a lumpectomy. And they got clear margins. They immediately put me back on an aromatase inhibitor (Letrozole) with 15 days of targeted radiation (skin primarily) and Ibrance. Has anyone else had their BC metastasize to their dermis or epidermis? If so I would love to hear about your treatment thus far and how you are fairing. I have been told my case is very rare.

Thanks for your feedback!

Blessings, Mona

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CalGal56 profile image
CalGal56
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8 Replies
chemohawk profile image
chemohawk

What an unfortunate happening. I have not experienced such, but I have similarly lived a long time after my first diagnosis of stage 2B... ER+, HER2-. All my best wishes for you.

CalGal56 profile image
CalGal56 in reply tochemohawk

Thank you chemohawk ~ I appreciate your words of encouragement and best wishes 😊

Flowerfriend profile image
Flowerfriend

Hi Cal Gal. I too have Breast Ca met to my skin, diagnosed in 2020 by my dermatologist. It is in the clavicle area, where a it was mistaken for scar tissue from the removal of a positive lymph node in 2015. I originally was diagnosed with breast CA with met in 2005. After a mastectomy, chemo, and 10 years of anastrozole, I was switched to tamoxifen in 2015.

Subsequent to the discovery of the breast CA met to my skin, scans indicated met to bone and liver also, which had been in remission since 2005 treatments. I have had various other treatments since and the skin tumor is now less prominent. Progression elsewhere has been gradual.

breast cancer met to skin in my left clavicle area after the biopsy
CalGal56 profile image
CalGal56 in reply toFlowerfriend

Hi Flowerfriend,

Thanks for sharing your journey - 18 years - inspiring Flowerfriend truly INSPIRING - thank you 🙏🏻 . I am so grateful for your words. It is a tough walk through life with Mets; when I read posts on this site I am awed by the undertones of strength, fortitude and the love of life written between the lines ❤️. There is no denying fear and mental and physical exhaustion are lurking there as well, but I feel (ironically or not) most of us exude what is truly the energy of life and living - what an inspiration that is! Blessings 🌻

LDR1 profile image
LDR1

Hi CalGal56 , like you I had a recurrence appear as a tiny pimple-like lump right on top of my mastectomy scar. Scans showed a positive lymph node on the other side of my torso as well, which triggered the MBC diagnosis. I had minor surgery on both sites and targeted radiation on the lymph, but it regrew, so we did a larger ancillary lymph node dissection which did the trick … then it crept over to my liver. Sneaky! Still feeling fine though, and was inspired by your Camino post, that’s a dream of mine too!☀️

CalGal56 profile image
CalGal56 in reply toLDR1

Thanks LDR1 for sharing your story. It always helps me to hear other people’s experiences when they relate to my life experiences. I have my first follow up scans on July 5 since the diagnosis. 🤞🏻🙏🏻🤞🏻 no matter the outcome I remain positive. I have always been a positive person, why change now? Positivity is in my DNA 🧬 😊. Go for the Camino. It was a big decision for me but in the end I just simply could not say no 😉. One of the ladies on this site mentioned the Facebook Group which I joined and it has been wonderful. Then a friend sent me this link about another Camino, Camino del Norte and a woman who did it solo - what an inspiration!

facebook.com/groups/5447641...

So I say go for it!! 🥾🥾⛪️🥾🥾

NPmary profile image
NPmary

I am sorry you didnt get replies to this post. I know of others with skin mets but they had mets elsewhere as well. Your presentation is certainly rare. Hoping you never get it in 'vital' organs - though skin is vital to me! Wish you the best.If any admins are reading CalGal56 does not have a follow button!

CalGal56 profile image
CalGal56

Thanks NPmary. I have my first follow up CT scans on July 5 post surgery and radiation. 🤞🏻🙏🏻🤞🏻. I am staying very positive no matter the outcome. For me this is the only way, I have been like that my whole life, why change now, right? It’s in my DNA “positivity that is” 😊.

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