Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

6,607 members • 8,142 posts

All posts for March 2023

can’t eat

I’m on Kisqali and exemestane and can’t taste most food. Everything else either tastes like chemicals or something equally awful. The bottom line, I’m not...

I’m on Kisqali and exemestane and can’t taste most food. Everything else either ...

kkrouse

•1 year ago

15 Replies

heparin gel on cape

hi Lovelies, has anyone heard what dowse is best for heparin gel which I hear is made up at harbour pharmacy in Florida( compounding pharmacy) My onc wants...

hi Lovelies, has anyone heard what dowse is best for heparin gel which I hear ...

Bettybuckets

•1 year ago

2 Replies

Starting Xeloda soon

I am a rare case for Johns Hopkins. Dx de novo ER/Pr +, Her2 - almost 8 years ago. Two very tiny liver mets only. Did extremely well and achieved NED status...

I am a rare case for Johns Hopkins. Dx de novo ER/Pr +, Her2 - almost 8 years a...

MeeyaNicole

•1 year ago

14 Replies

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Subtype Switch

Has anyone experienced a switch in their subtype? I went from ER+PR+HER2- to TNBC/HER2Low. Curious as to others experience with this and treatment....

Has anyone experienced a switch in their subtype? I went from ER+PR+HER2- to TN...

Dancer1000

•1 year ago

5 Replies

Ca 27.29 test

My Ca 27.29 went from 45 to 67 and that makes me nervous. I have been stable for 36 months and now I’m worried about progression. I’m on Ibrance and...

My Ca 27.29 went from 45 to 67 and that makes me nervous. I have been stable fo...

tdrurool

•1 year ago

15 Replies

Starting Enhurtu

My Xeloda run lasted for 18 months. I am HR+, HER2 (low) with brain and bone mets. My next treatment will be Enhurtu and it starts next week. Would be grateful...

My Xeloda run lasted for 18 months. I am HR+, HER2 (low) with brain and bone met...

ndastrogal

•1 year ago

16 Replies

What time to take meds?

I have been reading/studying all types of non conventional cancer treatments to combo with traditional treatments (suffering from ILC ER+/PR+ HER2-). I was...

I have been reading/studying all types of non conventional cancer treatments to ...

ba5083

•1 year ago

30 Replies

Questions on Liver Biopsy and Trodelvy

Greetings all, Coming to the list today with two questions. 1. I have been scheduled for a liver biopsy. Never had one before so I am interested in any...

Greetings all, Coming to the list today with two questions. 1. I have been sc...

CincinnatiExperience

•1 year ago

4 Replies

Xeloda

I start xeloda tomorrow. Are the side effects worse than ibrance?

Antares12

•1 year ago

12 Replies

Caris profiling

Hi I just found out that my doctor ordered a Caris technologies molecular profile of my liver biopsy. In reading about it, it is supposed to analyze the...

Hi I just found out that my doctor ordered a Caris technologies molecular prof...

Pbsoup

•1 year ago

22 Replies

Rant! Rant! Rant!

It’s hard to talk about cancer because there are so many things people do differently in treatment, so many choices we make. I don’t get offended much but...

It’s hard to talk about cancer because there are so many things people do differ...

CatLady2022

•1 year ago

23 Replies

New liver Mets😢

Diagnosed 2014 ER positive breast cancer, mastectomy RHS chemo and 5 years on aromasin. 2020 diagnosed Mets in sternum, ribs and spine 10 rounds of radiation...

Diagnosed 2014 ER positive breast cancer, mastectomy RHS chemo and 5 years on ar...

Julesdubai

•1 year ago

13 Replies

Hello eyebrows, my old friend

I don’t quite know how to put this, or where this post will end up. I have had super thin/missing eyebrows since iv chemo in 2016. Was on Arimidex follow up...

I don’t quite know how to put this, or where this post will end up. I have had ...

Aquamoron

•1 year ago

22 Replies

Thanks for the recommendations for my sore hand!

Thank you for all the suggestions for my hands! My husband is going to the grocery store later today and I'm going to give him a list! He's doing all the...

Thank you for all the suggestions for my hands! My husband is going to the gro...

PJBinMI

•1 year ago

8 Replies

Bone pain

Hello everyoneI'm 53 and have triple negative metastatic bone cancer. Found out when my femur fractured last October. I'm on Xeloda. My bones in hip and knee...

Hello everyoneI'm 53 and have triple negative metastatic bone cancer. Found out ...

luxie69

•1 year ago

9 Replies

Xeloda causing hand redness and extreme tenderness ... playing phone tag with onc's nurse

I am frustrated and feeling more vulnerable and overwhelmed than I've felt during most of my 19 year journey with MBC. On day 5 of 7 days off Xeloda, second...

I am frustrated and feeling more vulnerable and overwhelmed than I've felt durin...

PJBinMI

•1 year ago

18 Replies

Elacestrant

Anyone in this treatment? Pretty new stuff. Thanks.

ndastrogal

•1 year ago

12 Replies

Lost my dear mom last year October

I lost my mom ladt year October.She was on ibrance for 2 years. Lasr scan was good but had some issues with lungs. She had plural effusion. Very frequently...

I lost my mom ladt year October.She was on ibrance for 2 years. Lasr scan was ...

fine1

•1 year ago

18 Replies

One week supply of Verzenio 150 mg if anyone can use this?

Hello ladies, Just wanted to off an unopened week supply of twice a day Verzenio 150 mg. Let me know and I can send it to you. Take care, Colleen

Hello ladies, Just wanted to off an unopened week supply of twice a day Verzeni...

USIrishcolleen

•1 year ago

1 Reply

Sugar & Tumor Markers

Has any one ever heard of sugar causing a rise in tumor markers?

JustmeMary

•1 year ago

10 Replies

Beautiful Thrivers

Been quite on this site How are of you? I just had my 3 month meeting with uncolgist Nothing as changed in size. I work my 8 hour shift..walking picking...

Been quite on this site How are of you? I just had my 3 month meeting with uncol...

Hidden

•1 year ago

15 Replies

Nail discoloration on verzenio and letrizole.

I’m concerned that maybe I have melanoma under my fingernail to calm my fear of melanoma, does anyone else have fingernail discolorations?

I’m concerned that maybe I have melanoma under my fingernail to calm my fear of ...

CatLady2022

•1 year ago

4 Replies

Fulvestrant side effects

Just wondering whether anyone on fulvestrant alone has experienced any of the potential side effects listed for this drug? Not the injection itself but...

Just wondering whether anyone on fulvestrant alone has experienced any of the po...

valentinecalico

•1 year ago

21 Replies

Carboplatin

Had a good year on Taxol and it knocked my CA15 down to almost normal but its creeping back up and my PET shows new activity. We discussed a ton of options...

Had a good year on Taxol and it knocked my CA15 down to almost normal but its cr...

Iwasborntodothis

•1 year ago

2 Replies

Diagnosed with DCIS, but haven’t heard that in months.

the medical community breast cancer

Ldonovan481

•1 year ago

7 Replies

Ibrance

thanks to all that posted! Seems we all received an education from this request. I am so glad to be part of this group!! Hugs and prayers to you all.

thanks to all that posted! Seems we all received an education from this request....

Sharon0122

•1 year ago

1 Reply

Burning in back shoulder area.

Has anyone experienced a burning feeling in your back shoulder area? I have noticed it for about 3 months. I am on my 6th cycle of Ibrance and Letrozole.

Has anyone experienced a burning feeling in your back shoulder area? I have noti...

Mushroomqueen

•1 year ago

5 Replies

Financial aid

What is the process foe getting Ibrance free.? It was so easy to get free Verzenio, income level was only criteria. I will start Ibrance after my chemo is...

What is the process foe getting Ibrance free.? It was so easy to get free Verze...

Bonnie1942

•1 year ago

5 Replies

Ibrance

does anyone know the difference in treatment between Ibrance 125, 100, and 75? My dr changed me from 125 to 100 and I didn’t know til I got my order this...

does anyone know the difference in treatment between Ibrance 125, 100, and 75? M...

Sharon0122

•1 year ago

40 Replies

Pleural Effusion

I live in the UK. Mbc diagnosed in August 2022, not been diagnosed with cancer before. I have mets to lungs which has caused a pleural effusion. In November...

I live in the UK. Mbc diagnosed in August 2022, not been diagnosed with cancer ...

Ashtead2

•1 year ago

9 Replies

Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

All posts for March 2023

can’t eat

heparin gel on cape

Starting Xeloda soon

Subtype Switch

Ca 27.29 test

Starting Enhurtu

What time to take meds?

Questions on Liver Biopsy and Trodelvy

Xeloda

Caris profiling

Rant! Rant! Rant!

New liver Mets😢

Hello eyebrows, my old friend

Thanks for the recommendations for my sore hand!

Bone pain

Xeloda causing hand redness and extreme tenderness ... playing phone tag with onc's nurse

Elacestrant

Lost my dear mom last year October

One week supply of Verzenio 150 mg if anyone can use this?

Sugar & Tumor Markers

Beautiful Thrivers

Nail discoloration on verzenio and letrizole.

Fulvestrant side effects

Carboplatin

Diagnosed with DCIS, but haven’t heard that in months.

Ibrance

Burning in back shoulder area.

Financial aid

Ibrance

Pleural Effusion

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