Elacestrant: Anyone in this treatment... - SHARE Metastatic ...

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Elacestrant

ndastrogal profile image
12 Replies

Anyone in this treatment? Pretty new stuff. Thanks.

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ndastrogal profile image
ndastrogal
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12 Replies
Ludog profile image
Ludog

Yes, my partner began it one week ago. No side effects so far.

Nocillo profile image
Nocillo in reply to Ludog

Would you mind telling us your partner’s history and why Elacestrant was prescribed?

Ludog profile image
Ludog in reply to Nocillo

10 years out, still on Zometa and Fulvysnat (sp?), had a bone scan last Dec - first one in 5 years as she doesn't like scans and found new tumor growth on 'sit bones' on left side. (She only has bone mets, no soft tissue mets). First, the oncologist suggested one of three kinds of chemo ( no chemo to date!) and also did genetic markers and found that there are 2 markers that are positive. So, this just as Orsurdu was approved. Interesting timing and very lucky really. Hope this helps?

Nocillo profile image
Nocillo in reply to Ludog

Thank you.

Pbsoup profile image
Pbsoup in reply to Ludog

How is she doing 3 months in? Does it seem to be working? Thanks!!!

fancydog profile image
fancydog

I had a long discussion with my Onc last week about exactly how this drug works and could it be for me. Well, it is not for me now, but could be in the future if there is progression on Faslodex. She told me she has started one patient so far on it and they are still waiting for it to arrive. The manufacturer is just now getting up and running. She said when first starting it a fair amt of people experience some nausea but as they continue it the nausea usually resolves

NShaft profile image
NShaft

I’ve been on it 3 days so far. I had been on endocrine therapy but developed the ESR1 mutation. Slight nausea shortly after I take it but that’s it so far.

HbbM profile image
HbbM in reply to NShaft

hi NShaft, how’s it going so far?

NShaft profile image
NShaft in reply to HbbM

So far not too bad. Still a little queasy now and then but not too bad. I feel better than I did on Ibrance/Letrozole.

HbbM profile image
HbbM in reply to NShaft

that’s good to hear! I think it’s next for me. Results came back I have the ESR1 mutation. Hope next scans are good for you.

DDIL1 profile image
DDIL1 in reply to NShaft

hi! I’m starting my 2nd bottle wondering how this drug has been working g for you and if you had scans yet?

NShaft profile image
NShaft

I had scans last week. They showed stable with some improvement. I’ll take that! My tumor markers stayed about the same at 35.

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