Halaven: I was diagnosed with MBC in... - SHARE Metastatic ...

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Halaven

Waffles1 profile image
13 Replies

I was diagnosed with MBC in March of 2021. I am currently on Halaven which is my fourth line of defense. Hopeful!

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Waffles1
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13 Replies
2Hopeful profile image
2Hopeful

I had 12 cycles of Halavan back in 2015. It was the easiest chemo drug I’ve taken. Really had no side effects and hair grew back some while I was taking it. Then was switched to tamoxifen for about 4 years and now Ibrance and Letrozole the past 2 years. Staying stable. Scans again in August. I hope you will do well on Halavan.

Waffles1 profile image
Waffles1 in reply to 2Hopeful

Thanks for replying! Glad you are having success. Anne

Mumberly profile image
Mumberly

Welcome to this supportive group. I was diagnosed in June 2021 and found the link to this group back in January.

It’s the best. I check it every day and even if there isn’t something relevant to my situation, there’s always a story of hope.

And when there is something relevant, it’s great to learn and/or be able to help someone else through our experience.

All the best on your new meds

Kim

Nocillo profile image
Nocillo

Love your picture! Good luck on your new treatment.

NPmary profile image
NPmary

Hoping for a long progression free time for you.

Georgiamjb profile image
Georgiamjb

Wishing you the best! Great pic!

Bettybuckets profile image
Bettybuckets

Never heard of this treatment? How is it for you? I think I will have cape up next.

Waffles1 profile image
Waffles1 in reply to Bettybuckets

It has very few side effects for me. My tumors have stabilized. Fingers crossed!

mariootsi profile image
mariootsi

Beautiful photo! Wishing you success on your treatment!

Photo-Bug profile image
Photo-Bug

I noticed this was quite a few months back. Are you still on the Halaven?Did you have any problems with fevers?

After infusion #2 of cycle 1,I ran a temperature of 102 for just 1 day. The oncology criteria says to go to the ED when it is greater than 100.4. Four days later I was released from the hospital and in worse shape than when I went in. Do you have any ideas on how to avoid the fever?

I hope you are doing well.

Thanks

Sharon

Waffles1 profile image
Waffles1 in reply to Photo-Bug

Hi Sharon

Yes, it happened only once. My temp was also 102 and I had pretty bad chills. It was gone the next day. My doc did labs and tested for Covid, flu etc and could not find anything. I’m pretty sure it was a Halovan side effect. Glad to hear your feeling better.

Anne

Photo-Bug profile image
Photo-Bug in reply to Waffles1

Anne,Thanks for the reply. The hospital did all of those tests, too. I have had a 1 day fever from vaccines and some of my other drugs, also, so that's why I thought it was the Halaven.

Tomorrow is #2. 🤞it doesn't happen again.

Thanks again for your time.

Sharon

Hopeful4Cure profile image
Hopeful4Cure

Hello Waffles1! How are you doing regarding halaven (erulbine)? Did it work for you? THank you in advance for your reply.

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