Faslodex

[marianne88]

Hi ladies. So I have been on ibrance and faslodex for almost 5 years with small issues with fatigue. But this month the shots did me in 4 days after taking them. The fatigue was so bad I couldn’t even get out of bed. Has anyone had this happened. Feeling a little better today which is a week after shots but last week was awful. Thanks. Marianne from Boston ❤️

[jersey-jazz]

Interestingly, I experienced exactly the same level of exhaustion after my very recent treatment of Faslodex. I went to bed and stayed there for a day or more. That is not usual for me. Extenuating circumstances ere that I was traveling solo all over Scotland and England for a month in a hire car, tending to the business of mourning three deaths in the family and one of a friend and of visiting old friends and family. Then, my brother;s partner and I drove from NJ to Maine and back to scatter some of my brother's ashes. Faslodex may have been the straw that broke the camel's back.

[marianne88 in reply to jersey-jazz]

🥰🥰

[LadyKatarina]

I found that not all "fulvestrants" are created equal. Are you really getting the brand name pf Faslodex? My clinic would switch around the generic brands--determined by what the purchasing department ordered! Some of us had a bad rxn to one brand--so they got rid of it. And I became just exhausted after they purchased a brand with preservatives in it--you will know that one because it does not have to be refrigerated. I ended up making an Excel sheet of what I had been given (had to call the clinic pharmacist for that info--the nurses do not log it), and requested one that I seemed to tolerate. They would not get me the name brand--even tho I have heard that some clinics do--and possibly my insurance would have paid for it. Ask or take the package insert and keep track! Best to you!

[Hotlantaphatz in reply to LadyKatarina]

Wow I will check. Did not know there is a generic!

[LadyKatarina in reply to Hotlantaphatz]

Yes, as soon as the AstraZeneca patent ran out in Spring of 2019, the market was flooded with generic fulvestrants. I found a website that listed ALL of them! Many on the FB boards post the best generic brands to get of anastrozole, letrozole, etc.--so it makes sense that the fulvestrant generics would be different as well--and not quite like the brand name. An oncologist I interviewed at an NCI cancer center said that fulvestrant was the best e-blocker. Best to you!

[jersey-jazz in reply to LadyKatarina]

Thank you for that very interesting bit of information. I chalked it up to the new nurse that gave the infusions for the reason for the swelling and soreness that lasted for days. I will try to remember to find out what product they are using and if it has been changed.I really appreciate all the invaluable lessons I've learned from our special, elite forum.

[LadyKatarina in reply to jersey-jazz]

I did the very same thing the first time I had an injection that was painful--told my onc that nurse needed retraining! Then the next two months they just got worse--by the 3rd one I had a red spot and that had never happened before. When I told my onc she said that I was not the only one with complaints and pains! They never bought that brand again. It was Mylan. They also got one from Fresenius that had preservatives--and that one caused brain fog for almost two weeks until my body cleared it. The nurses at the infusion center seemed to understand that--preservatives in other injection meds were not tolerated either. Sometimes it is difficult to be the guinea pig for all of this product testing! Why us??!! Best to you!

[Hotlantaphatz]

OMG marianne88! I too had the worse reaction after my June 6th injections. Just feeling like my old self! I let my onc know about the reactions.