Be Careful with Exemestane: I do not... - SHARE Metastatic ...

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Be Careful with Exemestane

bankusboysmom profile image
7 Replies

I do not mean to scare anyone, or pretend that I know everything, but for those starting exemestane I want to let you know what happened to me. I was put on Afinitor 7.5 and it did so well, my onc upped me to the 10mg. I thought all was going well, until I woke one morning with a headache. The headache got worse, and never went away, over the course of a couple of days. I decided, on my own, that I would go off all my meds and take a break for a short time. I called my onc's office to let them know. Within a few minutes, my onc called and told me to go the ER immediately. I almost didn't go...it was only a bad headache. Within a few minutes of arriving, all hell broke loose. My blood pressure was 250 over 90! Long story short, Afinitor and Exemestane were to blame. I know everyone reacts differently, but please watch your blood pressure and be careful with these two.

Melinda

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bankusboysmom
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Oganesian profile image
Oganesian

Thank you for sharing, Melinda!

I got off of Ex this Tuesday (5 day trial) while waiting for Afinitor to arrive. I didn't sleep for 5 nights, my heart was about to explode, with daytime anxiety and hot flashes. My onc switched me to Xeloda, to start next Monday.

Best wishes,

Zhanna

bankusboysmom profile image
bankusboysmom in reply toOganesian

I, too, start Xeloda if a few days. Best wishes to both is us😊

Oganesian profile image
Oganesian in reply tobankusboysmom

For the first time, since 2014 (BC stage 1), I am energized and ready for the challenge Xeloda! I ordered PurOrganica Urea 40% Foot Cream today, just in case I get the skin side effect. (don't touch my hormones, pharma!)

Best wishes! Talk to you soon. :)

Timtam56 profile image
Timtam56

Thank you always for warnings like this. Although I'm not on either. It's always so good to know things.

MyMiracle13 profile image
MyMiracle13

Thanks for sharing your experience.

8576 profile image
8576

Thanks for posting this experience. Always good to know what can take place. I like Sandra's reply about this. These are powerful drugs.

Cheers, June S.

MaryCos profile image
MaryCos

Wow! So glad you are okay!!!!

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