NEAD! : I have had a number of scans in... - SHARE Metastatic ...

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NEAD!

BluHydrangea profile image
40 Replies

I have had a number of scans in the last few weeks. The docs that write the scan reports can be frustrating in what they choose to say or not say. Oncology team was unsure about some areas that were Mets when I was initially diagnosed in bone- hip and scapula. I went over the images with my Med Onc and it seems like those lesions are healing! Celebrating with some Chardonnay tonight before I go back on Ibrance and won’t feel like drinking alcohol. I have been off Ibrance because of surgery in March. Yippee! No Evidence of Active Disease. I’ll take it!😀😀😀

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BluHydrangea profile image
BluHydrangea
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40 Replies
Corgi3 profile image
Corgi3

Congratulations ❤ That's wonderful news! SO happy for you!!🥰Bev

Sunnydrinking profile image
Sunnydrinking

Fantastic news - go celebrate 🥂

Valisa profile image
Valisa

Definitely worth celebrating! 🍷 Enjoy the good news!

mariootsi profile image
mariootsi

Wonderful!

Mary115 profile image
Mary115

Am smiling right now with your news and for you..

Praising profile image
Praising

Mine just looks at the report. I’m frustrated my last bone scan said mild improvement? How do I know about the lesions if they are gone? Glad your Dr does. I’m going to ask at next scan the radiologist. Are you on Ibrance, Xgevia?

BluHydrangea profile image
BluHydrangea in reply to Praising

Exemestane and Ibrance 15 cycles

Praising profile image
Praising in reply to BluHydrangea

Hi. I’m on exemestane as well. Any side effects? Weight gain? From either? I have very low neutrophils from Ibrance. Delayed 2 weeks last cycle. Ugh. Have you? That concerns me.

BluHydrangea profile image
BluHydrangea in reply to Praising

Weight gain? Who can tell if it’s quarantine or the meds. Yes, 5 pounds heavier! I have not had to delay treatment, but that is fairly common side effect.

debbiedo2063 profile image
debbiedo2063

Wow that’s fantastic news, enjoy your celebration. XxxDebra

Arisgram profile image
Arisgram

Yay you!!!! Here's to sustained NEAD!!

Teddielottie profile image
Teddielottie

Fabulous news! Enjoy! x

Staysha profile image
Staysha

Celebrate!! Wonderful news!

What fantastic news. It always brightens my day when I hear NEAD. Long May it continue for you.Clare

Winner123 profile image
Winner123

Congratulations, enjoy, celebrate, fantastic news. Brilliant. Then focus on your supplements and protocol to stay NED! So pleased for you. X ♥️

Fighteragain18 profile image
Fighteragain18

I never had problems either Love my wine lol

AvidBooklover profile image
AvidBooklover

Celebrate! NED is a wonderful letter combo!

R7777 profile image
R7777

Thats absolutely brilliant! Congratulations and enjoy!! 🌸Can I ask what did you do to achieve NEAD? 🙏🏻 I have the mets at the same place.

Also EP+Her2- Thank you

BluHydrangea profile image
BluHydrangea in reply to R7777

Well, I just happened to decide to retire right before I was diagnosed. My mother was ill and I was going to care for her. She passed 2weeks after I put papers in to retire……. But, my stressed level after retirement is much lower!

I do Reiki( long distance) and Tapping, and use medical cannabis for sleep.

My big heavy hitters are Ibrance 125 and exemestane!

❤️

Wonderful news. Enjoy your wine and have nice thoughts. Best wishes. Cheryl

Dogmomtocockers profile image
Dogmomtocockers

Great news!

Justme153 profile image
Justme153

HIP HIP HURRAY!!!!!🎉🎊🍷 So Happy for You!!

8576 profile image
8576

Wonderful news. Yes enjoy that wine. I agree about the doctors who read the scans. However, I now think reading scans isn't a perfect science and can be difficult. Never the less it is good to be aware of the reports.

Cheers, June S.

love2golfwell profile image
love2golfwell

So happy for your good news! Enjoy that glass of wine! Hoping for continued good news for you.

ChathamLady profile image
ChathamLady

You go girl! Congratulations!

Thatflowerlady profile image
Thatflowerlady

Enjoy your drink , I was the same when taking ibrance I really didn’t care for alcohol.

Joannaaaa profile image
Joannaaaa

Delighted to hear your good news

Brooks225 profile image
Brooks225

Great news!

SeattleMom profile image
SeattleMom

HOORAY INDEED!! 🍾 💗💗

Ardie1970 profile image
Ardie1970

That is fantastic! So happy for you!!!

MaryCos profile image
MaryCos

YAY!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

viennagirl profile image
viennagirl

I am so happy for you BluHydrangea!😀

Karen2235 profile image
Karen2235

Fairly new to the group and just learning the acronyms. NEAD and NED..... I hope to be able to report that one day! I have my first appointment with my oncologist today after starting treatment to see if there is any improvement or at least no worsening. Fingers crossed for a good result because I am not feeling very positive.

BluHydrangea profile image
BluHydrangea in reply to Karen2235

Hi Karen— welcome to this great group!! NEAD— no evidence of active disease— they can still see lesions on my bones- they are healing or changing now.

It takes a bit of time for all of us to adjust to this diagnosis and the treatments and all the procedures and terms. What an education we are getting first hand!

Wishing you all the best success with treatment! We are here to support you!❤️

RLN-overcomer profile image
RLN-overcomer

👍😀👍😀C-E-L-E-B-R-A-T-E

BluHydrangea profile image
BluHydrangea

Thanks to everyone for all the love! Back to work now!❤️

Congratulations 🎈🍾🎉!!! Enjoy every moment 🙏❤️🙏

Karen2235 profile image
Karen2235

Sigh of relief. My results were good. No increased growth in bone metastasise and reduced size of a couple of spots on my liver. I feel so much more positive and hopeful now.

Tam-56 profile image
Tam-56

Great news! Meds are working!

Maludagui profile image
Maludagui

Enjoy 🌺❤️😍

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