Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

6,607 members • 8,142 posts

All posts for September 2019

Ibrance and pain

I am on ibrance. I have been for about a year and a half. Lately,I am having pain in my lower back after walking short distances and sometime pain in joints...

I am on ibrance. I have been for about a year and a half. Lately,I am having ...

neosha

•5 years ago

9 Replies

Memory books; letters to family for after I pass on (which I hope is a long time)!

Hi: I know like concerting my VHS movies to the cloud; that I’ve put off for 20 years as well as making scrapbooks; I’ve wanted to write special letters to my...

Hi: I know like concerting my VHS movies to the cloud; that I’ve put off for 20 ...

Bailey3266

•5 years ago

12 Replies

Learning experience

I've had an interesting experience which upset me quite a lot to start with but I thought I'd share it with you. My son who is 21 was home from the states for...

I've had an interesting experience which upset me quite a lot to start with but ...

Julie2233

•5 years ago

72 Replies

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Has anyone experienced increasing joint pain ?while on letrozole and Ibrance

I have pain walking ( hip pain)and also have a tendon problem in my l foot. Am wondering if it is the impact of meds ...particularly the letrozole or evolution...

I have pain walking ( hip pain)and also have a tendon problem in my l foot. Am w...

equavel

•5 years ago

19 Replies

Radiotherapy fatigue

Hi ladies Just wondering how long it can take to feel normal(ish) after radiotherapy...I had sabre radiotherapy in July and I’m still wiped out I managed to...

Hi ladies Just wondering how long it can take to feel normal(ish) after radiothe...

Barbteeth

•5 years ago

11 Replies

Continue teaching while on Ibrance?

I am 48 and will be starting Ibrance and Faslodex soon. During IV chemo in 2017, I was able to keep working as a high school teacher with only one trip to the...

I am 48 and will be starting Ibrance and Faslodex soon. During IV chemo in 2017...

Sushi6

•5 years ago

24 Replies

Best Medicine There Is!

I was having a rough morning with side effects from my meds, but pushed on to go flower girl dress shopping with my daughter and 2 granddaughters. What a...

I was having a rough morning with side effects from my meds, but pushed on to go...

Survivornow

•5 years ago

15 Replies

Inbrance

Hi all. I’m not sure how to take this. Saw my oncologist yesterday and she let me drop my ibrance from 100mg to 75mg for awful fatigue. She said that it is as...

Hi all. I’m not sure how to take this. Saw my oncologist yesterday and she let m...

marianne88

•5 years ago

8 Replies

Travel Insurance Refused

Well, I'm not a happy bunny. Gone onto Insurancewith.com the specialist breast cancer travel insurance site and I've been refused cover. I'm confused! I know...

Well, I'm not a happy bunny. Gone onto Insurancewith.com the specialist breast ...

Mindysooty

•5 years ago

42 Replies

Any1 experience bowel & urinary tract neuropathy after chemo & what helped you? Asking for friend who "can't feel anything down there" EOM

Thanks for any help you can give! God bless and heal us all in Jesus name, amen!

Thanks for any help you can give! God bless and heal us all in Jesus name, amen...

Godbeforme

•5 years ago

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SSDI Questions

I know we have several people who have researched the SSDI qualification & application process in this online community. I hope you can help me. I am...

I know we have several people who have researched the SSDI qualification & appli...

hopenowandtomorrow

•5 years ago

18 Replies

Metastatic breast cancer

Sending prayers and positive energy to your Mum! She’s got this 🙏

earthwindandfire

•5 years ago

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ANASTROZOLE 1 MG TABLET

Has anyone tried this as alternative to Letrozole; my joint pain is debilitating at times (typically the week off Ibrance)? My ONC said there is another one to...

Has anyone tried this as alternative to Letrozole; my joint pain is debilitating...

Bailey3266

•5 years ago

13 Replies

Palliative Care

Has anyone experienced palliative care. I think I need help with cognition, my extreme debilitating side-effects (musculoskeletal) if I/F combo (which is...

Has anyone experienced palliative care. I think I need help with cognition, my...

Bailey3266

•5 years ago

7 Replies

Frankinsense Update

Well I never. Further to my post below and because the positive response thought Id have a little look. Read this link ladies.......

Well I never. Further to my post below and because the positive response though...

Mindysooty

•5 years ago

49 Replies

Plans to go to India but I am nervous

Hi guys need advise about traveling. One of our close friends is getting married in India. I have talked to my oncologist about going and I have the O’K but...

Hi guys need advise about traveling. One of our close friends is getting married...

Gaily71

•5 years ago

17 Replies

Membendazole

Hi ladies Now the wedding is over I’ve decided to take the membendazole for a month to see how I cope then perhaps add Metformin...these are the COC drugs I...

Hi ladies Now the wedding is over I’ve decided to take the membendazole for a mo...

Barbteeth

•5 years ago

21 Replies

Good news 😄

My mums responding really well to taxol it’s good news all round!! 😄 her liver mets have shrunk a lot can barely see them on the scan 😄😄 xxxxx

My mums responding really well to taxol it’s good news all round!! 😄 her liver ...

Nat1990

•5 years ago

21 Replies

Flu jab

I am due to have a flu jab on 26th Sept. I have 2 questions about the timing. I have just started a short course of steroids for a cough - 10 days only. I...

I am due to have a flu jab on 26th Sept. I have 2 questions about the timing. ...

risingwaves

•5 years ago

28 Replies

Ct scan results!

Please pray for my mum today.. she has the results of her ct scan.. I’m feeling hopeful as tumour markers have came down from 1818 and as of yesterday they are...

Please pray for my mum today.. she has the results of her ct scan.. I’m feeling ...

Nat1990

•5 years ago

19 Replies

Immunotherapy

I’ve been on Ibrance since October 2018. I have possibly had some progression so my oncologist is considering trying me on Immunotherapy, which has recently...

I’ve been on Ibrance since October 2018. I have possibly had some progression so...

Topaz_77

•5 years ago

31 Replies

UPDATE - First Progress Report

Stable, no progression, slight shrinkage on chest wall 👊💪. So now I have something to compare Im introducing a couple of supplements to see what difference...

Stable, no progression, slight shrinkage on chest wall 👊💪. So now I have some...

Mindysooty

•5 years ago

33 Replies

The Artist

I asked for a sign from God to give me a hint on what I can do to feel better. In a short time there was a knock at the door. It was a lady taking a census....

I asked for a sign from God to give me a hint on what I can do to feel better. ...

The-artist

•5 years ago

6 Replies

Miranda and Ben on their honeymoon

They’re in the Lake District Pic of them on Helvellyn Barb xx

Barbteeth

•5 years ago

21 Replies

Need a Xeloda buddy to bounce some side effect ??’s with

Hi, I am just now at the 3 1/2 year mark. Recurrence in April 16 after stage 2B in 1999. MBC with METS TO BONES ONLY SO FAR (skull,spine,pelvis,mandible)...

Hi, I am just now at the 3 1/2 year mark. Recurrence in April 16 after stage 2B...

BeckyHobson

•5 years ago

27 Replies

Wondering

Just wondering.. hi all it’s been awhile since I have posted anything but I check in to see how everyone is....I do have a question to ask...for the last year...

Just wondering.. hi all it’s been awhile since I have posted anything but I chec...

jtgmom

•5 years ago

9 Replies

How often do you see your oncologist if having chemo privately at home

I am having weekly chemo at home but have also been seeing oncologist weekly. Just wondering if this is normal. Seems a bit over the top but I have only been...

I am having weekly chemo at home but have also been seeing oncologist weekly. Ju...

BangorBelle56

•5 years ago

2 Replies

Meds to boost neutrophils

As some of you may know I have never been able to take Ibrance as directed. I have to wait three weeks each cycle to get them up to 1.5. I just took a month of...

As some of you may know I have never been able to take Ibrance as directed. I ha...

Hidden

•5 years ago

57 Replies

New insurance ????

Good morning beautiful ladies 🌹❤️ Sorry to bother you again but I have a doubt I am under the medical insurance of my husband's work, how should we treat...

Good morning beautiful ladies 🌹❤️ Sorry to bother you again but I have a doubt...

Maludagui

•5 years ago

33 Replies

Moving to California’s central coast “SLO” SanLuis Obispo

So that is my dream=early retirement; but as a binys we are leaving Boston in Oct-Nov to drive across country in a Class A 40 FT Ckass A RV! What an adventure...

So that is my dream=early retirement; but as a binys we are leaving Boston in Oc...

Bailey3266

•5 years ago

3 Replies

Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

All posts for September 2019

Ibrance and pain

Memory books; letters to family for after I pass on (which I hope is a long time)!

Learning experience

Has anyone experienced increasing joint pain ?while on letrozole and Ibrance

Radiotherapy fatigue

Continue teaching while on Ibrance?

Best Medicine There Is!

Inbrance

Travel Insurance Refused

Any1 experience bowel & urinary tract neuropathy after chemo & what helped you? Asking for friend who "can't feel anything down there" EOM

SSDI Questions

Metastatic breast cancer

ANASTROZOLE 1 MG TABLET

Palliative Care

Frankinsense Update

Plans to go to India but I am nervous

Membendazole

Good news 😄

Flu jab

Ct scan results!

Immunotherapy

UPDATE - First Progress Report

The Artist

Miranda and Ben on their honeymoon

Need a Xeloda buddy to bounce some side effect ??’s with

Wondering

How often do you see your oncologist if having chemo privately at home

Meds to boost neutrophils

New insurance ????

Moving to California’s central coast “SLO” SanLuis Obispo

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