Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

6,633 members • 8,171 posts

All posts for September 2018

N. E. D. on Ibrance

I truly appreciate the information and sharing on this page. I had cancer 12 years ago,, had a double mastectomy, removed the sential node. In October of 2017...

I truly appreciate the information and sharing on this page. I had cancer 12 yea...

pinkeins

•6 years ago

10 Replies

NED

I have Mac and have been in ibrance and aromasin since June 2016 I keep seeing people writing that their scans are good and that they are NED. My onc has never...

I have Mac and have been in ibrance and aromasin since June 2016 I keep seeing p...

caw517

•6 years ago

17 Replies

Three or more years on Ibrance???

Is there anyone on this board that was in the Ibrance trials? I know that Nrocks has been on Ibrance three years. Is there anyone else that has been on it for...

Is there anyone on this board that was in the Ibrance trials? I know that Nrocks...

hdhonda

•6 years ago

9 Replies

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Scan results in!

First off I want to thank all of you for praying for me during my scan. All my lung nodules are smaller or stable since 5 months. No more plural effusion,...

First off I want to thank all of you for praying for me during my scan. All my l...

Clair19

•6 years ago

50 Replies

Frustrated thought I had everything I needed to join 4:00 pm support call

Can't find info continues to come up with Constant Contact so Frustrating

Thriver18

•6 years ago

1 Reply

Nodules are getting bigger

I checked my breast a few days ago and I can feel that nodules are getting bigger again. I don’t know if I am paranoid, but I am pretty sure they completely...

I checked my breast a few days ago and I can feel that nodules are getting bigg...

Euebdbdbddh

•6 years ago

3 Replies

Xeloda Users

I have an appt with my oncologist this week and will be at the end of my 2nd cycle. After my first cycle he said if my blood counts were good he was going to...

I have an appt with my oncologist this week and will be at the end of my 2nd cyc...

Kimr2081

•6 years ago

4 Replies

Megace

I started on megace a few weeks ago as I just could not eat and was loosing weight. It worked within 2 days and my appetite is back to normal with zero...

I started on megace a few weeks ago as I just could not eat and was loosing wei...

Alnmouth

•6 years ago

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Quesey stomach and slight headache

I was taking 125 Ibrance for 3 months and my doctor lowered the dose to 100, along with Xgeva and Faslodex injections. I was feeling pretty good but for the...

I was taking 125 Ibrance for 3 months and my doctor lowered the dose to 100, alo...

Klamato

•6 years ago

9 Replies

Painful mouth ulcers

New here. Halfway through 2nd cycle of Palbociclib ( 125 Ibrance) and letrozole. Comparatively new treatment in UK. Painful mouth ulcers getting me down, can...

New here. Halfway through 2nd cycle of Palbociclib ( 125 Ibrance) and letrozole....

Rotagirl

•6 years ago

14 Replies

Major issues on GemCarbo and losing weight

Hi Ladies, I was diagnosed in November 2015. I have done great until now. Eribulin was a cake walk, Ibrance and Faslodex I felt like i didn’t even have...

Hi Ladies, I was diagnosed in November 2015. I have done great until now. E...

Debdavenpo

•6 years ago

1 Reply

Dryness

Hi Ladies Before I was diagnosed with mbc my GP prescribed Vagifem for dryness and I used it for over a year I’m now obsessed that this contributed to my...

Hi Ladies Before I was diagnosed with mbc my GP prescribed Vagifem for dryness a...

Crazydentist

•6 years ago

16 Replies

New York here I come!!

Good morning, getting ready to leave for New York to celebrate my 60th birthday with family, another trip crossed off my bucket list!! A little concerned about...

Good morning, getting ready to leave for New York to celebrate my 60th birthday ...

Gmaoftriplets

•6 years ago

45 Replies

Itching non stop

Can you take benadryl on ibrance? The itching and scratching is driving me crazy. Weird that I didn't have this on 125 dose, but do on the 75 dose

Can you take benadryl on ibrance? The itching and scratching is driving me crazy...

Jamie724

•6 years ago

9 Replies

Scan done but Tech asked if I had lung surgery?

I hate these scans. The Tech asked if I had lung surgery? I did have my port removed but that’s not in my lung. I’m so scared I called the Oncologist. Of...

I hate these scans. The Tech asked if I had lung surgery? I did have my port rem...

Clair19

•6 years ago

13 Replies

Immunotherapy

Does anyone know if immunotherapy works or has been tried for MBC?

Juliandrea

•6 years ago

23 Replies

scans show regression and cancer receding but tumor markers up

soooo bummed out. i had scans two weeks ago and things showed "interval decrease" after 6 cycles of xeloda...but my post cycle blood work show tumor marker...

soooo bummed out. i had scans two weeks ago and things showed "interval decreas...

kit5

•6 years ago

32 Replies

Versenio side effects

Could you share how are you doing with Versenio i will start. taking this medication thanks

Could you share how are you doing with Versenio i will start. taking this medica...

PLASEM

•6 years ago

1 Reply

Side effects

Ive been on Ibrance 125mg. alongvwith Xgeva a b d Faslodex injections I since Apeil 218. Mets to L3, sternum, thoracic and pelvic. Recent pet scan negative!...

Ive been on Ibrance 125mg. alongvwith Xgeva a b d Faslodex injections I since Ap...

Gibbsbet

•6 years ago

6 Replies

Keep track of your bills!

Last week I got a bill for a procedure, not cancer related, on my foot done in May, 2017. I was pretty sure that I had already paid a bill for that, and when...

Last week I got a bill for a procedure, not cancer related, on my foot done in M...

PJBinMI

•6 years ago

4 Replies

Bone Metsters!

Hi I’m Heather! I’ve had MBC with mets to the bones since July ‘16...my Onc resently suggested we may make a change in treatment. I have both Lytic and Blastic...

Hi I’m Heather! I’ve had MBC with mets to the bones since July ‘16...my Onc rese...

Rhwright12

•6 years ago

6 Replies

Reflections on Statistics

I stay away from reading statistics about MBC. Why? Here is why: -someone is only counted as stage 4 if they began as stage 4. I was initially diagnosed...

I stay away from reading statistics about MBC. Why? Here is why: -someone is o...

Snowcone16

•6 years ago

39 Replies

Diarrhea after Sheva injection

Hi haven't asked a question for ages, but kept up with all you ladies on here. I have two breast tumours in the stomach and traces in the bones. I have just...

Hi haven't asked a question for ages, but kept up with all you ladies on here. ...

LIMEHOUSE3

•6 years ago

3 Replies

Stand up 2 cancer

I don't know if anyone watched this Friday September 7, it was pretty interesting. Money was raised for cancer research, all types of cancer. I felt I we have...

I don't know if anyone watched this Friday September 7, it was pretty interestin...

kduck

•6 years ago

19 Replies

Thank you!!

I just wanted to take a minute to say thank you so much to those who responded to my post about the "new normal". It gave me alot of inspiration and hope for...

I just wanted to take a minute to say thank you so much to those who responded t...

Kimr2081

•6 years ago

3 Replies

One year into treatment!

Was diagnosed with MBC and have been on Ibrance Faslodex and Xgeva for a year. Had spinal stenosis to begin with and am now having a really hard time walking....

Was diagnosed with MBC and have been on Ibrance Faslodex and Xgeva for a year. H...

Betbop

•6 years ago

12 Replies

Dana Farber institute

I am considering going here for a second opinion what does everyone think?

dreamboatannie

•6 years ago

28 Replies

Thank you

I wanted to say a big thank you to all of you, who responded to my post about the cold sores/canker sores. I looked it up, they look like canker sores. It...

I wanted to say a big thank you to all of you, who responded to my post about th...

SusieIM

•6 years ago

4 Replies

One more question - CBD relief?

I never liked smoking either cigarettes or marijuana. It’s not political or judgmental. I just like smoke. Nor do I like edibles which take too long to...

I never liked smoking either cigarettes or marijuana. It’s not political or jud...

Hidden

•6 years ago

17 Replies

Zomeda side effects question

Hello- I started ibrance 2 days ago and received Zomeda infusion yesterday. Experiencing a lot of bone aches, headaches and most frustrating- nausea &...

Hello- I started ibrance 2 days ago and received Zomeda infusion yesterday. Expe...

Hidden

•6 years ago

19 Replies

Posts - SHARE Metastatic Breast Cancer | HealthUnlocked

SHARE Metastatic Breast Cancer

All posts for September 2018

N. E. D. on Ibrance

NED

Three or more years on Ibrance???

Scan results in!

Frustrated thought I had everything I needed to join 4:00 pm support call

Nodules are getting bigger

Xeloda Users

Megace

Quesey stomach and slight headache

Painful mouth ulcers

Major issues on GemCarbo and losing weight

Dryness

New York here I come!!

Itching non stop

Scan done but Tech asked if I had lung surgery?

Immunotherapy

scans show regression and cancer receding but tumor markers up

Versenio side effects

Side effects

Keep track of your bills!

Bone Metsters!

Reflections on Statistics

Diarrhea after Sheva injection

Stand up 2 cancer

Thank you!!

One year into treatment!

Dana Farber institute

Thank you

One more question - CBD relief?

Zomeda side effects question

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