Three or more years on Ibrance???

[hdhonda]

Is there anyone on this board that was in the Ibrance trials? I know that Nrocks has been on Ibrance three years. Is there anyone else that has been on it for three or more years? Hannah

[spouseM]

In Oct, I will be 3 yrs...hard to believe! How about you?

[hdhonda in reply to spouseM]

I have been on Ibrance since April of 2017. I started on 100mg. but am now on 125 mg. I hope I can continue for a long time. The only side effect I have had is low WBC's. I have never had chemo. I was diagnosed with stage 1 BC in 2000 with no lymph node involvement. I had mastectomy and tamoxifen followed by femara. In 2017 the BC came back in the skin at the mastectomy site with mets to right lung. Hannah

[spouseM in reply to hdhonda]

Best of luck, it sounds like you are on a good path! Michelle

[pinkeins in reply to spouseM]

Been on one-year. NED.

[spouseM in reply to pinkeins]

I love that!!!

[Obig]

I have been on Ibrance since the day it became available, about 3 and a half years now. Was initially diagnosed with Stage 4 ILC in Dec 2015. Feel very blessed that this med is working for me, and no real side effects. So happy to have found this site. You guys are great!

[hdhonda in reply to Obig]

Obig - That is encouraging news. The only real side effect I have had is low counts. I was expecting chemo to be much worse so this has been a pleasant surprise. I hope it keeps working for me a long time. They say 24 months is about all one can expect from any treatment because the cancer outsmarts the drug and have to move on to a new treatment. I am so delighted when I learn that some are going well beyond that. Thanks.

[Obig in reply to hdhonda]

Stay encouraged!! Stats are just stats, and don't reflect the entire population on a drug.

[Obig in reply to hdhonda]

I meant to say that individuals can have much better results. My message was poorly worded. My best to you.