Bone Metsters!

[Rhwright12]

Hi I’m Heather!

I’ve had MBC with mets to the bones since July ‘16...my Onc resently suggested we may make a change in treatment. I have both Lytic and Blastic tumors. Currently my blastic tumors are showing signs of forming more dense bones. Most tumors make bones thinner but the ones I am blessed with cause density. I am currently on Zometa a bio phosphate and he wants to switch me to Xgeva another biophosphate which by definition helps build bone density also. But my problem is I am too dense. (😂lol! I know your laughing 😂) Has anyone else has blastic bone mets and had meds other than Zometa or Xgeva? I know they work differently but wasn’t sure if there was anything else or if anyone had any advise...

Blessings to all!

[Crazydentist]

Hi

I have mainly blast bone mets but some mixed..one of which fractured!!.. having bone cementing procedure soon

I was diagnosed in April..taking letrazole Ibrance and xgeva injections

The surgeon said I was lucky they were blastic or I would have had lots of fractures..so could be worse

Barb XX

[Kimr2081]

Cute picture by the way!! My breast cancer first moved to the bone in 2006 and I started on Faslodex only. I was clear for 11 years. I had no side effects and just had to get them once a month and scans once a year. I know things have changed alot since then. My has now moved to my liver and hormonal therapies haven't worked so am on an oral chemo called Xeloda. Hoping it works. Only starting my second cycle.

[kit5 in reply to Kimr2081]

i'm on my 8th cycle and so far it is my miracle drug

[Kimr2081 in reply to kit5]

That is so good to hear!!! Have you had any issues with the hands and feet crap you can get.

[kduck in reply to Kimr2081]

So you only did falsodex only, no chemo pill nor xgeve for 11 yrs, bone only mets, that's awesome. I hope that you get another 11 yrs from xeloda!!

[Kimr2081 in reply to kduck]

Thanks. Me too and hope you do well also.