Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

21,483 members • 15,160 posts

All posts for May 2021

Rls

Another night without sleep I’m getting to my bands end don’t know what to do anymore the legs are bad and no sleep my regime has been one Pramipexole 0.088mg...

Another night without sleep I’m getting to my bands end don’t know what to do an...

Hoochybaby

•3 years ago

10 Replies

Anyone having success with valerian?

I just came across an article backed up by research which claims that valerian is good for RLS. Any thoughts?

I just came across an article backed up by research which claims that valerian i...

Boomerang83

•3 years ago

6 Replies

Severe RLS

I now have severe RLS. Before my Whipple's op for cancer it was managed on one daily Iron Tablets. Since the op last year it has got very bad in my legs and...

I now have severe RLS. Before my Whipple's op for cancer it was managed on one ...

Mycatis6

•3 years ago

16 Replies

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Dopatone?

Friend's husband has Parkinson's and RLS. He just started using Dopatone by Apec. Anyone here try this? My naturo did put me on B6 and told me to eat Brazil...

Friend's husband has Parkinson's and RLS. He just started using Dopatone by Ape...

kicker2

•3 years ago

19 Replies

Hypoxia?

I posted a question on a video by Dr Neale Barnard regarding RLS. A kind person posted this in response: Finnish doctor found out that the root cause of...

I posted a question on a video by Dr Neale Barnard regarding RLS. A kind person ...

kicker2

•3 years ago

7 Replies

Might be useful??? Dunno

Stumbled on this video. I know RLS is NOT the same as essential tremors, but was curious to see what Dr Greger (who I adore!) said about essential tremors.....

Stumbled on this video. I know RLS is NOT the same as essential tremors, but was...

kicker2

•3 years ago

3 Replies

Insomnia

Hi all I’ve written many times on this site and I apologise for my continuing moaning but I’m getting desperate with my restless legs.. Last night I didn’t...

Hi all I’ve written many times on this site and I apologise for my continuing mo...

Hoochybaby

•3 years ago

30 Replies

Working with RLS

I have suffered from RLS, for many, many years. I have it in my arms as well as my legs, during the day, and at night. I was struggling at work before I was...

I have suffered from RLS, for many, many years. I have it in my arms as well as ...

Kippling

•3 years ago

1 Reply

RLS Breakthrough Number 9

If my legs wake me up at night, then I run in place for 13 minutes. It's not really one running, I just raise my heels half an inch and pound them down hard...

If my legs wake me up at night, then I run in place for 13 minutes. It's not re...

davidadill

•3 years ago

Be the first to reply

Iron and decreased carbs, no refined sugars and no processed foods. Garlic, Vit C Probiotics for SIBA (small intestine bacterial overgrowth

Iron and decreased carbs, no refined sugars and no processed foods. Garlic, Vit...

Bebedmd1

•3 years ago

1 Reply

At last a phone call

6 weeks ago I wrote to my g.p. as it’s impossible to see them at the moment. I explained in the letter that the Tramadol was no longer working and the extreme...

6 weeks ago I wrote to my g.p. as it’s impossible to see them at the moment. I e...

bedith6

•3 years ago

14 Replies

Some RLS experiences which might possibly be helpful in understanding the condition

I am 69 and I have had RLS with increasing severity for 50 years. I appreciate that everyone’s experience is different, but I would like to offer a few...

I am 69 and I have had RLS with increasing severity for 50 years. I appreciate t...

Wairahi

•3 years ago

15 Replies

Off Ropinerole but what next?

After augmenting on Ropinerole, it has taken me six months to come off it. My blood test showed a Ferritin level of 8 and thankfully I received an iron...

After augmenting on Ropinerole, it has taken me six months to come off it. My bl...

NonnieJ

•3 years ago

7 Replies

Sifrol

I have taken Sifrol for over 2years and it still works. I am on 1.05 plus 2x0.18 and have no side effects at all. I am able to sleep most nights, occasionally...

I have taken Sifrol for over 2years and it still works. I am on 1.05 plus 2x0.1...

Crazy1921

•3 years ago

1 Reply

Forced off morphine

I stumbled on your post and sympathise greatly. I have been suffering with long term chronic pain and was taking morphine for many years and pregabalin to...

I stumbled on your post and sympathise greatly. I have been suffering with long...

Bstars

•3 years ago

6 Replies

How do you cope with rls

Hi I'm new to all this I'm 37 and started with rls in short spells in my 20s, now for the last year and a half it's been constant I only sleep 2 hours if I'm...

Hi I'm new to all this I'm 37 and started with rls in short spells in my 20s, no...

Bstars

•3 years ago

33 Replies

Quit Sifrol

Hello, Like most others in the group, you have to adjust the medication based on what works constantly. I have taken 1.5 tablet Sifrol 0.18 divided into three...

Hello, Like most others in the group, you have to adjust the medication based on...

tomashagg

•3 years ago

11 Replies

RLS: A degenerative disease?

Dear RLS-ies, Can you help out a fellow sufferer? Just need a wee morsel of information. I'm filling out a legal form and it would be useful to be able to...

Dear RLS-ies, Can you help out a fellow sufferer? Just need a wee morsel of in...

Wairahi

•3 years ago

11 Replies

Chi machine?

Has anyone used a Chi Machine? A man at my church who has Parkinson's said he used to use the machine to help him sleep. (He had Deep Brain Stimulation and is...

Has anyone used a Chi Machine? A man at my church who has Parkinson's said he us...

kicker2

•3 years ago

8 Replies

Tens machines RSL

Back on the RSL with the talk of tens machines for pain I wonder if you could use one on your head to try and scramble the signals as when it’s bad I go under...

Back on the RSL with the talk of tens machines for pain I wonder if you could us...

Hidden

•3 years ago

5 Replies

RLS and heat

Hello everyone, I would like to share my latest experience just in case it helps someone somewhere to get a little relief from this horrid problem. Having...

Hello everyone, I would like to share my latest experience just in case it helps...

Bruxelles

•3 years ago

15 Replies

Swollen ankle

My RLS seems to just be in the right leg. I have noticed that sometimes the right ankle gets a bit swollen. Is this consistent with RLS? Thanks

My RLS seems to just be in the right leg. I have noticed that sometimes the righ...

Papa9385

•3 years ago

4 Replies

Gabapentin - occasional use?

I was previously taking Gabapentin (900mg), but decided to stop due to the side-effects. Last night, after a few really bad nights, I thought I'd just pop...

I was previously taking Gabapentin (900mg), but decided to stop due to the side-...

passgo

•3 years ago

35 Replies

Ropinirole and Gabapentin

Hi All, I'm 53 and based in the UK. I've had steadily worsening RLS and been taking 2mg of Ropinirole for around 8 years now. Over the last year my symptoms...

Hi All, I'm 53 and based in the UK. I've had steadily worsening RLS and been ta...

Shaunygee

•3 years ago

3 Replies

RLS

I’ve had RLS for over 20 years now. Mine is so bad I’ve called for an ambulance twice. They came to the door and asked “Did you call for an ambulance for...

I’ve had RLS for over 20 years now. Mine is so bad I’ve called for an ambulanc...

barbiepearl

•3 years ago

5 Replies

Autoimmune? Fermented Foods?

I'm reading conflicting things... anyone know??? 1. Are drs now believing that RLS is an autoimmune disease? 2. I'm into gut health, so have started to add...

I'm reading conflicting things... anyone know??? 1. Are drs now believing that ...

kicker2

•3 years ago

5 Replies

IS SLEEP DEPREVIATION DANGEROUS

I worry about the damage to my body from not sleeping. I am nauseated most of the time. Dizzy and feel really strange. Sometimes when I'm up at night I hear...

I worry about the damage to my body from not sleeping. I am nauseated most of th...

Josana13

•3 years ago

10 Replies

RLS

Have had RLS for quite sometime. It's getting worse & am getting quite depressed, as not getting a lot of sleep. I'm taking pramixople 4 times a day &...

Have had RLS for quite sometime. It's getting worse & am getting quite depresse...

Anna51

•3 years ago

37 Replies

My experience with Cymbalta

I have two problems. One is restless legs. The other is muscle pain in my legs that kept me from sleeping at night. After getting off ropinirole, I increased...

I have two problems. One is restless legs. The other is muscle pain in my legs t...

SueJohnson

•3 years ago

2 Replies

RLS Nightmare

I am so tired of my RLS, it's really getting me down. I'm thinking of having an iron infusion, can anyone recommend this?

I am so tired of my RLS, it's really getting me down. I'm thinking of having an...

soundofmetal

•3 years ago

8 Replies

Posts - Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

All posts for May 2021

Rls

Anyone having success with valerian?

Severe RLS

Dopatone?

Hypoxia?

Might be useful??? Dunno

Insomnia

Working with RLS

RLS Breakthrough Number 9

Iron and decreased carbs, no refined sugars and no processed foods. Garlic, Vit C Probiotics for SIBA (small intestine bacterial overgrowth

At last a phone call

Some RLS experiences which might possibly be helpful in understanding the condition

Off Ropinerole but what next?

Sifrol

Forced off morphine

How do you cope with rls

Quit Sifrol

RLS: A degenerative disease?

Chi machine?

Tens machines RSL

RLS and heat

Swollen ankle

Gabapentin - occasional use?

Ropinirole and Gabapentin

RLS

Autoimmune? Fermented Foods?

IS SLEEP DEPREVIATION DANGEROUS

RLS

My experience with Cymbalta

RLS Nightmare

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