Humira: theguardian.com/commentisfr... - NRAS

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Humira

cathie profile image
13 Replies

theguardian.com/commentisfr...

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cathie profile image
cathie
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13 Replies
hatshepsut profile image
hatshepsut

The Despatches programme about this is available on All 4 catchup, and well worth a watch. The prospects are terrifying.

cathie profile image
cathie in reply to hatshepsut

Terrifying but we can do something about it !

hatshepsut profile image
hatshepsut in reply to cathie

Indeed!!!

woodstar1 profile image
woodstar1 in reply to cathie

Me too, and my wife and 2 eldest kid's!!

wishbone profile image
wishbone in reply to hatshepsut

Well I'm going to do something about it!...I'm not saying what tough! ;-)

cathie profile image
cathie in reply to wishbone

me too! Bigtime!!

charisma profile image
charisma

There was a Gov article I saw recently, showing which medicines would be less/not available after Brexit; it included Prednisolone but I cannot find it now... might have been changed as Brexit never happened (yet)!

gov.uk/government/publicati...

cathie profile image
cathie in reply to charisma

that report did worry me as I know the biologics I get are horribly expensive - but effective. I was taken off one five years ago and it was awful getting my treatment back. It is now. But...

charisma profile image
charisma in reply to cathie

It is rather frightening. I just stopped adalimumab (brand Amgevita, biosimilar to Humira) and need Rituximab from sometime in January.

Our meds, if working, are a necessity and a lifeline!

cathie profile image
cathie in reply to charisma

absolutely. People need to know though, I dont like spreading alarm.

Mmrr profile image
Mmrr

We have the power to stop it, be wise folks !

Damien123123 profile image
Damien123123

For someone like me life really isn’t worth it without the humira and I would probably either hunger strike or set myself on fire outside parliament if it got taken away again... tried the bio similars and they are pathetically bad at doing the job they are supposed to do, within 3-4 injections of them I could barely move and became pretty suicidal. The way I see it is if they take it away from people then they better open up a euthanasia clinic

cathie profile image
cathie

I can empathise with where you are, but dont despair. I've been in utter despair and have had similar thoughts for similar reasons - being taken off a drug that works. If this happens again I will try to remember that I was there, but have had virtual remission on my present medication now. I hope it helps to know you're not alone, although it can feel like that sometimes. XX and hugs

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