G'day Relapsing-Remitting ms (RRms) family. I hope YOU all are well rested and ready to engage in the joys that today brings. Let YOU in on a secret. WE ARE ALIVE. We made it through another rotation, and that is a very good thing.
Did YOU get the title? This is intended for our newbies (newly diagnosed). I will state first the painful and obvious. YOU have Relapsing-Remitting ms (RRms). It is an incurable progressive disease. Do not blame me that is what the doctors say, and I have it as well. Actually after careful calculation last night, we worked out 25 years worth, and this is my 25th year, so I will have to get that right. See, You can make this so inconsequential so as to not even remember the date.
Make your ms like that. Let it be a part of your life, but not your whole life. Make it something that YOU constantly fight against, and something you constantly adapt to. If your adaption does not work the first time try again. Stop trying only when YOU are six feet under or going into the crematorium fires. Even then if YOU can fight it, Never ever stop. One day if YOU are judged, YOU can always say I never stopped trying and I learnt a lot.
Do YOU get the picture? Be your best advocate, and try and try again to do things. Accept what YOU can not do, but fight against everything else and make it a glorious fight, One that can go down in your family's history as an example of how great YOU once were. Be proud of yourself, be an example.
You know have to mention this. Get on a Disease-Modifying Therapy (DNT), it will not cure YOU, but it slow your progression down a little, and that is a good thing. Which one YOU ask? OCREVUS, if they had this years ago I would have been on it and so should YOU until they come up with something better. Lastly always ask yourself, who has my RRms? NOT your doctor, your nurse, your spouse, YOU. Act like it, do the best for yourself.
Every day forever I try and so should you.
Royce
