Ocrevus?

[Szs3eb]

I just had my first visit with an MS specialist at a teaching hospital in California. They concurred with the diagnosis of multiple sclerosis but they recommended ocrevus over tecfidera.

I admit to being a little freaked out about the whole getting sick situation while on a B cell depleter.

Can any of you share your experience? Have you ended up with a fever or such well on Ocrevus? What happened?

Regardless, I'm so grateful that I was able to be seen at a renowned MS Center.

[mrsmike]

I've been Ocrevus for the last four years and haven't had any issues with it other than having had a case of insomnia the night of the infusion. Good luck, keep us posted on how your infusion goes.

[starlight5]

I have been on ocrevus since 2018 with no issues. Hopefully that will continue🙏🤞

[Szs3eb in reply to starlight5]

Thank you

[Cwright170994]

I'll share an experience I had of one during the covid crisis one year, a few weeks before Christmas, and a couple of weeks after I had my ocrevus infusion towards the end of November. My husband caught covid! And in typical men fashion, he caught it "real bad," and needed me to care for him, whilst also feeling guilty because he knew I was immunocompromised at that point! I didn't care. I also didn't test positive at any point! 🤣🤣🤣😈 I'm putting it down to me actually catching it before I got moved onto ocrevus, but my only symptom really was needing to sleep more, because I was more tired 🤷‍♀️ sure, he was able to get the same vax's as me, because he's "technically" my carer when he's not in work, and so the NHS treat him just the same as me, being the one who needs more healthcare.

It'll be alright 👍 your immune system is so powerful that it even goes and attacks healthy cells! And if you get infected by something, your immune system will overpower it quickly, and thus needs something to weaken it to stop it from attacking your healthy cells. At least, that's how I think of it and explain it to people who don't need an immunosuppressant, and so don't know how it works, or have a need to know how it works 🤷‍♀️

[Szs3eb in reply to Cwright170994]

Thank you

[Neworleanslady]

I started on tecfidera when first diagnosed with ms many years ago and my wbc went down so much and so quickly that they switched my meds around, to where thru the years I’ve tried many different things. I finally ended up on ocrevus and have been on it 2-3 years (I can’t remember exactly how long) and have had no problems! At least no new problems. I’m very happy with it

[Szs3eb in reply to Neworleanslady]

Thank you

[Elizt3]

I’ve been on Ocrevus since 2019. I can’t remember being sick at all. My daughter brought Covid home in 2022 and I didn’t even get it. My only problem early on was that I was getting a reaction to the infusion and it turned out to be affecting my stomach. Now I get iv Pepcid before each Infusion. This is my sixth DMT and I highly recommend it. MRIs stable since I went on the med.

[Szs3eb in reply to Elizt3]

Thank you

[RoyceNewton]

Ocrevus Ocrevus Ocrevus, you know my opinion on that. My wife's doctor for many years recommends getting off Tecfidera because it is not as effective as once thought. Suggested firmly that I get on Ocrevus as a matter of urgency. So I have with no problems and YOU should as well,IMHO. No issues after 3 doses so far, around your age as well.

[Szs3eb in reply to RoyceNewton]

Thank you!

[RoyceNewton in reply to Szs3eb]

hey I do not want you to think I have a biased opinion

[Goldilockssearching]

6 years-no issues. Rapid infusion,no premeds. I stay away from large crowds of people.

[Szs3eb in reply to Goldilockssearching]

Thank you!

[kdali]

Once my littles returned to their normal school lives and the germ swap began, I caught many things while on Ocrevus. I did not even had a fever when I had covid. Bacterial infections, such as a UTI and a sinus infection, were bad enough to require antibiotics and did produce fevers. Nothing exciting happened. Annoying mostly 🤣

[Szs3eb in reply to kdali]

Thank you

[ahrogers]

I have been on Ocrevus since 2016. I have only had one UTI since then. I have had Covid 3 times (which I would have gotten with or without Ocrevus) and did have a bit of a tough time each time I had it. Took a week to get past the initial feeling poorly then another few weeks for the fatigue to get back to baseline. I would guess Ocrevus isn't the only reason for Covid hitting me so hard since many people have had a hard time with Covid who are not on it. I did not have to go to the hospital.

[Szs3eb in reply to ahrogers]

Thank you

[Tazmanian]

I've been on Ocrevus for several years now with no problems

[Szs3eb in reply to Tazmanian]

Thank you!

[Tazmanian in reply to Szs3eb]

You're welcome

[anaishunter]

I've been on Ocrevus since 2018. No side effects or problems whatsoever. I've had surgery (hip replacement) and teeth extraction with no concern as long as you time the surgery and the infusion (surgeons will give you the guidance).

My ms went from very active (many active lesions) to no new lesion, no active lesion at the 6-month MRI checkup.

[Szs3eb in reply to anaishunter]

Thank you

[sMilEs_N_bLuE_sKiEs]

I’ve been having ocrevus infusions since January 2020, so going on 4 yrs. Had an infusion reaction once, had a little rash on my belly, head a little itchy. I think I wasn’t hydrated enough, so I make it a point to drink even more water the day before and the day of. Also, I talk to my infusion nurses, and I make it a point to request the whole Benadryl dosage throughout my infusion. The first half in the beginning right around the steroid phase and the second half of the dosage midway through the ocrevus medication. Smooth sailing.

No new lesions, can’t complain.

Hope this info helps!

[Szs3eb in reply to sMilEs_N_bLuE_sKiEs]

Thank you!

[Mollyabigail]

Szs, I have had 6 Ocrevus infusions. So far, the only thing I have gotten was Covid (despite having every shot that has come down the pike for it). Pray about it.

[Szs3eb in reply to Mollyabigail]

Thank you!