I have my reg. 6 mos. checkin with my neuro this coming Thurs. 3/8. I transitioned to SPMS about 5 yrs ago. Previously, I had taken Copaxone from the time I was dx in 5/2001. During these 5 years, the only thing I've taken was during a double-blind MS med trail...& I don't know if I was taking THE drug or placebo. I had no adverse side-effects or reactions to whatever it was.
Anyway, I'm currently not taking any MS drugs. My last MRI was 7mos ago... nothing new. My neuro doesn't seem too concerned that I'm not taking anything. I've noticed more progression just since I saw her 7 mos. ago. I was taking a cane or walking stick when I knew I was going to be walking more than usual... now, it's rare that I don't use one. There are other 'signs', as well.
I'm wondering about having another conversation with her about taking something to slow the progression. However, I'd like to have some suggestions/experiences from any on this forum/group who have SPMS. If you're not taking anything, I'd like to know your experience, as well. It's not that I WANT to take something (I hate taking anything more than Tylenol)...I'm just wondering if I SHOULD!
I want to add, in all this time of living with MS, this is the FIRST time I've ventured into an MS group of any kind. I feel sort of vulnerable, & a bit lost.... this is a new experience, for me. I'm so glad I found "YOU"!!!! I've already learned things & asked myself why I've 'stayed away'... maybe more denial than I've actually realized!!
Sorry about the long post!!! Thanks for reading! I look forward to your responses!